2020 ANNUAL VIRTUAL CONFERENCE

PROGRAM

The Parkinson Associationof Northern California

would like tothank our sponsor

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A SPECIAL VIRTUAL & SAFE WELCOME TO ALL!

Today’s 2020 Annual Virtual Conference is historic. The Parkinson Association of Northern California (PANC) is honored that you have invested time, resources and energy to be with us together…virtually.

As we all know from experience, life can throw unexpected challenges and disruptive events at us that need to be managed with all the ingenuity and compassion we can muster. The Board, 20 sponsors and 35 exhibitors who join us today wish we were

enjoying an in-person event with warm hugs, high-fives and lots of laughter.

Instead, the 2020 PANC Annual Virtual Conference will be remembered as another example of the PANC community pulling together for the journey and showing the grit and determination of People with Parkinson’s (PwP), caregivers, medical and health professionals, and support organizations. Venturing into this new virtual environment has not been easy, but we have grown, learned and advanced, and I think you can take a virtual bow for the many accomplishments during this season.

This year, PANC is thrilled to introduce you to Dr. Soania Mathur -- passionate advocate, author, and recipient of the World Parkinson Congress Distinguished Contribution Award. Dr. Mathur is accompanied by an amazing roster of leading Parkinson’s medical professionals who will share their experience, perspectives and counsel with you.

Please take the time to explore our exhibit hall, which features the services of the sponsors and exhibitors. Their services and products can help improve life; and without them, this PANC Annual Virtual Conference would not be possible.

Enjoy! Learn all you can! Get some answers! Take away some new resources…and remember, throughout the year, that PANC is here for you – in person, virtually, and of course, in spirit!

Sean TracySean Tracy, President, Parkinson Association of Northern California and the PANC Board of Directors

BOARD OF DIRECTORSPresident

Sean Tracy, California Department of State Hospitals

Vice President Christine Shade,

Kaiser Permanente, PT, DPT, NCSSecretary

Myron Jantzen, Educator (retired)

Treasurer Eric Egli, PhD,

Clinical Psychologist

Chris Chediak, JD, Weintraub Tobin

Christine Grmoyles, Senior Care Solutions

Eric Jones, Medical Student, CA Northstate University

Suketu Khandhar, MD, Medical Director, Kaiser Permanente

Marcie Larkey, Fund Development Professional (retired)

Carolyn Loveridge, CA Dept. of Education (retired)

Frederick Lowe, MD, Kaiser Permanente, Vallejo (retired)

Paul McCarthy, Personal Fitness Trainer/

ParkinsonWISE®Cody O’Keefe,

WGG Wealth Partners

MEDICAL ADVISERSKaiser Neuroscience Suketu Khandhar, MD

Conrad Pappas, MD, PhD Meghan Anderson, NP

Christine Shade, PT, DPT, NCS Erin Vestal, PT, DPT, NCS

Dignity Health Ehsan Hadi, MD

Sutter Medical Group Erica Byrd, MD

Nicklesh Thakur, DO Fred Weiland, MD, FACNM

Linda Ramatowski, NPUC Davis

Norika Malhado-Chang, MD Lin Zhang, MD

Laura Sperry, FNP

2Parkinson Association of Northern California

We are About the People…With the assistance of volunteers and multiple community partners, PANC is “Building Community for the Journey.”

Our Mission…The Parkinson Association of Northern California is dedicated to enhancing the lives of people with Parkinson’s, their families, and care partners.

Medical Advisory Panel… A unique model that brings together multidisciplinary medical professionals from UC Davis, Dignity Health/Mercy, Sutter Health and Kaiser Permanente to provide guidance to the organization on medically related position statements; speak at PANC events and/or recommend speakers or topics for educational programs; submit articles for the PANC newsletter; attend PANC educational and fundraising events; and communicate the mission and programs of the organization in the community.

Education and Information…The annual educational conference brings together leading experts in neurology, movement disorders, physical and complementary therapies and others, to keep the Parkinson’s community informed! “The Parkinson Path” quarterly newsletter links readers to support, education and events.

