2011 06 08 hpm tweetchat transcript
39
#hpm Healthcare Hashtag Twitter Transcript From: Wed Jun 08 18:00:00 PDT 2011 To: Wed Jun 08 19:00:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project hollyby For the next hour I'll be tweeting from the #hospice and #palliative medicine tweetchat. #hpm Wed Jun 8 18:01:03 PDT 2011 elderpages 15 year old girl who is terminal with cancer has made a bucket list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpm Wed Jun 8 18:01:09 PDT 2011 jodyms Hello everyone, I'm Jody Schoger and will be moderating tonight's #HPM chat. I'm a cancer survivor, co-survivor, writer and blogger. Wed Jun 8 18:01:10 PDT 2011 jfclearywisc Hi, Joining #hpm from the basement. Major thunderstorms here in Madison, WI. Fingers crossed and praying. #hpm Wed Jun 8 18:01:25 PDT 2011 jodyms Who's joining us for tonight's discussion? Please introduce yourself. It's great to be connected with all of you again. #HPM Wed Jun 8 18:01:54 PDT 2011 ctsinclair RT @hollyby : For the next hour Ill be tweeting from the #hospice and #palliative medicine tweetchat. "me too!" #hpm Wed Jun 8 18:01:55 PDT 2011 equijada Hi all. Thanks for hosting @jodyms #hpm Wed Jun 8 18:02:13 PDT 2011 hollyby @jfclearywisc Stay safe! #hpm Wed Jun 8 18:02:35 PDT 2011 elderpages Nice to "see" you all. I'm a hospice volunteer, research scientist, family caregiver and webmaster committed to community devt via Web #hpm Wed Jun 8 18:02:38 PDT 2011
-
Upload
christian-sinclair-md -
Category
Health & Medicine
-
view
844 -
download
2
description
Transcript of 2011 06 08 hpm tweetchat transcript
#hpm
Healthcare Hashtag Twitter Transcript
From: Wed Jun 08 18:00:00 PDT 2011
To: Wed Jun 08 19:00:00 PDT 2011
Customize transcript dates and layout
Learn more about #hpm at The Healthcare Hashtag Project
hollyby For the next hour I'll be tweeting from the #hospice and #palliative medicine
tweetchat. #hpmWed Jun 8 18:01:03 PDT 2011
elderpages 15 year old girl who is terminal with cancer has made a bucket list. One of her
wishes: to trend on Twitter. Give a RT #alicebucketlist #hpmWed Jun 8 18:01:09 PDT 2011
jodyms Hello everyone, I'm Jody Schoger and will be moderating tonight's #HPM chat. I'm a
cancer survivor, co-survivor, writer and blogger.Wed Jun 8 18:01:10 PDT 2011
jfclearywisc Hi, Joining #hpm from the basement. Major thunderstorms here in Madison, WI.
Fingers crossed and praying. #hpmWed Jun 8 18:01:25 PDT 2011
jodyms Who's joining us for tonight's discussion? Please introduce yourself. It's great to be
connected with all of you again. #HPMWed Jun 8 18:01:54 PDT 2011
ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice and #palliative
medicine tweetchat. "me too!" #hpmWed Jun 8 18:01:55 PDT 2011
equijada Hi all. Thanks for hosting @jodyms #hpmWed Jun 8 18:02:13 PDT 2011
hollyby @jfclearywisc Stay safe! #hpmWed Jun 8 18:02:35 PDT 2011
elderpages Nice to "see" you all. I'm a hospice volunteer, research scientist, family caregiver and
webmaster committed to community devt via Web #hpmWed Jun 8 18:02:38 PDT 2011
MedicalMarcom I showed up an hour early! Now I know better. Joe Hage, #MedDevice founder, mktg
comm for med companies. #HPMWed Jun 8 18:02:52 PDT 2011
jodyms @jfclearywisc @equijada @ctsinclair - greetings! #HPMWed Jun 8 18:02:57 PDT 2011
authordhallman #hpm - David here. lost my partner to pancreatic cancer 2 wks after diagnosis.Wed Jun 8 18:03:05 PDT 2011
aliciabloom MSW, LSW from @VITASHospice & Palliative Care. #hpm consults, clinical
education & program development. #hpmWed Jun 8 18:03:28 PDT 2011
equijada @authordhallman Hi David, welcome. #hpmWed Jun 8 18:03:38 PDT 2011
MedicalMarcom I am looking to meet a HPM professional with experience selling into #HPM orgs +
figured y'all would have recos?Wed Jun 8 18:03:57 PDT 2011
hollyby Hello, Holly Yang. HPM doc from @SanDiegoHospice. Interests in international
#palliative med, pt care, med ed, SoMe, communication #hpmWed Jun 8 18:04:11 PDT 2011
Freshwidow Supa, widow blogger, #HPM advocate and family member. Crazy hair. Thanks for
hosting, @jodyms!Wed Jun 8 18:04:31 PDT 2011
jodyms Welcome @authorhallman @aliciabloom @medicalmarcom #hpmWed Jun 8 18:04:32 PDT 2011
DrSnit @jodyms Hey cats! Longtime no see Jodycakes!! Muah!! #hpmWed Jun 8 18:04:46 PDT 2011
PracticalWisdom HI I'm Lisa Trainer/Speaker/Creative Connector. Looking forward to @jodyms and
the other leaders in #HPM Field #HPMWed Jun 8 18:04:51 PDT 2011
hollyby As always, all tweets are my own #hpmWed Jun 8 18:05:08 PDT 2011
drseisenberg Hi there! Steven Eisenberg. Medical oncologist. Lyrical Life guy. I co-write original
songs with cancer and hospice patients. #hpmWed Jun 8 18:05:21 PDT 2011
PinkRibbonBlues #HPM Gayle here, medical sociologist, focus on breast cancer culture, industry,
advocacy, and survivorship. Love @jodymsWed Jun 8 18:05:24 PDT 2011
doctatum RT @doctatum Paul from Mo. Before the floods hit. On phone. Oops. #hpmWed Jun 8 18:05:27 PDT 2011
ctsinclair Intros: Hello, Christian Sinclair here, Palliative MD @KChospice, Editor @Pallimed,
fan of @SportingKC and the new @LiveSTRONGPark #hpmWed Jun 8 18:05:32 PDT 2011
jodyms I'll asking #HPM questions tonight on behalf of the cancer survivor community. And
I'm sure if I misrepresent them we'll hear otherwise:)Wed Jun 8 18:05:32 PDT 2011
jfclearywisc @MedicalMarcom PRobably not tonight given topic is "Abandonment-what patients
really feel. Don't mean to abandon you :-) #hpmWed Jun 8 18:05:41 PDT 2011
jodyms @drsnit @hollyby @practicalwisdom Awesome to see you:) #hpmWed Jun 8 18:06:00 PDT 2011
uvmer Hi! Lurking in the shadows and might butt in. (: #HPMWed Jun 8 18:06:10 PDT 2011
MatthewsMichele <--#hospice, #hpm advocate, patient and community empowerment enthusiast!
