4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor)...

4
08:30-09:00 09:00-09:30 09:30-10:00 10:00-10:30 10:30-11:00 11:00-11:30 11:30-12:00 12:00-12:30 12:30-12:40 12:40-12:50 12:50-13:20 13:20-13:50 13:50-14:20 14:20-14:30 14:30-15:00 Themes Rooms 15:05-15:25 15:25-15:45 15:45-16:05 16:05-16:15 Themes Rooms 16:15-16:35 16:35-16:55 16:55-17:15 17:15-17:25 Themes Rooms 17:25-17:45 17:45-18:05 18:05-18:25 WELCOME DRINKS & CANAPÉS RECEPTION is open to all delegates, Linbury Gallery (Ground Floor) 18:30-19:30 BREAK, Mid Morning Tea & Coffee Linbury Gallery (Ground Floor) BREAK EVIDENCE TO SUPPORT POLICY MAKING APPLIED RESEARCH Migration to Scottish New Towns and the impact on premature mortality in Glasgow: longitudinal analysis of linked Scottish Mental Survey 1947 and NHS Central Register data Lynne Forrest University of Edinburgh, UK Building Statistics Canada’s Statistical Population Register Sylvain Cloutier Government of Canada, CANADA PRE-CONFERENCE WORKSHOP CONTINUED LUNCH Linbury Gallery (Ground Floor) INTRODUCTION KEYNOTE by Professor Kerina Jones, Swansea University, UK Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe (2nd Floor) BREAK CASE STUDIES & CONCEPTS ETHICAL, LEGAL & SOCIAL IMPLICATIONS METHODOLOGICAL & ANALYTICAL ADVANCES Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe (2nd Floor) Association between levodopa and ischemic heart disease Khalid Orayj Cardiff University, UK Epilepsy Mortality in Wales: 2005- 2017 Helen Daniels Swansea University, UK Using data linkage innovation and collaboration to create a cross- sectoral data repository for Western Australia Anna Ferrante Curtin University, AUSTRALIA Building a research partnership between computer scientists and health service researchers for access and analysis of population- level health datasets: what are we learning? Michael Schull Institute for Clinical Evaluative Sciences, CANADA EVIDENCE TO SUPPORT POLICY MAKING APPLIED RESEARCH CASE STUDIES & CONCEPTS ETHICAL, LEGAL & SOCIAL IMPLICATIONS METHODOLOGICAL & ANALYTICAL ADVANCES Sexual crime against children with disabilities: a nationwide prospective birth cohort-study Mogens Christoffersen The Danish Center for Social Science Research, DENMARK Strengthening the use of administrative data to provide gender statistics Lauren Pandolfelli United Nations International Children's Emergency Fund (UNICEF), USA Research Ready Data Lakes: Protecting Privacy in Relatable Sets Robert McMillan Georgia State University, USA Comparing Record Linkage methods for real-world perinatal and neonatal data without unique identifiers Christian Borgs University of Duisburg-Essen, GERMANY CASE STUDIES & CONCEPTS EVIDENCE TO SUPPORT POLICY MAKING METHODOLOGICAL & ANALYTICAL ADVANCES PRE-CONFERENCE WORKSHOP CONTINUED Making Data Research Ready by Administrative Data Research UK Room 2.05 (2nd Floor) WELCOME KEYNOTE by Professor David Ford, Swansea University, UK PLENARY KEYNOTE by Garry Coleman, NHS Digital, England, UK PLENARY KEYNOTE by Matthew Whittaker, Resolution Foundation, UK PRE-CONFERENCE WORKSHOP Seligman Studio (1st Floor) PLENARY Dora Stoutzker Hall Rowe-Beddoe (2nd Floor) LUNCH Linbury Gallery (Ground Floor) REGISTRATION Royal Welsh College of Music & Drama Foyer 4th International Conference on Administrative Data Research Royal Welsh College of Music & Drama, Cardiff DAY 1 MONDAY 09 DECEMBER Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) PRE-CONFERENCE WORKSHOP Making Data Research Ready by Administrative Data Research UK Room 2.05 (2nd Floor) WELCOME SPEECH by Professor Paul Boyle, Vice-Chancellor of Swansea University, UK ETHICAL, LEGAL & SOCIAL IMPLICATIONS APPLIED RESEARCH Assessing the impact on inequalities in use of orthodontic services of the introduction of an objective measure of treatment need in Northern Ireland Kishan Patel Queen University Belfast, UK Long-term outcomes of urinary tract infection (UTI) in childhood: The LUCI study Kathryn Hughes Cardiff University, UK Building a Canadian Data Platform under the Strategy for Patient- Oriented Research Kim McGrail University of British Columbia, CANADA Disclosive Data: Who uses it, why, and what difference does it make? Andrew Engeli Office of National Statistics, UK Development of an Injury Indicator Tool to Support Policy and Practice across Wales Samantha Turner Swansea University, UK Linked government administrative data: Public or Private? Joe Stafford Telethonkids, AUSTRALIA Co-design of data collection with participants of the Aberdeen Children of the 1950s cohort study Marjorie Johnston Aberdeen University, UK How complete, representative and accurate is recording of child BMI in electronic general practice records? A record linkage study Nicola Firman Queen Mary University London, UK Prevalence three ways: Comparison of linked data from a patient register and electronic health records with allowance for linkage error James Doidge Intensive Care National Audit and Research Centre, UK Pros and cons of using anonymised linked routine data to improve efficiency of randomised controlled trials in healthcare: experience in primary and emergency care Helen Snooks Swansea University, UK Association between continuity of provider-adjusted regularity of general practitioner (GP) contact and diabetes-related hospitalisation: A data linkage study combining survey and administrative data Rachael Moorin Curtin University, AUSTRALIA The Secure Anonymised Information Linkage databank Dementia e-cohort (SAIL-DeC) Christian Schnier University of Edinburgh, UK Data intensive science and the public good: Results of public deliberations in British Columbia, Canada Kim McGrail University of British Columbia, CANADA Evaluating continuity of care incorporating a time protective effect of general practitioner care on diabetes related potentially preventable hospitalisations: An application of threshold effects model Ninh Ha Curtin University, AUSTRALIA Developing data governance standards for using free-text data in research (TexGov) Kerina Jones Swansea University, UK Quantifying multi-morbidity in an ethnically-diverse inner city population: the health burden of households Gill Harper Queen Mary University London, UK A Victim-Focused Response to Repeat Fraud and Computer Misuse Crimes: Challenges and Opportunities through Admin Data Linkage Sara Correia Swansea University, UK Leveraging Electronic Health Records and Administrative Datasets to Understand Social Determinants of Health: Opportunities and Challenges Jonathan Tan Children's Hospital of Philadelphia, USA Implications of socio-demographic change in place of death in Scotland 2001-2011: an analysis of linked census and death registration data Iain Atherton Edinburgh Napier University, UK REGISTRATION Royal Welsh College of Music & Drama Foyer PLENARY KEYNOTE by Leon Feinstein, Office of the Children's Commissioner, UK Measuring and explaining the changing nature of work - The Linked Personnel Panel enriched with administrative employment data (LPP-ADIAB) Stefanie Wolter Institute for Employment Research (IAB) of the German Federal Employment Agency (BA), GERMANY One-year readmission and Emergency department presentation after an epilepsy admission in people with intellectual disability: a registry-linkage study Peiwen Liao University of New South Wales, AUSTRALIA The potential of linking cohort participants to official criminal records: a pilot study using the Avon Longitudinal Study of Parents and Children (ALSPAC) Alison Teyhan Bristol University, UK Challenges and Principles to guide the linkage of government administrative data: Experiences from the Tassie Kids project Joe Stafford Telethonkids, AUSTRALIA Evaluating ATC-ICD: Assessing the relationship between selected medication and diseases with machine learning Nadine Weibrecht Vienna University of Technology, AUSTRIA PARALLELS REGISTRATION Royal Welsh College of Music & Drama Foyer Evaluation of the Troubled Families Programme Lan-Ho Man & Ralph Halliday Ministry of Housing, Communities and Local Government, UK The association between mother’s alcohol consumption during pregnancy and their child’s educational attainment and risk of hospital admission by age 14 Amrita Bandyopadhyay Swansea University, UK Circular migration Samaa Elsandabesee Office of National Statistics, UK Protecting children during child protection research using administrative data Jade Hooper University of Stirling, UK Using record linkage to test representativeness of an ageing cohort Frances Burns Queen University Belfast, UK Administrative Data Censuses in US States Amy O'Hara Georgetown University, USA PANEL DISCUSSION Chair by Professor David Ford, Swansea University, UK BREAK, Afternoon Tea & Coffee, Linbury Gallery (Ground Floor) Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Not in Employment, Education or Training (NEET); more than a youth policy issue Francis Mitrou Telethonkids, AUSTRALIA The Office for National Statistics Longitudinal Study Alison Sizer University College London, UK Association between receipt of social care and multimorbidity: evidence from a population-sized cohort in Scotland David Henderson Edinburgh Napier University, UK Evaluating needs-based home visiting support: Can administrative data help? Nell Warner Cardiff University, UK Fuel Poverty Data Linking Project Sarah Lowe & Sian Morrison-Rees Welsh Government & Swansea University, UK

