2016 Summer HI MS Connection
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Transcript of 2016 Summer HI MS Connection
SUMMER 2016 PACIFIC SOUTH COAST CHAPTER - HAWAII
MS CONNECTION NEWSLETTER
INSIDE THIS ISSUE
02TOP WALKERS AND TEAMS
04BIKE MS: GO BIG OR GO HOME!
05LOW INCOME HOME ENERGY ASSISTANCE
07MS DINNER AUCTION
MAKE A DIFFERENCE AT BIKE MSPAGE 4
02 MS CONNECTION: SUMMER 2016
CONGRATULATIONS
2016 TOP WALKERS AND TEAMS
Top Teams:Family and Friends of Laurie Nakama: $18,465
Maui MS Ohana: $5,170Perky’s Go Getters: $3,795
BNI Hawaii: $1,190
MAHALO!Mahalo Nui Loa to everyone who came out to
support those living with MS and their families. With your help, we raised over $80,000!
SHOUT OUT TO OUR TOP FUNDRAISING TEAMS
OUR TOP FUNDRAISING INDIVIDUALSWalk MS: Sunset Stroll 2016
Laurie Nakama – $12,405Mary Kay Hertog – $ 6,585Cynthia Edralin – $5,380
Walk MS: Field Day 2016Edith Mattice : $3,290
Carli Masik : $970Leo Maher: $300
Walk MS: Maui 2016Ellen Lundquist – $5,170Scott Matthews – $1,000
Ross Simmons – $980Walk MS: E Ola 2016
James Tyrin: $1,115Jody Rapoza: $500
Lindsay Heller: $350
03NATIONALMSSOCIETY.ORG | 1-800-344-4867
NATIONAL MULTIPLE SCLEROSIS SOCIETYPacific South Coast Chapter - Hawaii 950 Kamehameha Hwy., Box 822291 Pearl City, HI 96782
Chapter President: Richard V. Israel Editor & Design: Christine WileyAssociate Designer: Beacons Point, Inc.Director: Candice Schwalbach
© 2016 National Multiple Sclerosis Society, Pacific South Coast Chapter, HawaiiInformation provided by the Society is based
upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician.
The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.
CONNECT WITH US ONLINE: MShawaii.org
EMOTIONAL SUPPORT
TALK STORY GROUPSSelf-help, otherwise known as Talk Story Meetings, are support groups for individuals with MS, their families, friends, and other care partners. Members gather regularly for the purposes of sharing common experiences and concerns, providing and receiving emotional support, and obtaining information on living and coping with MS.
Oahu Windward Talk Story Meeting 3rd Wednesday, 6:00pm - 7:30pm St. John Vianney Parish Community, 920 Keolu Drive, Kailua (Oahu) Parish Office Building, co-facilitated by David Burton. For more information, please call 808-532-0805.
Kauai Talk Story Meeting 1st Wednesday, 5:30 - 7:00pm This group travels to different areas of the island each month. Please call the Hawaii office for more information at 808-532-0806. Co-facilitated by Laurie Nakama and Mary Kay Hertog.
Kauai Caregivers The group meets at 5:30pm based on participant availability and communicates regularly through an email thread.
Maui Self-Help Group Meeting On Summer Break. Please contact Ellen for more information at 808-250-4630. Co-facilitated by Ellen Lundquist and Joyce Macdougall.
Like us: facebook.com/NationalMSSocietyHawaiiDivision
Top Teams:BNI Hawaii : $1190
Planning Dept : $1124Cost U Less: $500
Pahoa Seniors: $205
Oahu
Perky’s Go Getters $4,915 Early Act Club $1,336.5
Team LRS $1,159 Team Saunders $1,425
Hilo
Hilo Bay BNI $1,737 BST-Hawaii $345
Kauai
Family and Friends of Laurie Nakama $17,795
Hui Me Kapilialoha $12,268 Friends of Krystal $7,245
04 MS CONNECTION: SUMMER 2016
BIKE MS
WHY JASON AND I DO THE MS HAWAII RIDEWhen I was in elementary school, I first learned about MS when I took part in the MS Read-a-Thon. Each year, I read every book I could get my hands on to raise funds. My parents and other family members donated a quarter for every book I read. As a teenager, I tutored a student in Algebra and discovered that his mom, Kelly, was living with MS. Often times, I saw the pain she dealt with.