#hpmWed Jun 8 18:06:11 PDT 2011
revdoc RT @ctsinclair: RT @hollyby: For the next hour Ill be tweeting from the #hospice and
#palliative medicine tweetchat. "me too!" #hpmWed Jun 8 18:06:34 PDT 2011
MedicalMarcom @jfclearywisc thanks. I'll stick around all the same + meet some new #HPM folks!Wed Jun 8 18:06:41 PDT 2011
DrSnit Me 3 RT @ctsinclair RT @hollyby: For the next hour Ill be tweeting from the #hospice
& #palliative medicine tweetchat. "me too" #hpmWed Jun 8 18:06:47 PDT 2011
ctsinclair @hollyby RE: Twwets are my own: Intersting take from @Doctor_V Should We Ditch
Social Media Disclaimers? http://hpm.md/lzTW9G #hpmWed Jun 8 18:06:47 PDT 2011
PracticalWisdom Sorry are the floods close? RT @doctatum: RT @doctatum Paul from Mo. Before the
floods hit. On phone. Oops. #HPMWed Jun 8 18:06:58 PDT 2011
MatthewsMichele <---oh and #socialmedia junkie! :-) #hpmWed Jun 8 18:07:20 PDT 2011
ctsinclair @uvmer Hi Nancy, I am sure we will lure you in with some good conversation! #hpmWed Jun 8 18:07:25 PDT 2011
jodyms #HPM - Our topic tonight is what patients really fear: abandonment. Abandonment by
doctors, friends, and family.Wed Jun 8 18:07:31 PDT 2011
PracticalWisdom Thanks excited about tonight. RT @jodyms: @drsnit @hollyby @practicalwisdom
Awesome to see you:) #HPMWed Jun 8 18:07:42 PDT 2011
revdoc Pam Harris MD @KCHospice, ordained minister #hpmWed Jun 8 18:07:47 PDT 2011
DrSnit RT @jodyms: I'll asking #HPM questions tonight on behalf of the cancer survivor
community. And I'm sure if I misrepresent them we'll hear otherwise:)Wed Jun 8 18:08:06 PDT 2011
revdoc @revdoc @KCHospice Tweets are my own #hpmWed Jun 8 18:08:14 PDT 2011
RossJeanette Hi I'm Jeanette Ross HPM doc associate Fellowship director @uthscsa in san
Antonio passionate about teaching. Will lurk tonight #hpmWed Jun 8 18:08:14 PDT 2011
elderpages @jodyms I would like to hear more about some of those fears. Can you start with a
few? #hpmWed Jun 8 18:08:17 PDT 2011
hollyby @ctsinclair It's part of my employer's SoMe policy, I believe, so... I do it. #hpmWed Jun 8 18:08:26 PDT 2011
ctsinclair @PinkRibbonBlues Hi Gayle! Welcome to the chat! #hpmWed Jun 8 18:08:33 PDT 2011
uvmer @ctsinclair Most probably... (: Not the silent type. Thanks. #HPMWed Jun 8 18:08:40 PDT 2011
jodyms So my first T1: how can we work together to help transition patients into healing,
supportive care? #hpmWed Jun 8 18:08:42 PDT 2011
equijada RT @jodyms: I'll asking #HPM questions tonight on behalf of the cancer survivor
community. And I'm sure if I misrepresent them we'll hear otherwise:)Wed Jun 8 18:09:08 PDT 2011
ctsinclair Just a tip if you do use cancer in your tweet feel free to hashtag it. Some people
might be looking for that, and stumble here. #hpmWed Jun 8 18:09:10 PDT 2011
MatthewsMichele RT @jodyms: So my first T1: how can we work together to help transition patients
into healing, supportive care? #hpm
Wed Jun 8 18:09:11 PDT 2011
hollyby RT @jodyms: So my first T1: how can we work together to help transition patients
into healing, supportive care? #hpmWed Jun 8 18:09:13 PDT 2011
JohnGirdwood @ctsinclair I love this #hpm thing so much, almost as much (maybe equally) as
watching Tigers or BoSox vs Yankees!Wed Jun 8 18:09:28 PDT 2011
ctsinclair RT @hollyby: @ctsinclair Its part of my employers SoMe policy, I believe, so... I do it.
"good answer!" #hpmWed Jun 8 18:09:31 PDT 2011
jodyms RT @ctsinclair: Just a tip if you do use cancer in your tweet feel free to hashtag it.
Some people might be looking for that, and stumble here. #hpmWed Jun 8 18:09:34 PDT 2011
jodyms @uvmer Nancy, you have a lot to add here. I'm glad you've joined us. #hpmWed Jun 8 18:09:59 PDT 2011
andybaldwin @ctsinclair @kchospice @pallimed @sportingkc @hollyby @livestrongpark #hpm hi
everyone! Dr. Baldwin here #AskDrAndyWed Jun 8 18:10:00 PDT 2011
Doctor_V And The Palliatives convene #hpmWed Jun 8 18:10:19 PDT 2011
elderpages Can you help by clarifying transition from what? Do you mean changing goals of care
from curative to comfort? #hpmWed Jun 8 18:10:26 PDT 2011
hollyby @andybaldwin Hi Andy! Great to have you join us! #hpmWed Jun 8 18:10:38 PDT 2011
PracticalWisdom RT @jodyms: RT @ctsinclair: Just a tip if you do use cancer in tweet feel free 2
hashtag. # people might B looking4 & stumble here. #HPMWed Jun 8 18:10:44 PDT 2011
DrSnit RT @jodyms: So my first T1: how can we work together to help transition patients
into healing, supportive care? #hpmWed Jun 8 18:10:45 PDT 2011
ctsinclair T1 (Clarification) @jodyms Which 'we" did you have in mind with this question? We
the chatters, we the social media-ists, etc? #hpmWed Jun 8 18:10:50 PDT 2011
elderpages RT @Doctor_V: And The Palliatives convene...T: Sounds like a backup band :-) #hpmWed Jun 8 18:11:02 PDT 2011
JohnGirdwood I was called to HR before to clear up my use so... RT @hollyby: @ctsinclair It's part of
my employer's SoMe policy, so... I do it #hpmWed Jun 8 18:11:06 PDT 2011
aliciabloom early integration #palliative care brings supportive care throughout the continuum of
illness, making it less of an abrupt transition #hpmWed Jun 8 18:11:14 PDT 2011
uvmer @jodyms Thanks Jody. (: #hpmWed Jun 8 18:11:16 PDT 2011
PracticalWisdom Are you going to join us tonight? That would be great RT @Doctor_V: And The
Palliatives convene #HPMWed Jun 8 18:11:17 PDT 2011
jodyms @elderpages T1: Transition from curative to comfort and supportive. #hpmWed Jun 8 18:11:21 PDT 2011
DrSnit @jodyms Yes yes yes! so glad you're here @uvmer!! xo #hpmWed Jun 8 18:11:26 PDT 2011
ctsinclair T1: I think healing supportive care should come as part of the package regardless of
goals #hpmWed Jun 8 18:11:38 PDT 2011
equijada t1 prior to working together, I have to be prepared to go into a place that is sacred,
scary. Make sure I'm in a good place #hpmWed Jun 8 18:11:50 PDT 2011
drseisenberg T1: Talk early, talk often and talk authentically about #cancer and hospice. Med oncs