Support Groups…Throughout Northern California, 36 support groups meet regularly to support each other on the journey of Parkinson’s disease. Speakers share insight on treatment, exercise, research, and keeping a positive attitude.

Care Partner Support/Respite…Parkinson’s affects the entire family. The uncertainty, the responsibility and demand can be exhausting. Self-care of care partners is essential. PANC offers care partner support groups and respite care grants- so they can take a break!

Home Safety AssistanceGrants for grab bars, railings and built in safety equipment is funded in cooperation with local non-profits.

ParkinsonWISE® training classes teach non-medical fitness trainers and care partners how to work with persons with Parkinson’s.

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8:30am Welcome and Announcements

8:40am Morning Coffee Q&A Suketu Khandhar, MD, Kaiser Permanente Neurology

9:25am Sleep in PD Erica Byrd, MD, Sutter Medical Group Neurology

9:55am Keynote Fireside Chat Soania Mathur BSc, MD, CFP Suketu Khandhar, MD, Kaiser Permanente Neurology

10:25am Movement Break Kathy Van Hoof, Dance Instructor, Dance for Parkinson’s Pamela Trokanski Dance Theatre

10:40am Future of NeuroModulation Jill Ostrem, MD, UC San Francisco

11:10am Expert Panel Discussion Moderator Norika Malhado-Chang, MD, UC Davis School of Medicine Physical Therapist Sarah Pinasco, PT, Kaiser Permanente Care Partner Carolyn Loveridge, MA Movement Disorders Specialist Joshua Dayananthan, MD, UC Davis Health Geriatric Psychiatrist Beverly Chang, MD, Private Practice Registered Dietitian Erin Lavin, RD, CNSC, UC Davis Health Social Worker Erin Kight, LCSW, Sutter Health Speech Therapist Marty Mooney-Conkle, MS, CCC-SLP, Mercy Medical Group/Dignity Health

11:55am Movement Break Paul McCarthy, Parkinson Certified Personal Trainer

12:10pm Lunch Case Studies Presentation – Motor Fluctuations and Dyskinesia Moderator Norika Malhado-Chang, MD, UC Davis School of Medicine Panelist Ehsan Hadi, MD, Mercy Medical Group/ Dignity Health Laura Sperry, NP, UC Davis Health

12:55pm Closing Remarks

7:30am – 1:30pm Virtual Exhibit Hall

CONFERENCE AGENDA

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KEY NOTE SPEAKER Soania Mathur, MD is a family physician living outside of Toronto, Ontario, Canada. She resigned her clinical practice twelve years after her diagnosis of Young Onset Parkinson’s Disease at age 27. Today she is a dedicated speaker, writer, educator, and Parkinson’s advocate. She was the 2019 recipient of the World Parkinson Congress Distinguished Contribution Award. She speaks passionately about the

challenges of adjusting physically and emotionally to a diagnosis of Parkinson’s disease and the coping strategies available to patients.

Beverly Chang, MD completed Geriatric Psychiatry fellowship training at UC San Diego and opened a private psychiatry practice in Rocklin in 2017. She has a passion for working with older

adults and their families. She maintains an affiliation with UCSF Fresno, providing consultation to their Memory and Alzheimer’s Center. In her spare time, she can be found at the gym where she moonlights as a substitute group exercise fitness instructor.

Erica Byrd, MD is a Movement Disorders Neurologist at Sutter Roseville Medical Center. Dr. Byrd completed a neurology residency (University of Washington) and fellowship in movement disorders

(University of California, San Francisco). Dr. Byrd focuses on treating movement disorders, including Parkinson’s disease.

Joshua Dayananthan, MD is a general neurologist and movement disorders specialist. He is movement disorders fellowship trained, with his residency and fellowship training conducted

at UC Davis Medical Center. His skills include diagnosis and treatment for Parkinson’s disease, tremors, Huntington’s disease, and dystonia. His procedural skills include deep brain stimulation

programming for movement disorders and botulinum toxin injections for dystonia, tremor, and chronic migraine headaches.