A number of years later, I found myself doing Bike MS Hawai’i for Team Bikeworks. It started off as additional training rides needed for my preparations for the Ironman World Championship in 2011. Since then, I’ve been biking for MS Hawai’i every year!
While I ride, Jason, the bike mechanic, wrenches on the bikes. Usually, you can find him with bike tools in his pocket and a cup of coffee in his hand. He ensures all of the bikes are mechanically sound for the riders. If a rider needs help with his or her bike, Jason happily breaks out the bike stand on the side of the road. Sharing his bike mechanic skills with others is a small part of why he does the bike support yearly. More importantly, when I asked him why he does bike support, he breaks out with a grin and says, “Because I can and it is important to help others.”
Jason and I love helping and meeting new people. Being part of Bike MS Hawai’i has
given us a way of doing both. The Bike MS event gives us a sense of community and way to give back. People come here to ride for MS from all walks of life. Each have a story to share about why they are riding. Every single story fascinates us. Year after year, we look forward to seeing people who have become fast friends. We add to our growing friend list with each ride. Some of them are affected by MS directly and others ride because they have been touched by MS in some way. Five years ago, we met our friends Ted and Claudia. Each year, I look forward to riding with Ted. While Ted and I ride together, Jason and Claudia are the roving bike mechanics.
I ride because I can. I ride for people like Faye, Jessica, and Kelly. MS is part of their daily life. These people are the true heroes and fighters. I ride because raising awareness gives us hope
ELLIE SUMIC
05NATIONALMSSOCIETY.ORG | 1-800-344-4867
JOIN BIKE MS! Be a part of the fun on October 29 & 30!
Visit bikeMShawaii.org to learn more!
LOW INCOME HOME ENERGY ASSISTANCE PROGRAM (LIHEAP) OPENS IN JUNE! LIHEAP assists low income households in meeting their home energy needs. LIHEAP is a federal program that provides crisis payments once a year or energy assistance. LIHEAP primarily assists households by applying an energy assistance grant directly to the energy provider on behalf of the eligible household. Applications accepted in June only. Maui: 808-249-2970 Kauai: 808-245-4077 Oahu: 808-488-6834 Big Island: 808-969-6999 The application period this year is June 2016. Please check with each office for exact dates of the application period and required application documents. An in-person interview is required and each office conducts home interviews for people with major mobility issues. Applications taken Monday - Friday, 9am - Noon.
All applicants should receive a decision by November or December 2016.
that someday MS will be cured.
Again you may ask. Why do we do Bike MS Hawai‘i? Because WE CAN. A friend once told me, “If you want change you have to find change.” How do you find change? Look for it and once you find it don’t let go. It’s out there waiting for us. In other words, get off your derriere and do something! So bring it! Go big or go home! Bike MS Hawai‘i.
NEW DATE! OCTOBER 29 & 30, 2016Bike MS: Go BIG! Or Go Home! is a ride that will take you farther than you’ve ever gone before, and we’re excited to announce a new date for 2016! Join us on October 29 and 30 through volcanic rock landscapes, breathtaking ocean views, paniolo ranches, and historical towns reminiscent of old Hawai’i - all to drive MS research forward faster and deliver programs and services to those who face the challenges of MS every day.
06 MS CONNECTION: SUMMER 2016
SCHOLARSHIP
SCHOLARSHIP RECIPIENTS Congratulations to the 2016 Carol & Bob Webster Memorial Scholarship Fund Recipients!MS shouldn’t stand in the way of a college education. The Carol & Bob Webster Memorial Scholarship funded by the generosity of private donors, helps to alleviate some of the financial burdens experienced by families affected by MS. This year, 21 students residing in San Diego, Orange, Imperial counties and the Hawaiian Islands were awarded $32,000 in scholarship awards.