just gotta do it. #asco11 #hpmWed Jun 8 18:11:59 PDT 2011
DoctorFisher Hello Palliators #hpmWed Jun 8 18:12:02 PDT 2011
ctsinclair RT @aliciabloom: early integration #palliative care brings supportive care across
continuum of illness, making less abrupt transition #hpmWed Jun 8 18:12:07 PDT 2011
PracticalWisdom RT @aliciabloom: early integration #palliative care brings supportive care throughout
continuum illness, making it (-) an abrupt trans. #HPMWed Jun 8 18:12:17 PDT 2011
revdoc T1 IMHO we need better training, inservices, curriculum for non-HPM types so that
referrals are made by usual MDs, nonthreatening #hpmWed Jun 8 18:12:20 PDT 2011
ctsinclair @aliciabloom Nice concise statement! #hpmWed Jun 8 18:12:20 PDT 2011
PracticalWisdom RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and
hospice. Med oncs just gotta do it. #asco11 #HPMWed Jun 8 18:12:30 PDT 2011
DoctorFisher RT @ctsinclair: T1: I think healing supportive care should come as part of the
package regardless of goals #hpmWed Jun 8 18:12:39 PDT 2011
elderpages Guess I'm in listening mode (questions mode). What would survivors like
professionals to do to be more collaborative? #hpmWed Jun 8 18:12:53 PDT 2011
aliciabloom @ctsinclair thanks! i'm getting better at this 140 character thing ;) #hpmWed Jun 8 18:12:55 PDT 2011
PracticalWisdom RT @revdoc: T1 IMHO we need better training, inservices, curriculum for non-HPM
types so referrals R made by usual MDs, nonthreatening #HPMWed Jun 8 18:13:03 PDT 2011
Doctor_V Lurking #hpmWed Jun 8 18:13:13 PDT 2011
PracticalWisdom RT @elderpages: Guess Im in listening mode (questions mode). What would
survivors like professionals to do to be more collaborative? #HPMWed Jun 8 18:13:17 PDT 2011
thinkalot RT @drseisenberg: T1: Talk early, talk often and talk authentically about #cancer and
hospice. Med oncs just gotta do it. #asco11 #hpmWed Jun 8 18:13:29 PDT 2011
jodyms @ctsinclair T1: Understand that the end of life is a big mystery to most cancer
patients. Its the chapter in the book we don't read. #hpmWed Jun 8 18:13:43 PDT 2011
ctsinclair T1: Important to address w/ psychology of the patient and the family, seen wide
variety of adjustment to illness (some good, some bad) #hpmWed Jun 8 18:13:47 PDT 2011
hollyby T1: It should not feel like an "either/or" issue. Supportive/palliative care should begin
early, regardless of ability to cure. #hpmWed Jun 8 18:13:57 PDT 2011
ihatebreastcanc @jodyms Katherine with bone-only MBC #hpmWed Jun 8 18:14:10 PDT 2011
drseisenberg Med oncs can become involved with a hospice. Continuity. #hpmWed Jun 8 18:14:24 PDT 2011
DrSnit I'm always intrigued by how afraid and alone people (the patients, the caretakers
sometimes even the docs) feel during treatment #hpm
Wed Jun 8 18:14:24 PDT 2011
MatthewsMichele RT @elderpages: 15 year old girl who is terminal with cancer has made a bucket
list. One of her wishes: to trend on Twitter. Give a RT #alicebucketlist #hpmWed Jun 8 18:14:25 PDT 2011
ctsinclair @elderpages Yes I would like to here from #cancer survivors as well on this topic.
#hpmWed Jun 8 18:14:28 PDT 2011
jodyms @PracticalWisdom @elderpages First we need to make connections between
clinical #HPM and survivor communities. Bridge must be constructed.Wed Jun 8 18:14:41 PDT 2011
equijada RT @jodyms: @ctsinclair T1: Understand that the end of life is a big mystery to most
cancer patients. Its the chapter in the book we don't read. #hpmWed Jun 8 18:14:42 PDT 2011
jodyms @ihatebreastcanc Thank you for joining us. #hpmWed Jun 8 18:14:59 PDT 2011
ctsinclair T1: the curious challenge is identifying transition points. All stakeholders may have
different perceptions of timing. #hpmWed Jun 8 18:14:59 PDT 2011
PracticalWisdom RT @ctsinclair: T1: Imp.2 address w/ psychology of pt & family, seen wide variety of
adjustment to illness (some good, some bad) #HPMWed Jun 8 18:15:03 PDT 2011
hollyby RT @ctsinclair: T1: the curious challenge is identifying transition points. All
stakeholders may have different perceptions of timing. #hpmWed Jun 8 18:15:28 PDT 2011
elderpages RT @equijada: RT @jodyms: T1: End of life is a big mystery to most cancer patients.
Its the chapter in the book we dont read. #hpmWed Jun 8 18:15:34 PDT 2011
DrSnit @uvmer :) so glad you've joined the conversation. Your voice is necessary! xo #hpmWed Jun 8 18:15:38 PDT 2011
ctsinclair @ihatebreastcanc We really appreciate the perspective of patients and families in
this chat. Glad you are here. #hpmWed Jun 8 18:15:47 PDT 2011
MatthewsMichele pls. rt @JohnAmussen: I'm a marrow donor. here's 1 reason why. http://t.co/72Kubdy
/ #alicebucketlist” me too! www.marrow.org via @mswz #hpmWed Jun 8 18:15:53 PDT 2011
PracticalWisdom RT @jodyms: @PracticalWisdom @elderpages 1st we need 2 make connect
Btween clinical #HPM/survivor commu. Bridge must be constructed. #HPMWed Jun 8 18:15:57 PDT 2011
elderpages TI: I think part of collaboration is starting where "they/we" are. Families and patients
not always on same page as each other. #hpmWed Jun 8 18:16:20 PDT 2011
authordhallman #hpm In Ontario, we benefitted from the coordinating agency that links the PC MDs,
community nurses, homemakers for the family’s benefitWed Jun 8 18:16:23 PDT 2011
jfclearywisc In #cancer & other diseases, do we reduce sense of abandonment with clear
definition of goals of care: cure, prolong, palliate #hpmWed Jun 8 18:16:39 PDT 2011
ctsinclair RT @hollyby: T1: Shouldn't feel like an "either/or" issue. Supportive/palliative care
should begin early, regardless of ability to cure #hpmWed Jun 8 18:16:50 PDT 2011
JohnGirdwood Like your twitter name : ) RT @jodyms: @ihatebreastcanc Thank you for joining us.
#hpmWed Jun 8 18:17:00 PDT 2011
equijada @jodyms how do cancer patients wish to transitioner? As a physician, I slowly push
boundaries till I get resistance then back off #hpmWed Jun 8 18:17:05 PDT 2011
PracticalWisdom RT @elderpages: TI: Part of collaboration is starting where "they/we" R.