Transcript of 4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor)...

Page 1: 4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe

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10:30-11:00

11:00-11:30

11:30-12:00

12:00-12:30

12:30-12:40

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14:20-14:30

14:30-15:00

Themes

Rooms

15:05-15:25

15:25-15:45

15:45-16:05

16:05-16:15

Themes

Rooms

16:15-16:35

16:35-16:55

16:55-17:15

17:15-17:25

Themes

Rooms

17:25-17:45

17:45-18:05

18:05-18:25

WELCOME DRINKS & CANAPÉS RECEPTION is open to all delegates, Linbury Gallery (Ground Floor) 18:30-19:30

BREAK, Mid Morning Tea & Coffee

Linbury Gallery (Ground Floor)

BREAK

EVIDENCE TO SUPPORT

POLICY MAKING

APPLIED RESEARCH

Migration to Scottish New Towns

and the impact on premature

mortality in Glasgow: longitudinal

analysis of linked Scottish Mental

Survey 1947 and NHS Central

Register data

Lynne Forrest

University of Edinburgh, UK

Building Statistics Canada’s

Statistical Population Register

Sylvain Cloutier

Government of Canada, CANADA

PRE-CONFERENCE WORKSHOP CONTINUED LUNCH

Linbury Gallery (Ground Floor)

INTRODUCTION KEYNOTE by Professor Kerina Jones, Swansea University, UK

Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe (2nd Floor)

BREAK

CASE STUDIES & CONCEPTS ETHICAL, LEGAL & SOCIAL

IMPLICATIONS

METHODOLOGICAL &

ANALYTICAL ADVANCES

Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe (2nd Floor)

Association between levodopa and

ischemic heart disease

Khalid Orayj

Cardiff University, UK

Epilepsy Mortality in Wales: 2005-

2017

Helen Daniels

Swansea University, UK

Using data linkage innovation and

collaboration to create a cross-

sectoral data repository for

Western Australia

Anna Ferrante

Curtin University, AUSTRALIA

Building a research partnership

between computer scientists and

health service researchers for

access and analysis of population-

level health datasets: what are we

learning?

