41106459/VB Listening to People with Dementia Avril Easton The Alzheimer Society of Ireland June...
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Transcript of 41106459/VB Listening to People with Dementia Avril Easton The Alzheimer Society of Ireland June...
41106459/VB
Listening to People with Dementia
Avril EastonThe Alzheimer Society of Ireland
June 2013
Background to the Project
• As an organisation we are committed to hearing the voice of people living with dementia.
• Always trying to identify opportunities to promote the direct involvement of people with dementia in our work
• Grasped the opportunity to work with DFI and their Listening and Changing programme
Working Group Composition
• Facilitator• Person with dementia• Carer• ASI coordinator of project• DFI Support Officer• ASI Head of Services• Key members of staff from across the
organisation but mainly from our services• Branch chair (also a volunteer)
What we did
• Established working group • Decision taken by the working group to
focus on people with early stage dementia whom we have never had direct contact with before
• Hosted a listening exercise in December to gather information from people in order to improve how we meet their needs and deliver our services going forward
17th December 2012
What we heard
1. Diagnosis 2. Information and Services3. Living Well with Dementia
Outcomes• The findings demonstrate that when
people with dementia are facilitated to be involved in a meaningful way, they have many thoughts and views on issues that they wish to contribute.
• Identified new key advocates for us as an organisation
• Established first Irish Working Group of People with Dementia
Learning from the Project
Key Factors1. Facilitator2. Involvement of person
with dementia3. Enthusiasm of the
working group4. Focusing on new
people that we had not encountered before
Challenges
1. No Board Member
2. Coordination of project
3. Communicating the work across the organisation
Thank You!
For more information:[email protected]
www.alzheimer.ie [email protected]
National Free Helpline:1800 341 341