Families/patients not always on same page as each other. #HPMWed Jun 8 18:17:07 PDT 2011
DrSnit @elderpages YES! And even when they ARE on the same page, EMOTIONS come
up and people feel like a "failure" for having feelings #hpmWed Jun 8 18:17:23 PDT 2011
MatthewsMichele T1: End of life is a big mystery to most cancer patients. Its the chapter in the book we
dont read. via @jodyms #hpmWed Jun 8 18:17:24 PDT 2011
aliciabloom stop perpetuating the everything/treatment vs. nothing/hospice dichotomy #hpmWed Jun 8 18:17:25 PDT 2011
uvmer As care giver to my partner w/a brain tumor, an early conversation & an advanced
directive were key.Knew then the path I was to follow. #hpmWed Jun 8 18:17:34 PDT 2011
jfclearywisc RT @hollyby: T1: Shouldnt feel like an "either/or" issue. Supportive/palliative care
should begin early, regardless of ability to cure #hpmWed Jun 8 18:17:36 PDT 2011
Freshwidow I disagree about transition points. @ctsinclair: As a #cancer widow, I wish we had
some orientation to hospice/PM at dx... or earlier! #hpmWed Jun 8 18:17:39 PDT 2011
ctsinclair T1: I think the concept of 'navigator' has been helpful in breast #cancer, wondering if
applied more broadly? #hpm
applied more broadly? #hpm
Wed Jun 8 18:17:47 PDT 2011
PracticalWisdom RT @equijada: @jodyms how do cancer patients wish2 transitioner? As MD, I slowly
push boundaries till I get resistance then back off #HPMWed Jun 8 18:18:01 PDT 2011
elderpages I love the work of Dr. David Casarret: Talk first about hopes and achievable goals.
Strategize transition in context of achieving these #hpmWed Jun 8 18:18:11 PDT 2011
jodyms Elaborate - I like that RT @aliciabloom stop perpetuating the everything/treatment vs.
nothing/hospice dichotomy #hpmWed Jun 8 18:18:12 PDT 2011
MatthewsMichele @PracticalWisdom @elderpages how do we get them on the same page...is that
not where the process should begin? #hpmWed Jun 8 18:18:12 PDT 2011
MatthewsMichele RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice
dichotomy #hpmWed Jun 8 18:18:18 PDT 2011
ctsinclair @aliciabloom Got to talk to a nurse today about that. She was very receptive to
having good language to describe the role of pall care #hpmWed Jun 8 18:18:19 PDT 2011
jfclearywisc @uvmer So how tough was that early conversation and did it take away hope? #hpmWed Jun 8 18:18:30 PDT 2011
Freshwidow I believe once you get the idea that there is a "transition" point, you are too delicate to
ever start with most ppl. #hpm @ctsinclairWed Jun 8 18:18:41 PDT 2011
drseisenberg T1: Compassionate communication must be there from day 1. #hpmWed Jun 8 18:18:45 PDT 2011
ctsinclair @Freshwidow So glad you are here! Tell me more why you disagree about transition
points. I think we are probably on the same page. #hpmWed Jun 8 18:18:50 PDT 2011
jodyms @freshwidow I agree completely from what I've seen and experienced. #hpmWed Jun 8 18:18:54 PDT 2011
equijada RT @Freshwidow: I disagree about transition points. @ctsinclair: As a #cancer
widow, I wish we had some orientation to hospice/PM at dx... or earlier! #hpmWed Jun 8 18:18:54 PDT 2011
revdoc T1 Maybe we need doulas (sp?) for death as well as for birthing? #hpmWed Jun 8 18:19:00 PDT 2011
elderpages RT @MatthewsMichele: how do we get them on the same page...is that not where
the process should begin?...T: "Whose" page is first? #hpmWed Jun 8 18:19:17 PDT 2011
Freshwidow With us, the disease was slow for a long time... it started to change v. quickly, then
more quickly. NO time to adjust. #hpm @ctsinclairWed Jun 8 18:19:33 PDT 2011
elderpages RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?... T:
As a former midwife, YES!!! #hpmWed Jun 8 18:19:35 PDT 2011
DrSnit RT @revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?
#hpmWed Jun 8 18:19:39 PDT 2011
ctsinclair @uvmer Was knowing the path helpful, even if you veered off the path? Like knowing
when things were not as planned? #hpmWed Jun 8 18:19:40 PDT 2011
RossJeanette T1 healthcare providers should accept that palliative care can improve quality and
length of life too. #HPMWed Jun 8 18:19:43 PDT 2011
PracticalWisdom Not sure there is a simple nor easy answer. G8 ?RT @MatthewsMichele:
@PracticalWisdom @elderpages how do we get them on the same page. #HPMWed Jun 8 18:19:47 PDT 2011
aliciabloom if we are to have true informed consent, patients need to know best & worst case
scenarios and everything in between. #hpmWed Jun 8 18:19:51 PDT 2011
ihatebreastcanc #cancer the word palliative is misunderstood. Some equate it with giving up or no
hope. Need to clearly define for patient and family #hpmWed Jun 8 18:19:58 PDT 2011
jodyms EOL navigators, doulas? Those are interesting thoughts. #hpmWed Jun 8 18:20:02 PDT 2011
ctsinclair @revdoc There have been some doulas for EOL but I think they would avoid calling
themselves Death Doulas. #hpmWed Jun 8 18:20:07 PDT 2011
EldrcareConsult Wait!!! Dont start yet!!! I am here now! :) #hpmWed Jun 8 18:20:17 PDT 2011
aliciabloom @ctsinclair language is critically important and a focus of the clinical education i do.
#hpmWed Jun 8 18:20:22 PDT 2011
hollyby T1: Providers need to develop communication skills to address goals & what is
important to the patient at diagnosis and revisit them #hpm
Wed Jun 8 18:20:27 PDT 2011
MatthewsMichele @elderpages @MatthewsMichele the patient's page...definitely the patient's page.
#hpmWed Jun 8 18:20:29 PDT 2011
PracticalWisdom RT @Freshwidow: With us, disease was slow 4 a long timeit started 2 change v.
quickly/then quickly. NO time to adjust. #hpm @ctsinclair #HPMWed Jun 8 18:20:35 PDT 2011
westr RT @drseisenberg: T1: Compassionate communication must be there from day 1.
#hpm #pm101 #hcsmWed Jun 8 18:20:35 PDT 2011
Pallimed Death doulas in the NY Times from Pallimed: A Hospice and Palliative Medicine
Blog http://hpm.md/lSsRkM #hpm cc @revdocWed Jun 8 18:20:36 PDT 2011
MatthewsMichele RT @aliciabloom: if we are to have true informed consent, patients need to know
best & worst case scenarios and everything in between. #hpmWed Jun 8 18:20:40 PDT 2011
ctsinclair RT @jodyms: EOL navigators, doulas? Those are interesting thoughts. "but then we
have the tough EOL/labeling issue" #hpmWed Jun 8 18:21:00 PDT 2011
PracticalWisdom So glad to see you. Always add value and kindness.RT @EldrcareConsult: Wait!!!
Dont start yet!!! I am here now! :) #HPMWed Jun 8 18:21:12 PDT 2011
jodyms RT @westr: RT @drseisenberg: T1: Compassionate communication must be there
from day 1. #hpm #pm101 #hcsmWed Jun 8 18:21:12 PDT 2011
revdoc RT @ctsinclair: I think they avoid calling themselves Death Doulas. "Are we still that
death avoidant? It's birth to different realm" #hpmWed Jun 8 18:21:40 PDT 2011
DrSnit @revdoc The idea of a "death doula" is powerful. But death, loss, & dying are so
culturally centered, who would do it best? #hpmWed Jun 8 18:21:46 PDT 2011
EldrcareConsult The little one and I were out washing my truck..... :) #hpmWed Jun 8 18:21:47 PDT 2011
JoshGriffin RT @RossJeanette: T1 healthcare providers should accept that palliative care can
improve quality and length of life too. #HPMWed Jun 8 18:21:49 PDT 2011
Freshwidow I hear this a LOT from my widows... and we often focus it (wrongly I think) on the
excessive hope in disease communities #hpm @ctsinclairWed Jun 8 18:21:53 PDT 2011
jodyms T2: You all agree on early discussion. Where/when does that take place? #hpmWed Jun 8 18:21:56 PDT 2011
jfclearywisc I talk to all patients with advanced disease about #hpm. They can choose not to have
anticancertherapy. Hospice is important then. #hpmWed Jun 8 18:21:57 PDT 2011
PracticalWisdom Listening to needs 1st start.RT @westr: RT @drseisenberg: T1: Compassionate
communication must be there from day 1. #hpm #pm101 #hcsm #HPMWed Jun 8 18:22:02 PDT 2011
PinkRibbonBlues RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent,
patients need to know best & worst case scenarios and everything in between.