Skyler GonzalesAveda Institute
Major: Cosmotology
“Cosmetology is something much more to me, it’s something that I’ve seen bring so much joy and happiness to people.”
Sarah Dodge
Boise State University
Major: Biology
“My aspirations for this field stem from the
combination of my awareness of people’s
adversities, my fascination with the human
body, and my strong sense of compassion.”
Caitlyn DodgeBoise State University
Major: Biology
“I aspire to gain the education and knowledge necessary to enter into the medical field and make an impact on the lives of others.”
Special thanks to these sponsors for their generosity and commitment to ensuring that MS does not stand in the way of an education. Carol & Bob Webster Memorial Scholarship FundO.L. Halsell Foundation
If you would like to fund scholarships for deserving students impacted by MS, please contact us at 808.532.0805. To learn more about our scholarships, visit NationalMSsociety.org/scholarship
07NATIONALMSSOCIETY.ORG | 1-800-344-4867
Saturday, Sep tember 24, 2016H AW AII STATE ART
MUSEUM
Save the Date!
MSauctionHawaii.org
YO U ’ R E I N V I T E D. . .TO A CHARMED BY CHARITY ® SOIREE
Come sip refreshments, snack on small bites and shop with others who share your passion for giving back.
15% of all proceeds will be donated to supportNATIONAL MULTIPLE SCLEROSIS SOCIETY, HAWAII
SUNDAY | JULY 21 | 6 - 8:30PM
ALEX AND ANI ALA MOANA CENTER1450 ALA MOANA BLVD #3825 | 808.945.7910
HOSTED BY: CANDICE SCHWALBACHRSVP: [email protected]
Shop. Support. Shine.
Shop. Support. Shine.
Shop. Support. Shine.
YO U ’ R E I N V I T E D. . .TO A CHARMED BY CHARITY ® SOIREE
Come sip refreshments, snack on small bites and shop with others who share your passion for giving back.
15% of all proceeds will be donated to supportNATIONAL MULTIPLE SCLEROSIS SOCIETY, HAWAII
SUNDAY | JULY 21 | 6 - 8:30PM
ALEX AND ANI ALA MOANA CENTER1450 ALA MOANA BLVD #3825 | 808.945.7910
HOSTED BY: CANDICE SCHWALBACHRSVP: [email protected]
YO U ’ R E I N V I T E D. . .TO A CHARMED BY CHARITY ® SOIREE
Come sip refreshments, snack on small bites and shop with others who share your passion for giving back.
15% of all proceeds will be donated to supportNATIONAL MULTIPLE SCLEROSIS SOCIETY, HAWAII
SUNDAY | JULY 21 | 6 - 8:30PM
ALEX AND ANI ALA MOANA CENTER1450 ALA MOANA BLVD #3825 | 808.945.7910
HOSTED BY: CANDICE SCHWALBACHRSVP: [email protected]
LANAI EDUCATION PROGRAM
OVERALL HEALTH WITH MS AND BOWEL AND BLADDERPresentation by Dr. Canonico
JULY 15TH, 6PMHOTEL LANAI, ON THE LANAI OF THE COTTAGE
828 LANAI AVE, LANAI CITY, HI 96763
Dinner will be provided. For more information and to RSVP, contact Candice Schwalbach at 808-532-0805 or email at [email protected].
NON-PROFITORGANIZATION
U.S. POSTAGEPAID
San Diego, CAPermit # 451
950 Kamehameha Hwy Box 822291 Pearl City, HI 96782
MARK YOUR
CALENDARS
JULY 15: Lanai Education Program: Overall Health with MS and Bowel and Bladder
21: Alex and Ani Charmed by Charity Soiree
SEPTEMBER 24: MS Dinner Auction – La Fete de la Cure
OCTOBER 29: Bike MS: Go BIG! or Go Home!