Michael Schull

Institute for Clinical Evaluative

Sciences, CANADA

EVIDENCE TO SUPPORT

POLICY MAKING

APPLIED RESEARCH CASE STUDIES & CONCEPTS ETHICAL, LEGAL &

SOCIAL IMPLICATIONS

METHODOLOGICAL &

ANALYTICAL ADVANCES

Sexual crime against children with

disabilities: a nationwide

prospective birth cohort-study

Mogens Christoffersen

The Danish Center for Social Science

Research, DENMARK

Strengthening the use of

administrative data to provide

gender statistics

Lauren Pandolfelli

United Nations International

Children's Emergency Fund (UNICEF),

USA

Research Ready Data Lakes:

Protecting Privacy in Relatable Sets

Robert McMillan

Georgia State University, USA

Comparing Record Linkage

methods for real-world perinatal

and neonatal data without unique

identifiers

Christian Borgs

University of Duisburg-Essen,

GERMANY

CASE STUDIES & CONCEPTSEVIDENCE TO SUPPORT

POLICY MAKING

METHODOLOGICAL &

ANALYTICAL ADVANCES

PRE-CONFERENCE WORKSHOP CONTINUED

Making Data Research Ready by Administrative Data Research UK

Room 2.05 (2nd Floor)

WELCOME KEYNOTE by Professor David Ford, Swansea University, UK

PLENARY KEYNOTE by Garry Coleman, NHS Digital, England, UK

PLENARY KEYNOTE by Matthew Whittaker, Resolution Foundation, UK

PR

E-C

ON

FE

RE

NC

E W

OR

KS

HO

P

Seligman

Stud

io (1

st Flo

or)

PL

EN

AR

Y

Do

ra Stou

tzker H

all

Rowe-Beddoe (2nd Floor)

LUNCH

Linbury Gallery (Ground Floor)

REGISTRATION

Royal Welsh College of Music & Drama Foyer

4th International Conference on Administrative Data Research

Royal Welsh College of Music & Drama, Cardiff

DAY 1 MONDAY 09 DECEMBER

Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor)

PRE-CONFERENCE WORKSHOP

Making Data Research Ready by Administrative Data Research UK

Room 2.05 (2nd Floor)

WELCOME SPEECH by Professor Paul Boyle, Vice-Chancellor of Swansea University, UK

ETHICAL, LEGAL &

SOCIAL IMPLICATIONS

APPLIED RESEARCH

Assessing the impact on inequalities

in use of orthodontic services of the

introduction of an objective

measure of treatment need in

Northern Ireland

Kishan Patel

Queen University Belfast, UK

Long-term outcomes of urinary

tract infection (UTI) in childhood:

The LUCI study

Kathryn Hughes

Cardiff University, UK

Building a Canadian Data Platform

under the Strategy for Patient-

Oriented Research

Kim McGrail

University of British Columbia,

CANADA

Disclosive Data: Who uses it, why,

and what difference does it make?

Andrew Engeli

Office of National Statistics, UK

Development of an Injury Indicator

Tool to Support Policy and Practice

across Wales

Samantha Turner

Swansea University, UK

Linked government administrative

data: Public or Private?

Joe Stafford

Telethonkids, AUSTRALIA

Co-design of data collection with

participants of the Aberdeen

Children of the 1950s cohort study

Marjorie Johnston

Aberdeen University, UK

How complete, representative and

accurate is recording of child BMI in

electronic general practice records?

A record linkage study

Nicola Firman

Queen Mary University London, UK

Prevalence three ways: Comparison

of linked data from a patient

register and electronic health

records with allowance for linkage

error

James Doidge

Intensive Care National Audit and

Research Centre, UK

Pros and cons of using anonymised

linked routine data to improve

efficiency of randomised controlled

trials in healthcare: experience in

primary and emergency care

Helen Snooks

Swansea University, UK

Association between continuity of

provider-adjusted regularity of

general practitioner (GP) contact

and diabetes-related

hospitalisation: A data linkage

study combining survey and

administrative data

Rachael Moorin

Curtin University, AUSTRALIA

The Secure Anonymised

Information Linkage databank

Dementia e-cohort (SAIL-DeC)

Christian Schnier

University of Edinburgh, UK

Data intensive science and the

public good: Results of public

deliberations in British Columbia,

Canada

Kim McGrail

University of British Columbia,

CANADA

Evaluating continuity of care

incorporating a time protective

effect of general practitioner care

on diabetes related potentially

preventable hospitalisations: An

application of threshold effects

model

Ninh Ha

Curtin University, AUSTRALIA

Developing data governance

standards for using free-text data in

research (TexGov)

Kerina Jones

Swansea University, UK

Quantifying multi-morbidity in an

ethnically-diverse inner city

population: the health burden of

households

Gill Harper

Queen Mary University London, UK

A Victim-Focused Response to

Repeat Fraud and Computer Misuse

Crimes: Challenges and

Opportunities through Admin Data

Linkage

Sara Correia

Swansea University, UK

Leveraging Electronic Health

Records and Administrative

Datasets to Understand Social

Determinants of Health:

Opportunities and Challenges

Jonathan Tan

Children's Hospital of Philadelphia,

USA

Implications of socio-demographic

change in place of death in Scotland

2001-2011: an analysis of linked

census and death registration data

Iain Atherton

Edinburgh Napier University, UK

RE

GIS

TR

AT

ION

Ro

yal W

elsh C

ollege o

f Mu

sic & D

rama F

oy

er

PLENARY KEYNOTE by Leon Feinstein, Office of the Children's Commissioner, UK

Measuring and explaining the

changing nature of work - The

Linked Personnel Panel enriched

with administrative employment

data (LPP-ADIAB)

Stefanie Wolter

Institute for Employment Research

(IAB) of the German Federal

Employment Agency (BA), GERMANY

One-year readmission and

Emergency department

presentation after an epilepsy

admission in people with

intellectual disability:

a registry-linkage study

Peiwen Liao

University of New South Wales,

AUSTRALIA

The potential of linking cohort

participants to official criminal

records: a pilot study using the

Avon Longitudinal Study of Parents

and Children (ALSPAC)