#hpmWed Jun 8 18:22:07 PDT 2011
ctsinclair @Freshwidow The different trajectories of illness is often discussed by palliative
teams. Some are gradual, others very erratic #hpmWed Jun 8 18:22:15 PDT 2011
elderpages See link on tipsheet for talking about hospice: Identify hopes first. http://bit.ly/m1wYsJ
#hpmWed Jun 8 18:22:16 PDT 2011
jodyms @revdoc @ctsinclair We ARE death avoidant. How do we tell the truth in cultures
where the truth is not to be told? #hpmWed Jun 8 18:22:37 PDT 2011
Freshwidow For me, hope for change is in the grassroots already active: disease communities
MUST start to talk about "not every makes it." #hpmWed Jun 8 18:22:42 PDT 2011
vj_CR @PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ??Wed Jun 8 18:22:49 PDT 2011
jodyms RT @jfclearywisc: I talk to all patients with advanced disease about #hpm. They can
choose not to have anticancertherapy. Hospice is im ...Wed Jun 8 18:22:51 PDT 2011
PinkRibbonBlues RT @Freshwidow @ctsinclair We often focus it (wrongly I think) on the excessive
hope in disease communities #hpmWed Jun 8 18:22:55 PDT 2011
equijada @jodyms would it be helpful if a healthcare provider was identified from day one as
the "non-abandoner" (obviously need better term) #hpmWed Jun 8 18:23:21 PDT 2011
ihatebreastcanc #cancer everybody wants to go to heaven but nobody wants to die. Denial is a
powerful coping mechanism! #hpmWed Jun 8 18:23:21 PDT 2011
buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and
buffalogator RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and
Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdocWed Jun 8 18:23:23 PDT 2011
jodyms Agree! RT @Freshwidow I hear this a LOT from my widows... and we often focus it
(wrongly I think) on excessive hope #hpm @ctsinclairWed Jun 8 18:23:32 PDT 2011
MatthewsMichele @vj_CR @PracticalWisdom my two cents...no way, jump in anytime! ;) #hpmWed Jun 8 18:23:36 PDT 2011
hollyby @jfclearywisc Some patients on hospice continue palliative chemo, don't
necessarily have to d/c anticancer therapy. #hpmWed Jun 8 18:23:39 PDT 2011
drseisenberg I saw so many young patients today; new patients. Connection first. #hpmWed Jun 8 18:23:46 PDT 2011
ctsinclair @revdoc Yes we (culture) are 'death avoidant' in terms of our own mortality. Most
acknowledge death is inevitable, just not dying yet. #hpmWed Jun 8 18:23:47 PDT 2011
Freshwidow We widows OFTEN see this as a culture change issue across the board b/c of our
isolation and perspective btwn 2 worlds #hpm.Wed Jun 8 18:23:54 PDT 2011
PracticalWisdom @Jodyms is our leader 2 night sure she/we are glad you R hereRT @vj_CR:
@PracticalWisdom hello Lisa! I´m I too late to jump in #hpm ?? #HPMWed Jun 8 18:23:56 PDT 2011
revdoc @jodyms @ctsinclair We learn to tell truth in the language of each culture; takes a lot
of work and cultural sensitivity #hpmWed Jun 8 18:24:09 PDT 2011
ctsinclair RT @Freshwidow: hope for change is in the grassroots already active: disease
communities MUST start to talk about "not every makes it." #hpmWed Jun 8 18:24:13 PDT 2011
vj_CR @MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm welcome!Wed Jun 8 18:24:17 PDT 2011
jfclearywisc RT @MatthewsMichele: RT @aliciabloom: if we are to have true informed consent:
Yes it is informed consent so need it from diagnosis. #hpmWed Jun 8 18:24:18 PDT 2011
equijada @jodyms @Freshwidow I like what @jfclearywisc has been teaching about
hope/hubris #hpmWed Jun 8 18:24:30 PDT 2011
ctsinclair RT @drseisenberg: I saw so many young patients today; new patients. Connection
first. "Helps establish trust, and non-abandonment" #hpmWed Jun 8 18:24:34 PDT 2011
DrSnit @Freshwidow People often take "hope" or make "meanings" in amazing ways
during the illness process. How or should we even shift this? #hpmWed Jun 8 18:24:46 PDT 2011
elderpages RT @PinkRibbonBlues: We often focus it (wrongly I think) on the excessive hope...T:
Hope has many faces. http://bit.ly/mUBNWI #hpmWed Jun 8 18:24:49 PDT 2011
VillageMemorial @ctsinclair What about collaborating w/friendly funeral directors? #hpmWed Jun 8 18:24:53 PDT 2011
ctsinclair RT @ihatebreastcanc: #cancer everybody wants to go to heaven but nobody wants to
die. Denial is a powerful coping mechanism! #hpmWed Jun 8 18:25:06 PDT 2011
aliciabloom at time of diagnosis with an advanced illness there should be discussion about
values, preferences and wishes. balance hope & reality. #hpmWed Jun 8 18:25:08 PDT 2011
jodyms Absolutely @equijada would it be helpful if a healthcare provider was id'd frm day as
one "non-abandoner" (obviously need better term) #hpmWed Jun 8 18:25:14 PDT 2011
MarksPhone Sorry had a senior day totally forgot #hpmWed Jun 8 18:25:24 PDT 2011
ctsinclair @ihatebreastcanc Important too, to recognize that denial as coping mechanism is
not always 'negative' can be helpful at times. #hpmWed Jun 8 18:25:35 PDT 2011
jfclearywisc @hollyby @jfclearywisc Not suggesting can't have chemo and hospice. Informed
consent is reason for early Hospice discussion @diagnosis #hpmWed Jun 8 18:25:36 PDT 2011
EldrcareConsult @VillageMemorial @ctsinclair I have established some great relationships with
funeral directors...they are great resources #hpmWed Jun 8 18:25:48 PDT 2011
revdoc RT @revdoc: @jodyms @ctsinclair lot of work & cultural sensitivity "also not a one
time thing, reveal the truth over time as pt/fam tol #hpmWed Jun 8 18:25:57 PDT 2011
hollyby RT @aliciabloom: at time of dx w/ advanced illness there should be discussion abt
values, preferences & wishes. balance hope & reality. #hpmWed Jun 8 18:26:04 PDT 2011
JohnGirdwood Great! Every step of the way RT @equijada: @jodyms helpful if healthcare provider
identified from day 1: "non-abandoner" #hpmWed Jun 8 18:26:24 PDT 2011
VillageMemorial Does anyone have experience w/home monitoring distance care over internet?
VillageMemorial Does anyone have experience w/home monitoring distance care over internet?
