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#NOH18 @MikeAmeryDC @DerekBrandtDC @AANMember ©2018 American Academy of Neurology Support Drug Pricing Transparency

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Support Drug Pricing Transparency

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New Issue Training Format• Issue background• Ask• Q&A with panel• Demonstration of ask• Practice on your own in small groups•Wrap up

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Drug Pricing Landscape

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Neurology Stake in Drug Pricing

Rare Diseases

Medicines in Development

Physician Population2%

11%

18%

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Prices On the Rise• $325 billion spent on prescription drugs in 2015$45.5 billion in out-of-pocket expenses for patients

• 50% of Americans use at least one prescription drug

• 25% of Americans report difficulty paying for prescriptions

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US Costs Higher Than Abroad

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Outlook – More Rx Spending• US spends more than any other country in both

total spending and spending per person

• Spending expected to grow to $610 billion by 2021, a 53% increase from 2015

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Drug Pricing Activity in 2017• 1,025 bills in state legislatures

• 19 bills in Congress

• Engagement from federal agencies

• Active pharmaceutical development

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Impact of High Drug Costs

Health System Spending

Physician/ Institution Attribution 

Patient Access/Out of Pocket 

Cost

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Impact on Patients• Nearly 1 in 4 Americans taking prescription drugs

report difficulty affording them• Prescription abandonment• Compliance difficulty, including rationing • Patients share of costs has increased Particularly disproportionate impact for those taking specialty drugs

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Impact on Physicians/Institutions• High cost drugs = high institutional risk• The cost of drugs prescribed is attributed to the

prescriberNarrow networksMIPS adjustments–2018: Cost is 10% of total score–2019+: Cost could be up to 30% of total score

• Unfavorable for risk-bearing APMs • Prior authorization/office burden

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FAIR Drug Pricing Act (S.1131/H.R.2439)• Requires drug manufacturers to report price

increases 30 days in advance when drugs that cost $100 or more increase in price by more than 10% in 1 year or 25% over 3 years

• Requires justification for price increases and reporting on research, marketing, spending, etc.

• Does not prohibit price increases; simply adds requirement for notification and justification

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The Ask

Cosponsor the Fair Accountability and Innovative Research (FAIR) Drug

Pricing Act (S.1131/H.R.2439) and support drug pricing transparency

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Related Bills• Transparent Drug Pricing Act (H.R.4116)• Prescription Drug Price Transparency Act (H.R.1316)• Improving Access to Affordable Prescription Drugs

Act (S.771/H.R.1776)• Stopping the Pharmaceutical Industry from Keeping

Drugs Expensive (SPIKE) Act (S.1348)

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Frequently Asked Questions•Who would enforce this legislation?US Department of Health and Human Services

•Who else supports this legislation?National MS Society, AARP, Campaign for Sustainable Drug Pricing, Kaiser Permanente, Marshfield Clinic

• Are these requirements realistic?Many manufacturers have already limited year-over-year price increases to 10% or less from 2017-2018

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Questions?

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Example Ask

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Practice the Ask in Your Small Groups

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Develop Your Pitch• Share your storyTalk about how high drug prices impact one of your patients

• Practice your story linking to the ask• Tell your story + “…that’s why we’re here today

asking for your support. We’d like you to cosponsor legislation, S.1131/H.R.2439, to support much needed drug pricing transparency.”

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Final Thoughts