Ehsan Hadi, MD is a Movement Disorders Neurologist at Mercy Medical Group/Dignity Health Neurological Institute. Dr. Hadi completed his neurology residency and fellowship in movement

disorders (Loma Linda University Medical Center) where he served as a Clinical Instructor and Chief Resident Neurologist until 2012. He then joined Mercy Medical Group/Dignity Health. His personal care philosophy is to treat people, rather than the disease, and to improve the quality of life. He cares about increasing awareness and education.

Suketu Khandhar, MD is a Movement Disorders Specialist and the Medical Director of the Comprehensive Movement Disorders Program for Northern California, Kaiser Permanente.

He completed a fellowship in Parkinson’s disease and movement disorders (University of California, San Francisco). Dr. Khandhar works with a team of specialists focusing on Parkinson’s disease, essential tremor and dystonia. He has championed multidisciplinary care using an integrated practice model.

SPEAKER BIOGRAPHIES

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Erin Kight, LCSW, is a Licensed Clinical Social Worker practicing in Sutter Medical Foundation’s Neuroscience offices in Roseville and Sacramento. Erin assists patients and families with

connecting to resources, providing support, assisting with caregiver planning, and providing counseling for areas that include many neurological issues such as dementia, movement disorders, stroke and epilepsy. She has a passion for working with individuals and families in the Parkinson’s community.

Erin Lavin, RD, CNSC has been working as a dietitian for seven years and is currently with UC Davis Health as the inpatient Neuroscience Dietitian. She is passionate about community outreach to promote

nutrition management and optimization for those living with chronic neurologic conditions. Erin is committed to advancing the field of neuroscience nutrition and has presented nationwide to a variety of healthcare practitioners and researchers. She recently spoke to dietitians in the East Bay Area, where she relayed the most recent advances in Parkinson’s and nutrition research.

Carolyn Loveridge, MA is an educator, a mom, a grandmother, and 52 years as a life partner to Arnold. The last five were as his full-time care partner. She is now an advocate for libraries,

education, and most of all for a quality life for people as they manage Parkinson’s disease. She is a member of the PANC Board of Directors and serves as the editor of The Parkinson Path.

Norika Malhado- Chang, MD is an Associate Professor of Neurology at the University of California-Davis School of Medicine in Sacramento, California. She

studied neuropsychology at New York University and graduated from Mount Sinai School of Medicine. Dr. Malhado-Chang is in her 13th year on faculty at UC Davis, where she directs the Clinical Clerkship and Sub-Internship in Neurology. Her passion is Parkinson’s disease and teaching learners at all levels (from elementary school through fellowship) and sharing her enthusiasm for neurology, Parkinson’s disease, doctoring, and education.

Paul McCarthy, Parkinson’s disease exercise instructor is a group fitness instructor, a personal trainer, a physical therapy assistant, a Parkinson’s disease exercise instructor, a cancer survivor

exercise instructor, a life coach, and a nutrition consultant. “Every day I am blessed to work with one of my clients. The ability to love and care for others by doing my single-handed part, I hope to assist people in being fit, healthy and well.”

Marty Mooney-Conkle, MS, CCC-SLP has been a Speech Language Pathologist with Dignity Health for 29 years, providing evaluative, diagnostic, and therapeutic services to the hospital and

outpatient-based neurologically impaired population. Currently in an outpatient setting, Marty is LSVT LOUD (Lee Silverman Voice Treatment, LOUD) certified and provides this effective speech treatment to people with Parkinson’s disease and other neurological conditions.

SPEAKER BIOGRAPHIES continued

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Jill Ostrem, MD is the Carlin and Ellen Wiegner Endowed Professor of Neurology and the Division Chief of the Movement Disorders and Neuromodulation Center at UCSF. She has a special interest

in the medical and surgical treatment of movement disorders including Parkinson’s disease, dystonia, and tremor. She earned her medical degree from George Washington University and completed her residency and movement disorders fellowship at UCLA. She joined UCSF in 2003, where she has helped establish an internationally recognized multi-disciplinary clinical, research, and training center for the medical and surgical treatment of movement disorders.