#hpmWed Jun 8 18:26:27 PDT 2011
ctsinclair @jodyms RE: Non-abandoner - we need more negatives in there. I am a non-anti-
abandoning unavoider. ;-) #hpmWed Jun 8 18:26:28 PDT 2011
PracticalWisdom VAlentina is joining us from Argentina RT @vj_CR: @MatthewsMichele
@PracticalWisdom great! #hpm thanks for the warm welcome! #HPMWed Jun 8 18:26:30 PDT 2011
hollyby True. RT @jfclearywisc: @hollyby Not suggesting cant have chemo & hospice.
Informed consent is reason for early Hospice discussion @ dx #hpmWed Jun 8 18:26:40 PDT 2011
jfclearywisc RT @equijada: @jodyms @Freshwidow I like what @jfclearywisc has been teaching
about hope/hubris Thanks it is James Tulsky's work!! #hpmWed Jun 8 18:26:44 PDT 2011
aliciabloom #palliative care discussions before LVAD surgery did not take away hope & was
found to provide relief (mnt.to/3WDs) #hpmWed Jun 8 18:26:51 PDT 2011
Freshwidow I wonder if shrinks can offer some insight as to when ppl in shock from catastrophic
dx can best receive #HPM intro?Wed Jun 8 18:26:56 PDT 2011
PracticalWisdom RT @EldrcareConsult: @VillageMemorial @ctsinclair I have established # great
relationships w/ funeral directors they R great resources #HPMWed Jun 8 18:27:05 PDT 2011
jodyms @ctsinclair EOL facilitor doesn't work, either.....#hpmWed Jun 8 18:27:09 PDT 2011
drseisenberg I had to listen listen listen and then listen. Then gently talk about what we need to do
next. #hpmWed Jun 8 18:27:14 PDT 2011
ctsinclair @jfclearywisc Would love health care to really focus on informed consent. So
undervalued. World's biggest lie 'I have read the terms' #hpmWed Jun 8 18:27:27 PDT 2011
Freshwidow Agree -- or earlier! RT @hollyby: RT @aliciabloom: at time of dx w/ advanced illness
there should be discussion ..... #hpmWed Jun 8 18:27:30 PDT 2011
jodyms RT @aliciabloom: #palliative care discussions before LVAD surgery did not take
away hope & was found to provide relief (mnt.to/3WDs) #hpmWed Jun 8 18:27:31 PDT 2011
jodyms RT @PracticalWisdom: VAlentina is joining us from Argentina RT @vj_CR:
@MatthewsMichele @PracticalWisdom great! #hpm thanks for the warm ...Wed Jun 8 18:27:43 PDT 2011
Wed Jun 8 18:27:43 PDT 2011
jodyms RT @Freshwidow: I wonder if shrinks can offer some insight as to when ppl in
shock from catastrophic dx can best receive #HPM intro?Wed Jun 8 18:27:53 PDT 2011
ctsinclair RT @Freshwidow: Can shrinks offer some insight as to when ppl in shock from
catastrophic dx can best receive #HPM intro? cc @DrShock #hpmWed Jun 8 18:27:59 PDT 2011
elderpages @jfclearywisc Do you have link to some of James Tulsky's work? #hpmWed Jun 8 18:27:59 PDT 2011
DrSnit Many fear if they don't have "hope" or a act a certain way during the illness process
they WILL be abandoned. Who teaches us to die? #hpmWed Jun 8 18:28:13 PDT 2011
uvmer @jfclearywisc Actually before initial surgery. Never spoke of it again. In the end ability
to speak was gone, but knew what I had to do #hpmWed Jun 8 18:28:29 PDT 2011
aliciabloom @Freshwidow i believe #palliative care clinicians can help patients & families cope
with catastrophic diagnosis. #hpmWed Jun 8 18:28:29 PDT 2011
VillageMemorial @aliciabloom Good points. Planning is vital. #hpmWed Jun 8 18:28:32 PDT 2011
PracticalWisdom Along w/ your songs!RT @drseisenberg: I had to listen listen listen and then listen.
Then gently talk about what we need to do next. #HPMWed Jun 8 18:28:34 PDT 2011
jodyms RT @DrSnit: Many fear if they don't have "hope" or a act a certain way during the
illness process they WILL be abandoned. Who teaches us to die? #hpmWed Jun 8 18:28:34 PDT 2011
Freshwidow Yes, one really must use holistic, positive language. Like SISTER/BROTHER...
navigator. @jodyms: @ctsinclair #hpmWed Jun 8 18:28:37 PDT 2011
MatthewsMichele RT @aliciabloom: @Freshwidow i believe #palliative care clinicians can help
patients & families cope with catastrophic diagnosis. #hpmWed Jun 8 18:28:50 PDT 2011
jfclearywisc RT @ctsinclair: @jfclearywisc Would love health care to really focus on informed
consent. Bet u bought ur house w/o reading fineprint #hpmWed Jun 8 18:28:51 PDT 2011
HumpbacksRule #hpm Hi all, Late to the party, but lurking :) Ro here- Research nurse, hospice
volunteer.Wed Jun 8 18:28:53 PDT 2011
JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative
JohnGirdwood Huh? Confused RT @hollyby: @jfclearywisc patients on hospice continue palliative
chemo, don't necessarily d/c anticancer therapy. #hpmWed Jun 8 18:28:57 PDT 2011
Gregmogel wow. “@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?