Alison Teyhan

Bristol University, UK

Challenges and Principles to guide

the linkage of government

administrative data: Experiences

from the Tassie Kids project

Joe Stafford

Telethonkids, AUSTRALIA

Evaluating ATC-ICD: Assessing the

relationship between selected

medication and diseases with

machine learning

Nadine Weibrecht

Vienna University of Technology,

AUSTRIA

PA

RA

LL

EL

S

RE

GIS

TR

AT

ION

Ro

yal W

elsh C

ollege o

f Mu

sic & D

rama F

oy

er

Evaluation of the Troubled Families

Programme

Lan-Ho Man & Ralph Halliday

Ministry of Housing, Communities and

Local Government, UK

The association between mother’s

alcohol consumption during

pregnancy and their child’s

educational attainment and risk of

hospital admission by age 14

Amrita Bandyopadhyay

Swansea University, UK

Circular migration

Samaa Elsandabesee

Office of National Statistics, UK

Protecting children during child

protection research using

administrative data

Jade Hooper

University of Stirling, UK

Using record linkage to test

representativeness of an ageing

cohort

Frances Burns

Queen University Belfast, UK

Administrative Data Censuses in US

States

Amy O'Hara

Georgetown University, USA

PANEL DISCUSSION Chair by Professor David Ford, Swansea University, UK

BREAK, Afternoon Tea & Coffee, Linbury Gallery (Ground Floor)

Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor)

Not in Employment, Education or

Training (NEET); more than a youth

policy issue

Francis Mitrou

Telethonkids, AUSTRALIA

The Office for National Statistics

Longitudinal Study

Alison Sizer

University College London, UK

Association between receipt of

social care and multimorbidity:

evidence from a population-sized

cohort in Scotland

David Henderson

Edinburgh Napier University, UK

Evaluating needs-based home

visiting support: Can administrative

data help?

Nell Warner

Cardiff University, UK

Fuel Poverty Data Linking Project

Sarah Lowe & Sian Morrison-Rees

Welsh Government & Swansea

University, UK

Page 2: 4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe

08:30-09:00

09:00-09:30

09:30-09:45

09:45-10:00

10:00-10:30

10:30-11:00

11:00-11:15

11:15-11:45

Themes APPLIED RESEARCH

Rooms Studio Two

(1st Floor)

11:45-12:05

IMPACT WORKSHOP by

Administrative Data

Research UK

11:45 - 12:45

12:10-12:30

12:35-12:55

13:00-14:00

Themes ETHICAL CONCEPTS APPLIED RESEARCH

RoomsRowe-Beddoe

(2nd Floor)

Rowe-Beddoe

(2nd Floor)

Studio Two

(1st Floor)

14:00-14:05 People with cancer living in

deprived areas of Wales are

more likely to have another

serious condition at diagnosis

than those in the least deprived

areas

Dyfed Wyn Huws

NHS Wales, UK

14:06-14:11

Childhood cognitive ability and

the use of long-term care in

later life

Matthew Iveson

University of Edinburgh, UK

14:12-14:17

Administrative Data as a Novel

Source of Information on Postal

Drug Delivery in Scotland: A

Spatial Analysis of Illegal

Consignment Seizure Data

Ben Matthews

University of Edinburgh, UK

14:18-14:23

Examining the link between

family health events and pupil

performance in Wales

Samuel Brown

Swansea University, UK

14:24-14:29

Common Mental Disorder

across Standard Occupational

Classifications in Northern

Ireland: an administrative data

study

Finola Ferry

Ulster University, UK

14:30-14:35

Predicting neighbourhood-level

psychiatric admission rates

using multi-level regression

with post-stratification-derived

estimates of ecological cognitive

social capital

Chris Saville

Bangor University, UK

14:36-14:41

Healthcare resource utilisation

for critical care survivors in

Wales: a population-based data

linkage study

Rowena Bailey

Swansea University, UK

14:42-14:47

Developing and evaluating

national severity distributions

for use in Burden of Disease

studies: a case study of cancers

in Scotland

Grant Wyper

NHS Scotland, UK

14:48-14:53

Selective serotonin reuptake

inhibitors use in pregnancy: a

risk assessment study using

administrative pharmaceutical

data

Shaun Purkiss

La Trobe University, AUSTRALIA

15:00-15:30

Themes APPLIED RESEARCH

Rooms Studio Two

(1st Floor)

15:30-15:50

Data linkage for public health

research – the Fforestfach tyre

fire

Lloyd Evans

NHS Wales, UK

15:50-16:10

Ambient Air Pollution and

Health in Northern Ireland

Neil Rowland

Queen University Belfast, UK

16:10-16:30

Do carers care for themselves? A

population-based study

Foteini Tseliou

Cardiff University, UK

16:30-16:40

Themes APPLIED RESEARCH

Rooms Studio Two

(1st Floor)

16:40-17:00

A tale of multiple data sources:

pathways and outcomes for

infants who become looked

after in Scotland

Linda Cusworth

Lancaster University, UK

17:00-17:20

Maternal adversity and

variation in the rate of children

entering local authority care

during infancy in England: a

longitudinal ecological study

Rachel Pearson

University College London, UK

17:20-17:40

Exploratory Research on the

Health and Social Outcomes of

Public Housing

Mark Smith

University of Manitoba. CANADA

17:40-18:00

Understanding recurrent care

proceedings: Competing risks of

how mothers and fathers enter

subsequent care proceedings in

England

Stuart Bedston

Lancaster University, UK

19:00-20:30

The Office for National Statistics

Administrative Data Research

Programme

Claire Shenton & Lucy Tinkler

Office of National Statistics, UK

Social services Interventions

and the Mental Health and

Mortality of care leavers: a

population based data linkage

study in Northern Ireland and

Finland

Aideen Maguire

Queen University Belfast, UK

Spatially Enabling The Master

Linkage Map – Getting Straight

To The Point

Brian Stokes

University of Tasmania,

AUSTRALIA

Linked Administrative Data at

Statistics Canada – new data

resources for horizontal

research

Li Xue

Government of Canada, CANADA

Unleashing The Power of Your

Master Linkage Map – Is There A

Role For Business Intelligence

Tools In Supporting Data

Linkage

Brian Stokes

University of Tasmania,

AUSTRALIA

An Administrative Data

Maturity Model - Building

national administrative data

capacity to produce results for

children

Karen Carter

United Nations International

Children's Emergency Fund

(UNICEF), USA

Supporting People Data Linking

Project

Sara Lowe

Welsh Government, UK

Area Deprivation, Urbanicity

and Severe Mental Illness – A

Population-Based Linkage

Study Using Routinely Collected

Primary and Secondary Care

Data

Sze Chim Lee

Swansea University, UK

The Differential Privacy Corner:

What has the US Backed Itself

Into?