Sarah Pinasco, PT graduated from UC Santa Barbara with a Bachelor of Science in Biopsychology and went on to earn her Doctorate in Physical Therapy from Boston University. She is a Board Certified

Neurological Clinical Specialist. She is invested in the PD community, teaching classes to fitness professionals through our ParkinsonWISE® program, speaking at support groups, writing articles for the Parkinson Path newsletter, teaching group exercise classes, and teaching education classes to people with Parkinson’s.

Laura Sperry, NP has been in clinical practice as an adult nurse practitioner since 2004. In 2012, she joined the UC Davis Deep Brain Stimulation (DBS)

program. Laura assists patients and families throughout the surgical process, conducting the pre-surgical “on” and “off” testing and programming the stimulators after the DBS device is implanted. In addition, she is one of the facilitators for the post-DBS Parkinson’s support group, Staying Healthy with Deep Brain Stimulation.

Kathy Van Hoof, Dance Instructor has been teaching with the Sacramento Dance for Parkinson’s program since 2012. She was a member of the Ruth Rosenberg Dance Ensemble from 1996–2001.

She also performed with Sacramento Ballet under Barbara Crockett and Capital City Ballet under Nolan T’Sani. She received a Bachelor of Science in Dance from Sacramento State. Kathy studied at the Gus Giordano Jazz Dance Studio in Chicago and taught ballet at Sacramento High School and Sacramento State.

SPEAKER BIOGRAPHIES continued

The Parkinson Association of

Northern Californiawould like to

thank our sponsor

Get Ready to Walk: 2021 Date to be determined

Benefits the Parkinson Association of Northern California (PANC)

QUESTIONS: Phone: (916) 768-0733

Email: rgsmith.parkinson@gmail.com

*** Check out our Website *** Register to walk, make a donation or get updated information.

www.rgsmith.org

Robert G Smith Walk to “Cancel Out Parkinson’s”

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BLESSINGS & HOPESubmitted by Irene and Jim Duggan

Sacramento/Natomas PD Support Group

I have been blessed in so many ways, but I certainly did not think so when I first became aware of “The Tremor”.

I’ll never forget that day when I was diagnosed with PD in 2015 by Dr. Malhado-Chang. She emphatically stated she would not dispense medication unless I promised to exercise, exercise, exercise, which was my first blessing.

I was also blessed when directed to the Pamela Trokanski Dance Theatre in Davis. Now I lose myself in all kinds of dance whether Line Dancing, Zumba or Rock n’ Roll.

I was then blessed at my first dance class when greeted by Dorothy Ross who introduced me to her Davis Support Group. She is a wonderful friend.

Although I truly hate having PD I approach all my days from a positive place. And I now count my blessings which start when I wake up and have been given another day.

A positive attitude makes each day better and makes bad days tolerable. This is a blessing too.

My husband Jim, another blessing, and I refuse to let the fear of what the future will bring consume us. We fight this as partners.

We have HOPE. We are living longer and may be around for the cure. Strides are being made in research including gene cell implantation. Already Deep Brain Stimulation (DBS) is profoundly changing treatment options for many.

We certainly are blessed to be at this point in the history of Parkinson’s disease.

We wish you HOPE and encourage you to COUNT YOUR BLESSINGS.

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To maintain our health during this pandemic, most Support Groups are not meeting face to face. Many groups are meeting via video or conference calls. Please contact your local (or any) support group leader to see if there are events you can join in virtually.