#hpm”Wed Jun 8 18:29:05 PDT 2011
jodyms At the cancer centers I've seen the #HPM department is off and away....down a hall,
on the top floor, set aside. Let's start there.Wed Jun 8 18:29:12 PDT 2011
elderpages @aliciabloom has hope to trend on twitter! David Casarret's book Last Acts is all
about what people choose to do in final weeks. #hpmWed Jun 8 18:29:17 PDT 2011
uvmer Sorry, my computer needs hospice! In slo-mo tonight. #hpmWed Jun 8 18:29:21 PDT 2011
equijada @DrSnit don't think dying has to be taught...just experienced. #hpmWed Jun 8 18:29:24 PDT 2011
JoshGriffin RT @ctsinclair: @jodyms RE: Non-abandoner - we need more negatives in there. I
am a non-anti-abandoning unavoider. ;-) #hpmWed Jun 8 18:29:38 PDT 2011
TreatThePain RT @painpolicy: 15 year old girl w/ terminal cancer has made a bucket list. One of
her wishes: to trend on Twitter. Plz give a RT #alicebucketlist #hpmWed Jun 8 18:29:44 PDT 2011
ctsinclair RT @DrSnit: Many fear if they dont have "hope" or a act a certain way during illness
they WILL be abandoned. Who teaches us to die? #hpmWed Jun 8 18:29:50 PDT 2011
hellen177 RT @uvmer: As care giver to my partner w/a brain tumor, an early conversation & an
advanced directive were key.Knew then the path I was to follow. #hpmWed Jun 8 18:29:50 PDT 2011
hollyby @JohnGirdwood Which part? #hpmWed Jun 8 18:29:54 PDT 2011
ctsinclair @DrSnit I see many patients who deny symptoms because they don't want people to
think anti-cancer treatments are failing. #hpmWed Jun 8 18:30:16 PDT 2011
joshgriffin RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way
during illness they WILL be abandoned. Who teaches us to die? #hpmWed Jun 8 18:30:24 PDT 2011
equijada “@jodyms: At the cancer centers I've seen the #HPM department is off &
away....down a hall, on the top floor, set aside..start there.” AmenWed Jun 8 18:30:26 PDT 2011
vj_CR @DrSnit mmmm I don´t think you can be taught on how to die.... probably it´s part of
the journey.... #hpmWed Jun 8 18:30:39 PDT 2011
MatthewsMichele I agree wholeheartedly! RT @equijada: @DrSnit dont think dying has to be
taught...just experienced. #hpmWed Jun 8 18:30:56 PDT 2011
aliciabloom @elderpages absolutely-- lovely stories in the book. i have a signed copy:) worked
with dr. casarret when i was at penn. #hpmWed Jun 8 18:30:58 PDT 2011
ctsinclair RT @uvmer: Sorry, my computer needs hospice! In slo-mo tonight. "C'mon
computer, you can do it!" #hpmWed Jun 8 18:30:58 PDT 2011
DrSnit @equijada :) That's like saying birth is natural- just go push sweetie. Death and
illness are a process. We NEED EACH OTHER. #hpmWed Jun 8 18:30:58 PDT 2011
PinkRibbonBlues RT @DrSnit Many fear if they don't have "hope" or a act a certain way during the
illness process they WILL be abandoned. #hpmWed Jun 8 18:30:59 PDT 2011
Freshwidow @aliciabloom But we resist when we are marshalling 100% to get thru 1st therapy,
research.... etc. We create our disease mindset... #hpmWed Jun 8 18:31:04 PDT 2011
PracticalWisdom Wonder Why? RT @jodyms: all cancer centers Ive seen #HPM depar is off
away.down a hall, on the top floor, set aside. Lets start there. #HPMWed Jun 8 18:31:15 PDT 2011
MarksPhone @ctsinclair well said and I've seen that as well but I think it is a way for them to feel
hope #hpmWed Jun 8 18:31:16 PDT 2011
jodyms RT @ctsinclair @DrSnit ..many patients who deny symptoms because they don't
want people to think anti-cancer treatments are failing. #hpmWed Jun 8 18:31:22 PDT 2011
equijada @DrSnit @equijada true that. #hpmWed Jun 8 18:31:33 PDT 2011
revdoc @equijada @DrSnit But once U have the exper, U can't teach others except
passively. We can teach "how to die well" w/ our global exps. #hpmWed Jun 8 18:31:36 PDT 2011
ctsinclair RT @equijada: dont think dying has to be taught...just experienced. "disagree, I
teach patients/families what others have taught me" #hpmWed Jun 8 18:31:51 PDT 2011
ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because
ihatebreastcanc RT @jodyms: RT @ctsinclair @DrSnit ..many patients who deny symptoms because
they don't want people to think anti-cancer treatments are failing. #hpmWed Jun 8 18:31:56 PDT 2011
PracticalWisdom Both can be scary/PainfulRT @DrSnit: @equijadaThats like saying birth is natural-
just go push sweetie. Death/illness are a process. #HPMWed Jun 8 18:32:04 PDT 2011
HumpbacksRule RT @ctsinclair: RT @equijada: dont think dying has to be taught...just experienced.
"disagree, I teach patients/families what others have taught me" #hpmWed Jun 8 18:32:29 PDT 2011
equijada @ctsinclair true #hpmWed Jun 8 18:32:32 PDT 2011
ctsinclair @MarksPhone Agreed, it is a complex phenomenon that has effects on the
individual and the team around them #hpmWed Jun 8 18:32:36 PDT 2011
drseisenberg yep RT @jodyms @ctsinclair @DrSnit ..many patients who deny symptoms because
they dont want people to think anti-cancer tx are failing. #hpmWed Jun 8 18:32:40 PDT 2011
jfclearywisc RT @ctsinclair: dont think dying has to be taught...just experienced. "disagree, I
teach patients/families what others have taught me" #hpmWed Jun 8 18:32:42 PDT 2011
vj_CR @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot from the
ones used in the states #hpmWed Jun 8 18:32:58 PDT 2011
VillageMemorial Anyone else attending this Friday's Statewide #Palliative Care Conference in
Portland OR? #hpmWed Jun 8 18:32:58 PDT 2011
jodyms @PracticalWisdom @drsnit Both are SCARY. Control freaks like myself want to
know: how does this work?? #hpmWed Jun 8 18:33:04 PDT 2011
MarksPhone @ctsinclair I think before dying someone needs to teach patients about acceptance
to face what is there. That is difficult #hpmWed Jun 8 18:33:14 PDT 2011
elderpages Wondering how patients are feeling abandoned and what they would like by way of
support. #hpmWed Jun 8 18:33:46 PDT 2011
ctsinclair @jodyms Ha! At our hospital the palliative medicine department is on top floor down
a...dead end. Never realized till you said that. #hpmWed Jun 8 18:33:48 PDT 2011
hollyby I'm not sure that teaching dying is the right term, maybe guiding people through the
process, since each person's path is different. #hpm
process, since each person's path is different. #hpmWed Jun 8 18:33:53 PDT 2011
PracticalWisdom Think need 4 All! RT @jodyms: @PracticalWisdom @drsnit Both are SCARY. Control
freaks like myself want to know: how does this work?? #HPMWed Jun 8 18:33:57 PDT 2011
ctsinclair @vj_CR In what way are informed consents different? #hpmWed Jun 8 18:34:04 PDT 2011
MarksPhone Remember in our live we learn through experiences and reflect on them this is a
different learning we may not have time to reflect #hpmWed Jun 8 18:34:17 PDT 2011
drseisenberg RT @MarksPhone @ctsinclair I think before dying someone needs to teach patients
about acceptance to face what is there. Difficult #hpmWed Jun 8 18:34:21 PDT 2011
ctsinclair @equijada And it is not so much telling them this is the way to die well, but here are
how other families/patients coped well. #hpmWed Jun 8 18:34:36 PDT 2011
jodyms RT @drseisenberg: RT @MarksPhone @ctsinclair I think before dying someone
needs to teach patients about acceptance to face what is there. Difficult #hpmWed Jun 8 18:34:40 PDT 2011
joshgriffin RT @hollyby: I'm not sure that teaching dying is the right term, maybe guiding people
through the process, since each person's path is different. #hpmWed Jun 8 18:34:46 PDT 2011