Amy O'Hara

Georgetown University, USA

High-dimensional propensity

score adjustment in HIV

research using linked

administrative health data

Taylor McLinden

University of British Columbia,

CANADA

Hidden Harms of Hypnotics: a

population based record

linkage study of psychotropic

medication and suicide risk

Ifeoma Onyeka

Queen University Belfast, UK

The Welsh Government Flying

Start Data Linking Project

Tony Whiffen & Laura Herbert

Swansea University, UK

Educational outcomes of

children in Wales with cerebral

palsy

Hywel Jones

Cardiff University, UK

Utilisation of Personal Care

Services in Scotland: the

Influence of Unpaid Carers

Elizabeth Lemmon

University of Edinburgh, UK

Gender and STEM Subject

Choice

Anne Gasteen

University of Stirling, UK

The Unmet Need for

Psychotropic Medication within

the Migrant Population of

Northern Ireland - A Record

Linkage Study

Kishan Patel

Queen University Belfast, UK

The Nuffield Family Justice

Observatory Data Partnership

Lucy Griffiths & Rhodri Johnson

Swansea University, UK

Education and health outcomes

of children treated for chronic

conditions

Michael Fleming

Glasgow University, UK

Self-harm presentation across

healthcare settings by sex in

young people

Amanda Marchant

Swansea University, UK

Born into Care: characterising

newborn babies and infants in

care proceedings in England and

Wales

Bachar Alrouh

Lancaster University, UK

Improving Data Linkage in

Government Statistics: The

National Statistician’s Quality

Review 2019

Louise Palmer

Office of National Statistics, UK

The use of Administrative Data

to combat non-response

Matthew Moore

University of Stirling, UK

Seligman

(1st Floor)

The looked-after children in

time: Creating and analysing

longitudinal data on placement

history and educational

outcomes

Gillian Raab

University of Edinburgh, UK

A data driven approach to

transforming population and

migration statistics

Adriana Castaldo

Office of National Statistics, UK

The case for integrated

transport and health

surveillance in Wales

Sarah Jones

NHS Wales, UK

Variations in the use and

availability of formal and

informal care at the end of life

over time and space

Anna Schneider

Edinburgh Napier University, UK

Depression and changes in

educational attainment using

administrative data: The role of

socio-demographic

characteristics

Alice Wickersham

Kings College London, UK

Incidence of drug-treated

chronic diseases using

administrative pharmaceutical

data

Shaun Purkiss

La Trobe University, AUSTRALIA

The New Brunswick COPD

Health Information Platform

Ted McDonald

University of New Brunswick,

CANADA

Evaluating the impact of

interventions on the future

Burden of Disease in Scotland

Grant Wyper

NHS Scotland, UK

National Therapeutic Indicators

in Scotland and Financial

Incentives

Seán Macbride-Stewart

NHS Scotland, UK

Estimates of age-specific death

rates and mortality risk using

administrative pharmaceutical

data

Shaun Purkiss

La Trobe University, AUSTRALIA

Exploiting Administrative Data

to Understand the Mental

Health of Children Known to

Services

Sarah McKenna

Queen University Belfast, UK

Measuring the Dynamic Risk of

Further Offending: A Feasibility

Study

Helen Hodges

Cardiff University, UK

The impacts of pre-

apprenticeship training for

young people

Richard Dorsett

University of Westminister, UK

The Influence of Non-Clinical

Patient Factors on Clinical

Decision Making: Uncovering the

Impact on Mental Health

Lauren Burns

Swansea University, UK

Allocating Unique Property

Reference Numbers (UPRNs) to

general practitioner-recorded

patient addresses using a

deterministic address-matching

algorithm: evaluation of

representativeness and bias in

an ethnically-diverse inner city

population

Gill Harper

Queen Mary University London, UK

iCoverT: A rich data source on

the incidence of child

maltreatment over time in

England and Wales

Michelle Degli Esposti

Oxford University, UK

Linking Pathology Datasets –

Trials and Triumphs

Brian Stokes

University of Tasmania, Australia

Using administrative data to

understand the service

interactions of people

experiencing homelessness

Hannah Browne Gott

Cardiff University, UK

The Impact of School Exclusion

on Educational Achievement:

Evidence from English

Administrative Data

Duncan McVicar

Queen University Belfast, UK

Social media engagement and

health

Alisha Davies

Public Health Wales, UK

Does physical ill-health increase

the risk of suicide? A Census-

based follow-up study of over 1

million people

Ifeoma Onyeka

Queen University Belfast, UK

Assessing the health impacts of

adults’ participation in sports:

investigating the role of

accessibility to sport facilities

Theodora Pouliou

Swansea University, UK

Measuring the burden of mental

illness and substance use and

the level and impact of health

care response in patients with

spinal trauma: a record linkage

study

Lisa Sharwood

Sydney University, AUSTRALIA

Scottish Burden of Disease

(SBOD) study: developments

and findings of local estimates

Grant Wyper

NHS Scotland, UK

Dame Shirley Bassey

(2nd Floor)

How do numbers of births in

England and Wales vary by time

of day, day of the week and

place of birth? An analysis using

linked administrative data

Alison Macfarlane

City, University of London, UK

The safety of Waterbirth in the

UK: a feasibility study of routine

data linkage – The POOL Study

Fiona Lugg

Cardiff University, UK

Is there equity of access to

revascularisation in Wales by

socioeconomic deprivation?