Butte County

Chico Terry Donnelly 650-743-6871 tmdonnelly68@gmail.com Bob Murray 530-321-6157 ordferry@yahoo.com

OrovilleCarol Rawlins 530-282-0499

El Dorado County

El Dorado Hills Meeting via Zoom, 2nd Tuesday, 12:00 pm Contact Donna Rixman for invite/information Donna Rixmann 916-712-9642 donna@yogapeace.net Larry Alver 916-933-2465 ldalver@sbcglobal.net

El Dorado Hills/Folsom Caregiver Luncheon* Larry Alver 916-933-2465 ldalver@sbcglobal.net

Placerville Peggy Kline 408-309-1125 pegkline103@gmail.com

Napa County

Napa Young Onset Group Meeting via Zoom 3rd Sunday, 3:00 – 4:00 pmColleen Winters 209-602-1536 cfwinters@yahoo.com

Nevada County

Grass Valley Nancy Lockwood 530-272-7950 nmlockwood@aol.com

Truckee Ellen Roumasset 650-759-3666 dr.eroumasset@gmail.com

Placer County

Auburn Caregivers Luncheon*Karen Hancock 530-885-0950 karen@hancockonline.net

Auburn Karen Hancock 530-885-0950 Karen@hancockonline.net

Lincoln Gary High 916-434-5905 Gwhigh@wavecable.com

Roseville Harry Butler 916-837-3366 hapbutler@comcast.net rosevillepsg.weebly.com

West Roseville Ken & Arlene Fujino 916-474-3489 kfujino1@msn.com

Sacramento County

Arden/Arcade Keith Tronson 916-395-2771 keithtronson@sbcglobal.net Jim Morris 916-359-4859 jimor1940@gmail.com

Carmichael/Eskaton Colette Coleman Colemanhior@gmail.com

REGIONAL SUPPORT GROUPS

* Caregiver / Care Partner meeting

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El Dorado Hills/Folsom Caregiver Luncheon*Larry Alver 916-933-2465 ldalver@sbcglobal.net

Elk Grove Meeting via Zoom 3rd Wednesday, 10:00 – 11:30 am Myron Jantzen 916-804-6497 mpjantzen@aol.com

Folsom Meeting via Zoom 4th Monday, 10:00 am Contact Donna Rixman for invite/information Donna Rixman 916-712-9642 donna@yogapeace.net Cathy Johnson 916-791-2425

Gold River Lewy Body Dementia Caregiver/Care Partner Collaborative Group Meeting via Zoom 2nd Thursday, 10:00 – 11:30 amDenise Davis 800-272-3900 denise.davis@alz.org

Sacramento Caregivers Lunch Bunch* Meeting via Zoom 3rd Tuesday, 11:00 – 1:00 pmGain Saetern 916-728-9333 gsaetern@deloro.org

Sacramento Carmichael Area Young Onset Support Group Meeting via Zoom 1st Wednesday, 6:30 pm Mary Beth Arjil 530-409-4118 marjil@sbcglobal.net Tony Wong 916-730-6303 acwong60@gmail.com

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Sacramento Natomas Area Meeting via Zoom 2nd Thursday, 10:00 amIrene Duggan 916-710-6912 parkinsons1018@gmail.com

Sacramento Northeast Area Sean Tracy 916-482-7014 sstfam@winfirst.com Judy Tracy j-tracy@att.net

Sacramento Post DBS PatientsSee class schedule, location and contact information at www.panctoday.org/support-groups.html

Sacramento South Area David Teraoku 916-685-4162 Jerry Miyamoto 916-441-1020 jmiyamoto72@gmail.com

San Joaquin County

Lodi Ron & Maureen Olsen 209-329-1185 molsen@softcom.net Robbin & Pat Bray 209-269-1080 braywaves@gmail.com

Lodi Caregivers Group*Jean Whitted 209-329-7075 bjwhitted@hotmail.com

Stockton Christy Carruthers 209-478-2731 carruthers209@gmail.com

Tracy Kathy Clark 209-879-3108 classieladyat63@yahoo.com

Shasta County

Redding Coffee in the Park 1st and 3rd Friday, 9:30 – 11:00 amMeeting via Zoom-2nd Friday, noon – 1:30 pm Kim Hawkins 530-945-7628 Kim.reddingpsg@gmail.com

Sierra County

Loyalton Betty Ferguson 530-993-4002 fergi45@gmail.com

Solano County

Benicia Meeting via Zoom 2nd SaturdayBrad Miller 707-515-9216 bradfordmiller807@gmail.com

