IBD in the UK improving patient outcomes and experienceDDF, London 25th June 2015

Patient Portals The Way Forward?Cath Stansfield MSc, BSc, RN, NPAdvanced Practitioner Gastroenterology Salford Royal Hospitals NHS Trust

Challenges to IBD servicesIBD managementSomehow we have to work smarter and harder!!

What do people want from the NHS?Accurate and reliable information

Improved access to information

More involvement in decisions about health

Better integration of care

Are portals the way forward?

1. Electronic Health Record

2. Personal Health Record

3. Information System

Benefits to serviceIBD Portal as a tool of self managementReduction in outpatient attendancesA 3rd Checker!Tracking disease activitySupporting biologic requests

Barriers to ImplementationLocallyConsultant timeMy IT knowledgeIT department supportPortal project roll outClinicians concerns regarding sharing of informationLocal IT infrastructures

Patient FeedbackSomewhere to turn before GoogleBetter understanding of my disease - including disease location and proceduresGreater understanding blood tests and resultsInter-transferable data from one medical institution to another - I can just log in anywhereI can document my medications and disease patternFantastic chronological database of treatments, appointments and discussions with the care team

Future PlansRoll out the service to all patients at Salford Royal to further evaluate its impact on servicesImplement the Portal into early adopting hospitals Evaluate the drivers and barriers to implementation and develop a roadmap to facilitate national roll out Link the Portal with the National IBD Registry

IBD in the UK improving patient outcomes and experience

*Recent Surveys

These are some of the aspects of what patients would like from the NHS from a recent NHS survey

I hope that the project that I have developed with funding from CCUK addresses many of these points * Summary of users IBD Relevant blood tests Clinic letters Dates of Investigations Allergies

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