Lloyd Evans

NHS Wales, UK

Rowe-Beddoe

(2nd Floor)

U.S. Decennial Census

Digitization and Linkage

Project

Trent Alexander

University of Michigan, USA

Linking two administrative

datasets about looked after

children: testing feasibility and

enhancing understanding

Jade Hooper

University of Stirling, UK

Enough with the tables, we need

ideas

Antony Stevens

Brazil Ministry of Health, BRAZIL

Does the risk of poor mental

health rise before widowhood

Zhiqiang Feng

University of Edinburgh, UK

LUNCH

Linbury Gallery (Ground Floor)

EVIDENCE TO SUPPORT

POLICY MAKING

METHODOLOGICAL &

ANALYTICAL ADVANCES

CASE STUDIES & CONCEPTS

Dora Stoutzker Hall

(Ground Floor)

Seligman

(1st Floor)

Simon Gibson

(2nd Floor)

Dame Shirley Bassey

(2nd Floor)

Health conditions, disability

and economic inactivity in

Northern Ireland. An

administrative data study

Ana Corina Miller

Queen University Belfast, UK

Admin vs. questionnaire data:

Can we replace ‘highest

qualification’ questions with

admin data?

Stephan Tietz

Office of National Statistics, UK

Co-producing a typology for

Green and Blue spaces for a

longitudinal, national dataset of

Green and Blue spaces

Amy Mizen

Swansea University, UK

What happens after self-harm?

An exploration of self-harm and

suicide using the Northern

Ireland Registry of Self-Harm

Emma Ross

Queen University Belfast, UK

Alberta's Data and Analytic

Strategy: Leveraging Linked

Data to Drive Innovation

Larry Svenson

University of Alberta, CANADA

EVIDENCE TO SUPPORT

POLICY MAKING

Poor mental health and uptake

of disability benefits

Dermot Oreilly

Queen University Belfast, UK

CASE STUDIES & CONCEPTS

What happens without

population data? - The case of

Ukraine

Dorottya Molnár-Kovács

University of Debrecen,

HUNGARY

Developing a new cohort of

children born to women who

used opioids in pregnancy using

administrative data: insights

into cohort creation and early

results

Louise Marryat

University of Edinburgh, UK

A public health approach to

reducing violence: Can data

linkage help to reduce demand

on blue light services?

Susan McVie

University of Edinburgh, UK

Automatic coding of occupation

and cause-of-death records

Richard Tobin

University of Edinburgh, UK

Unlocking the potential of health

systems using privacy preserving

record linkage: A pilot project

exploring the research potential

of developing a linkable general

practice dataset

James Boyd

La Trobe University, AUSTRALIA

Household Matching for the

2021 Census

Josie Plachta and Charlie Tomlin

Office of National Statistics, UK

CASE STUDIES & CONCEPTSAPPLIED RESEARCH METHODOLOGICAL &

ANALYTICAL ADVANCES

EVIDENCE TO SUPPORT

POLICY MAKINGDora Stoutzker Hall

(Ground Floor)

Simon Gibson

(2nd Floor)

Seligman

(1st Floor)

4th International Conference on Administrative Data Research

Royal Welsh College of Music & Drama, Cardiff

DAY 2 TUESDAY 10 DECEMBER

REGISTRATION

Royal Welsh College of Music & Drama Foyer

CONFERENCE OPENING REMARKS by Prof David Ford, Swansea University, UK

CONFERENCE OPENING KEYNOTE by Rebecca Evans AM, Minister for Finance and Trefnydd, Welsh Government, Wales, UK

PLENARY KEYNOTE by John Pullinger, Former Head, Government Statistical Service (GSS) and Chief Executive, UK Statistics Authority, UK

PLENARY KEYNOTE by Betsy Stanko, Ministry of Justice's Data, Evidence and Science Board, UK

PL

EN

AR

Y

Do

ra Stou

tzker H

all

PANEL DISCUSSION Chair by Professor David Ford, Swansea University, UK

BREAK, Mid Morning Tea & Coffee

Linbury Gallery (Ground Floor)

CONFERENCE DINNER AT CARDIFF CASTLE

City Centre, Cardiff (8 mins walk from Royal Welsh College of Music & Drama)

PA

RA

LL

EL

S

BREAK, Afternoon Tea & Coffee

Linbury Gallery (Ground Floor)

EVIDENCE TO SUPPORT

POLICY MAKINGAPPLIED RESEARCH METHODOLOGICAL &

ANALYTICAL ADVANCES

CASE STUDIES & CONCEPTS CASE STUDIES & CONCEPTS

BREAK

Dora Stoutzker Hall

(Ground Floor)

Seligman

(1st Floor)

Simon Gibson

(2nd Floor)

Dame Shirley Bassey

(2nd Floor)

Rowe-Beddoe

(2nd Floor)

Careers guidance provisions

and progression to post-16

education: An empirical

analysis for Wales

Katy Huxley

Cardiff University, UK

The Hazards and Rewards of

Screening Using a Population

Register: The Case of HAGIS

David Bell

University of Stirling, UK

Rowe-Beddoe

(2nd Floor)