Vacaville Brenda DeMartini 707-330-1551 brendaldemartini@gmail.com

Sonoma County

Sonoma Meeting via Zoom 2nd Saturday, 1:00 pmSee www.parkinsonsonomacounty.org Nancy Wilson nlbwilson.41@gmail.com Marc Alexander 707-431-8767 malexander109@comcast.net

Stanislaus County

Modesto Paul Vantress 209-526-6184 modestoparkinsons@gmail.com

REGIONAL SUPPORT GROUPS continued

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Sutter County

Yuba City Mary Lou Chumbley 530-671-0767

Yolo County

Davis Meeting via Zoom 3rd Thursday, 1:30 – 3:00 pmSue Curry 530-304-9927 smcurry@sbcglobal.net

Davis Care Partners Group* Karen Eagan 530-564-4323 kareneagan747@gmail.com

Woodland Meeting via Zoom 2nd and 4th Tuesdays, 1:00 – 2:20 pm Bernadette Murray 530-661-1950 bemurray2008@gmail.com

PANC Advisory Support Group Facilitators and attendees should be aware that not all medications, treatments or theories about Parkinson’s disease are ‘right’ for every person. If presentations or discussions within your group raise issues in your mind regarding your personal condition or treatment plan, you are advised to bring those questions to your treating physician for further exploration prior to making any changes in your medications or routines.

* Caregiver / Care Partner meeting

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EXHIBITORS LISTINGAlmond Heights,

MBK Senior Living

Alzheimer’s Association

Brain Support Network

California Parkinson’s Disease Registry, California Department of Public Health

California Relay Service

Craig Cares

CTAP California Phones

The Davis Phinney Foundation for Parkinson’s

Del Oro Caregiver Resource Center

Department of Motor Vehicles – Senior Driver Ombudsman

and Outreach Unit

Elder Care Management

Embarcadero Lions Project/ Robert G. Smith Walk to Cancel Out Parkinson’s

Eskaton Lodge Gold River

Hoskins Geriatric Care Management, LLC

Nordic Walking Nations – Senior Health and Wellness Program

Pacific Investment Consultants

Parkinson Association of Northern California

Parkinson’s Foundation

Passages Caregiver Resource Center

PD Active

PD-Connect

Placer Independent Resource Services (PIRS)

Rebuilding Together Sacramento

Redwood CRC

Rehab Without Walls Outpatient NeuroSolutions

Right at Home Sacramento – Davis

Rock Steady Boxing Sacramento –

Multi Dimensional Training

Rock Steady Boxing WarriorFit

Sacramento Dignity Memorial

Senior Care Solutions

Sierra Donor Services

Sierra Ridge Memory Care

Stanford Parkinson’s Community OutreachSunrise Senior Living

WGG Wealth Partners

THANK YOU SPONSORSPRESENTING

AbbVie • Boston Scientific

PLATINUM Home Instead Senior Care

Medtronic DBS – Restorative Therapies Group Neurocrine Biosciences, Inc. • Sunovion

UC Davis Health Deep Brain Stimulation Program

DIAMOND Abbot DBS • Adamas Pharmaceuticals •

ADT Health • Bristol Hospice • Kyowa Kirin Supernus Pharmaceuticals, Inc. (formerly US Worldmeds) • Sutter Health

GOLD ACADIA Pharmaceuticals • Acorda Therapeutics • Amneal Pharmaceuticals

Dignity Health Neurological Institute of Northern California • Kaiser Permanente Lundbeck • The Villas at Stanford Ranch

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THANK YOU TO THEPARKINSON’S COMMUNITY

PANC is here for you! We’re glad you joined us today and encourageyou to connect with one of our support groups, attend our other

educational events, visit us at PANCtoday.org, call us, sign up forour newsletter and we especially want to invite you to be a part of

“Building Community for the Journey.”

1024 Iron Point Rd. Ste. 1046, Folsom, CA 95630916-357-6641 | www.Panctoday.org