EVIDENCE TO SUPPORT

POLICY MAKING

Careers Guidance and

Transitions to Further

Education in Wales

Katy Huxley

Cardiff University, UK

Geographical factors in access:

investigating the impact of

distance on the use of primary

care extended hours, an

administrative data study

Jen Murphy

University of Manchester, UK

Linkage of Primary Care

Prescribing Records and

Pharmacy Dispensing Records in

Asthma Controller Medications

Holly Tibble

University of Edinburgh, UK

Early-life cognitive ability and

recovery from stroke

Drew Altschul

University of Edinburgh, UK

Suicide following presentation

to emergency departments with

suicidal ideation: a population-

wide study

Emma Ross

Queen University Belfast, UK

Using Linked Administrative

Data to Measure Earnings

Mobility of Public Assistance

Recipients during the Great

Recession

Sally Wallace

Georgia State University, USA

Estimates of mortality rates in

people with diabetes and

cardiovascular disease using

administrative pharmaceutical

data

Shaun Purkiss

La Trobe University, AUSTRALIA

Combining Hungarian

Administrative Data with

Google Search Trends to Predict

Tendencies in Local Public

Health and Consumer

Behaviour

Dorottya Molnár-Kovács

University of Debrecen, HUNGARY

Building a birth cohort of births

and their outcome in England

and Wales using linkage of

administrative data

Alison Macfarlane

City, University of London, UK

APPLIED RESEARCH METHODOLOGICAL &

ANALYTICAL ADVANCES

CASE STUDIES & CONCEPTS CASE STUDIES & CONCEPTS

Integrated Data Systems in the

US: a National Survey of State

and Local Governments and

their University Partners

Adelia Jenkins

University of Pennsylvania, USA

Harnessing administrative data

for humanitarian responses

Karen Carter

United Nations International

Children's Emergency Fund

(UNICEF), USA

Increasing the understanding of

patterns of behaviours for

alcohol in Wales using R

Rhian Hughes

NHS Wales, UK

Risk factors for young people

not in education, employment

or training (NEET) using the

Scottish Longitudinal Study

Dawn Everington

University of Edinburgh, UK

Dame Shirley Bassey

(2nd Floor)

Dora Stoutzker Hall

(Ground Floor)

Simon Gibson

(2nd Floor)

The Impact of Gender and Socio-

economic Background on

Attainment in Scottish State

Secondary Schools

Anne Gasteen

University of Stirling, UK

LINKAGE: Factors in selecting a

data linkage approach

Kerina Jones

Swansea University, UK

Regulating Statistics in the Age

of Data Abundance

Catherine Bromley

UK Statistics Authority, UK

Generation Scotland - Using

Electronic Health Records for

Research

Archie Campbell

University of Edinburgh, UK

The relationship between

loneliness, social isolation and

health service usage in an older

population: an example of

administrative data linkage

using Healthy Ageing In

Scotland (HAGIS) and NHS

records

Elaine Douglas

University of Stirling, UK

One Size Doesn’t Fit All:

Administrative Data Quality

Frameworks for Production of

Official Statistics

Sara Correia

Office of National Statistics, UK

Using GIS to explore the impact

of teenager’s environments on

this physical activity, fitness

and motivation: a cross-

sectional study using data from

the ACTIVE Randomised

Control Trial

Michaela James

Swansea University, UK

Which way is up? The different pathways to

impact in devolved UK regions

This wokshop is open to all delegates

Page 3: 4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe

08:30-09:45

Themes METHODOLOGICAL &

ANALYTICAL ADVANCES

Rooms Studio Two

(1st Floor)

09:45-10:05

Donor-based imputation

methods for admin data: How to

replace the number of rooms

question on the Census

Stephan Tietz

Office of National Statistics, UK

10:05-10:25

An instrumental variable

approach to estimation of match

probabilities or precision in

linked data

James Doidge

Intensive Care National Audit and

Research Centre, UK

10:25-10:45

Exploratory versus experimental

design: overcoming the

prejudice of ‘data dredging’

Sarahjane Jones

Birmingham City University /

Health Foundation, UK

10:45-11:15

Themes POLICY

MAKING

METHODS CONCEPTS ETHICAL

Rooms Rowe-Beddoe

(2nd Floor)

Rowe-Beddoe

(2nd Floor)

11:15-11:35

11:35-11:55

12:00-12:30

12:30-12:45

12:45-13:00

13:00

CONFERENCE CLOSING REMARKS by Prof David Ford, Swansea University, UK

CASE STUDIES & CONCEPTS

Evaluating record linkage of

birth registration and

notification records to Hospital

Episode Statistics: Singleton

births in 2005 and 2006 across

England

Victoria Coathup

Oxford University, UK

Better data, better knowledge,

better society: Developing an

ideal homelessness data system

drawing on lessons from global

practice

Ian Thomas

Cardiff University, UK

Developing a training

curriculum for researchers

working with routine data:

understanding professional and

lay stakeholder priorities - The

CENTRIC Study

Fiona Lugg

Cardiff University, UK

Piloting a Safe Health

Researcher course

Louise Corti

University of Essex, UK

Data resource description:

Systemic Anti-Cancer Therapy

(SACT) Dataset

Chloe Bright

Public Health England, UK

The Emerging Crisis of Aged

Homelessness in the US: Could

Cost Avoidance in Health Care

Fund Housing Solutions?

Dennis Culhane

University of Pennsylvania, USA

Data resource description:

National Cancer Registration

Dataset in England

Katherine Henson

Public Health England, UK

BREAK, Mid Morning Tea & Coffee

Linbury Gallery (Ground Floor)

BEST PAPER AWARD for Evidence To Support Policy Making to be presented by Dr Emma Gordon, ADR UK

(BEST PAPER AWARD is sponsored by Economic and Social Research Council's ADR UK, part of UK Research and Innovation)

END OF CONFERENCE & LUNCH-TO-GO

Linbury Gallery (Ground Floor)

Using linked English cancer

registration data to assess

variation in diagnostic pathway

length

Clare Pearson

Cancer Research UK, UK

Overcoming the

misrepresentation of disease

burden associated with single

aggregation choropleth maps

through combining information

from many aggregations

David Whyatt

University of Western Australia,

AUSTRALIA

PA

RA

LL

EL

S

PL

EN

AR

Y

Do

ra Stou

tzker

Hall

Strategies for centering equity

and public engagement in the

ethical use of integrated

administrative data

Adelia Jenkins

University of Pennsylvania, USA

METHODOLOGICAL &

ANALYTICAL ADVANCES

EVIDENCE TO SUPPORT

POLICY MAKING

PLENARY KEYNOTE by Stefaan Verhulst, GovLab, New York University, USA

Dora Stoutzker Hall

(Ground Floor)

Seligman

(1st Floor)

Seligman

(1st Floor)

Dame Shirley Bassey

(2nd Floor)

The prevention priority: linking

education and homelessness

data to inform policy and

practice

Peter Mackie

Cardiff University, UK

Repeatable Research

Infrastructure Enabling

Administrative Data Analysis

Dan Thayer

Swansea University, UK

An outline framework for the

efficient onward-sharing of

linked Longitudinal Population

Study and NHS Digital records

Andy Boyd

Bristol University, UK

Homelessness and health needs

in Wales

Jiao Song

Public Health Wales, UK

GRAPHITE: Geographic

Information UK Secure E-

Research Platform

Richard Fry

Swansea University, UK

METHODOLOGICAL &

ANALYTICAL ADVANCES

Identifying Military Veterans in

a Clinical Research Database

using Natural Language

Processing

Daniel Leightley

King's College London Centre for

Military Health Research, UK

ATC-ICD: enabling domain

experts to explore and evaluate

machine learning models

estimating diagnoses from filled

predictions

Florian Endel

Vienna University of Technology,

AUSTRIA

Defining Acute Kidney Injury

Episodes

Gareth Davies

Swansea University, UK

4th International Conference on Administrative Data Research

Royal Welsh College of Music & Drama, Cardiff

DAY 3 WEDNESDAY 11 DECEMBER

REGISTRATION

Royal Welsh College of Music & Drama Foyer

Dora Stoutzker Hall

(Ground Floor)

CASE STUDIES & CONCEPTS

Screening drugs for bone

fracture risk : a nation-wide

longitudinal study using the

national SNDS claims database

Emmanuel Bacry

University Paris-Dauphine,

FRANCE

InFORM: Improving care for

people who Frequently call 999:

co-production of guidance

through an Observational study

using Routine linked data and

Mixed methods

Ashra Khanom

Swansea University, UK

ETHICAL, LEGAL &

SOCIAL IMPLICATIONS

Dame Shirley Bassey

(2nd Floor)

Rowe-Beddoe

(2nd Floor)

Page 4: 4th International Conference on Administrative Data ... · Dora Stoutzker Hall (Ground Floor) Seligman (1st Floor) Simon Gibson (2nd Floor) Dame Shirley Bassey (2nd Floor) Rowe-Beddoe

WEDNESDAY 11 DECEMBER

08:30-09:00 30min

09:00-09:30 30min

09:30-09:45 15min

09:45-10:00 15min

10:00-10:30 30min

10:30-10:45 15min

10:45-11:15 30minBREAK, Mid Morning Tea & Coffee

Linbury Gallery (Ground Floor)

11:15-11:30 15min

11:30-11:45 15min

11:45-12:00 15min

12:00-12:30 30min

12:30-13:00 30min

13:00-13:30 30min

13:30-14:00 30min

14:00-14:30 30min

14:30-15:00 30min

15:00-15:30 30min

15:30-16:00 30min

16:00-16:15 15min

16:15-16:30 15min

16:30-16:40 10min

16:40-17:00 10min

17:00-17:15 15min

17:15-17:30 15min

17:30-18:00 30min

18:00-18:30 30min

18:30-19:00 30min

19:00-19:30 30min

19:30-20:00 30min

20:00-20:30 30min

REGISTRATION (Foyer / Ground Floor)

PRE-CONFERENCE WORKSHOP

Making Data Research Ready by Administrative Data Research UK

Room 2.05 (2nd Floor)

BREAK, Mid Morning Tea & Coffee Linbury Gallery (1st Floor) PARALLEL SESSIONS

PARALLEL SESSIONS

END OF CONFERENCE & LUNCH-TO-GO

REGISTRATION

(Foyer / Ground Floor)

BREAK, Mid Morning Tea & Coffee

Linbury Gallery (Ground Floor)

IMPACT WORKSHOP by

Administrative Data Research UK

LUNCH

Linbury Gallery (Ground Floor)

RAPID FIRE SESSIONS

REGISTRATION

(Foyer / Ground Floor)

PLENARY KEYNOTES

Dora Stoutzker Hall (Ground & 1st Floors)

CONFERENCE DINNER AT CARDIFF CASTLE

City Centre, Cardiff

(8 mins walk from Royal Welsh College of Music & Drama)

PLENARY KEYNOTES

Dora Stoutzker Hall (Ground & 1st Floors)

PARALLEL SESSIONS

BREAK, Afternoon Tea & Coffee

Lindbury Gallery (Ground Floor)

PARALLEL SESSIONS

BREAK

PARALLEL SESSIONS

MONDAY 09 DECEMBER

4th International Conference on Administrative Data Research 2019

Royal Welsh College of Music & Drama, Cardiff, Wales, UK

TUESDAY10 DECEMBER

Public Data for Public Good

PARALLEL SESSIONS

BREAK

PRE-CONFERENCE WORKSHOP

CONTINUED

Room 2.05 (2nd Floor)

PRE-CONFERENCE WORKSHOP

CONTINUED

Room 2.05 (2nd Floor)

BREAK, Afternoon Tea & Coffee, Lindbury Gallery (Ground Floor)

PARALLEL SESSIONS

BREAK

PARALLEL SESSIONS

WELCOME DRINKS & CANAPÉS RECEPTION is open to all delegates

(Foyer / Ground Floor)

LUNCH

Linbury Gallery (Ground Floor)

LUNCH

Linbury Gallery (Ground Floor)

PLENARY KEYNOTES

Dora Stoutzker Hall (Ground & 1st Floors)