PracticalWisdom @jodyms @PracticalWisdom @drsnit When people understand many times helps
lower anxiety. This certainly is good for Body/Soul/Mind/Famiy #HPMWed Jun 8 18:34:49 PDT 2011
uvmer @ctsinclair Wicked scary!!! I wanted to be the caregiver through the entire process,
and they were wonderful support givers. #hpmWed Jun 8 18:34:49 PDT 2011
ctsinclair @equijada The main theme to healthy coping with illness is adaptation. #hpmWed Jun 8 18:35:05 PDT 2011
Freshwidow I strongly disagree - Pt, family, etc, can B learn that death is one real outcome. /
@vj_cr don´t think u can be taught how 2 die.. #hpmWed Jun 8 18:35:06 PDT 2011
elderpages RT @MarksPhone: Remember in our lives we learn thru experiences and reflect on
them. This learning we may not have time to reflect #hpmWed Jun 8 18:35:09 PDT 2011
HumpbacksRule #hpm Dying is a lot of work for pt & caregiver. Talking, sharing & teaching are very
important. Helps w the 'control freak' to some degree.Wed Jun 8 18:35:09 PDT 2011
DrSnit Even knowing others have been through the process before & talking it through
leaves breadcrumbs. This matters! #hpmWed Jun 8 18:35:31 PDT 2011
ctsinclair RT @MarksPhone: we learn through experiences and reflect on them; this is a
different learning we may not have time to reflect #hpmWed Jun 8 18:35:34 PDT 2011
jodyms @ctsinclair @equiljada We can't ever forget the entire family context and the cultural
context. #hpmWed Jun 8 18:35:34 PDT 2011
aliciabloom @Freshwidow hear that & yet believe if pt's know what #palliative care is (enhances
QoL & can improve survival) they would be receptive #hpmWed Jun 8 18:35:44 PDT 2011
jfclearywisc RT @vj_CR: @jfclearywisc @ctsinclair in Lat Am informed consents differ quite a lot
"not just the forms, a true discussion!" #hpmWed Jun 8 18:35:54 PDT 2011
MarksPhone What action on reflection does one take when told terminal? That is the step that is
critical to learn how to die. #hpmWed Jun 8 18:36:05 PDT 2011
PracticalWisdom Again also helps patient.RT @jodyms: @ctsinclair @equiljada We cant ever forget
the entire family context and the cultural context. #HPMWed Jun 8 18:36:14 PDT 2011
drseisenberg RT @HumpbacksRule: #hpm Dying is a lot of work for pt & caregiver. Talking,
sharing & teaching are very important. #hpmWed Jun 8 18:36:17 PDT 2011
ctsinclair RT @DesiChicInPA: @ctsinclair we have navi's in neuroscience/brain malignancy,
surgical oncology, lung and esophageal, geriatrics. #hpmWed Jun 8 18:36:26 PDT 2011
vj_CR @MarksPhone @ctsinclair sometimes patients accept the reality and their families
don´t. Then they are the ones to be taught #hpmWed Jun 8 18:36:28 PDT 2011
uvmer Offered the opportunity to meet with someone about end of life care at MGH...way too
early in our fight. Still were clinging to hope #hpmWed Jun 8 18:36:33 PDT 2011
Freshwidow NO. Dying is a family and community process. NOT just one experience. @drsnit -- /
@equijada: dont think dying has to be taught... #hpmWed Jun 8 18:36:45 PDT 2011
vj_CR RT @hollyby: I'm not sure that teaching dying is the right term, maybe guiding people
through the process, since each person's path is different. #hpmWed Jun 8 18:36:45 PDT 2011
ctsinclair @vj_CR So true #hpm
Wed Jun 8 18:36:50 PDT 2011
jfclearywisc RT @hollyby: I'm not sure that teaching dying is the right term, "Doctor" = teacher
(was that my Latin class?) #hpmWed Jun 8 18:36:57 PDT 2011
PracticalWisdom RT @vj_CR: @MarksPhone @ctsinclair sometimes patients accept the reality and
their families don´t. Then they are the ones to be taught #HPMWed Jun 8 18:37:04 PDT 2011
revdoc We can demystify the mechanics of the dying process so that pts/fams are then free
to concentrate on meaning/deal w/emotional cmpts #hpmWed Jun 8 18:37:04 PDT 2011
MarksPhone @vj_CR Great point how to balance family and pateint because that is journey they
are on #hpmWed Jun 8 18:37:11 PDT 2011
elderpages RT @MarksPhone: What action on reflection does one take when told terminal? That
is the step that is critical to learn how to die. #hpmWed Jun 8 18:37:20 PDT 2011
PracticalWisdom RT @MarksPhone: @vj_CR Great point how to balance family and pateint because
that is journey they are on #HPMWed Jun 8 18:37:33 PDT 2011
ctsinclair @uvmer Was that how it was said 'talking to someone about end of life care?' Being
a palliative doc, always curious how HPM introduced #hpmWed Jun 8 18:37:41 PDT 2011
equijada RT @uvmer: Offered the opportunity to meet with someone about end of life care at
MGH...way too early in our fight. Still were clinging to hope #hpmWed Jun 8 18:37:46 PDT 2011
jodyms Dying is a group experience, agree @ Freshwidow NO. Dying is a family and
community process. NOT just one experience #hpmWed Jun 8 18:37:48 PDT 2011
drseisenberg What can med oncs do to support #cancer patients if treatments not working? #hpmWed Jun 8 18:37:53 PDT 2011
ctsinclair RT @revdoc: We can demystify the mechanics of the dying process so pts/fams are
free to concentrate on meaning/deal w/emotional cmpts #hpmWed Jun 8 18:38:02 PDT 2011
revdoc Type slower--you guys are making me dizzy tonight! #hpmWed Jun 8 18:38:05 PDT 2011
PracticalWisdom @Freshwidow: What is one lesson you would like for us to hear from you tonight.
This is a caring group and we are open to learning. #HPMWed Jun 8 18:38:19 PDT 2011
Wed Jun 8 18:38:19 PDT 2011
equijada @uvmer how was it introduced? #hpmWed Jun 8 18:38:21 PDT 2011
Freshwidow Absitively! RT @drsnit: Even knowing others have been through the process before &
talking it through leaves breadcrumbs. This matters! #hpmWed Jun 8 18:38:26 PDT 2011
jfclearywisc Has anyone analysed #hpm tweetchats to examine prevelance of the word "hope"
Comes up over & over #hpmWed Jun 8 18:38:34 PDT 2011
elderpages RT @revdoc: We can demystify the mechanics of dying...T: Our webpage on "Last
Few Days" is one of most visited! http://bit.ly/mfenFJ #hpmWed Jun 8 18:38:35 PDT 2011
HumpbacksRule #hpm I think every1 is different on when/where/how they are ready to discuss the
process. Gotta start where the pt is.Wed Jun 8 18:38:38 PDT 2011
jodyms @revdoc If you're dizzy - imagine me....I am crazed #hpmWed Jun 8 18:38:43 PDT 2011
VillageMemorial Dr. Erik Fromme always puts on a great talk at every #Palliative Care Conference.
Looking forward to Friday's event in Portland. #pdx #hpmWed Jun 8 18:38:51 PDT 2011
revdoc @drseisenberg Either construct a palliative care plan for your pts (and know what
you're doing) or consult HPM EARLY #hpmWed Jun 8 18:39:00 PDT 2011
jodyms YES @PracticalWisdom @Freshwidow: What is one lesson you would like for us to
hear from you .. we are open to learning. #HPMWed Jun 8 18:39:26 PDT 2011
equijada @jfclearywisc interesting, I was just thinking that and how I used hope 10 years ago
compared to now #hpmWed Jun 8 18:39:36 PDT 2011
ctsinclair RT @MarksPhone: What action on reflection does one take when told terminal? "I
have seen as a time of immense growth" #hpmWed Jun 8 18:39:40 PDT 2011
Freshwidow But you are treating this as a RATIONAL factual problem. It's NOT. RT @aliciabloom:
if pts know what #palliative is they'd B receptive #hpmWed Jun 8 18:39:40 PDT 2011
vj_CR @ctsinclair after I read the first ICF in english I was surprised to see how down to
the facts it was #hpmWed Jun 8 18:39:45 PDT 2011
elderpages RT @MarksPhone: @vj_CR Great point how to balance family and pateint because
that is journey they are on #hpmWed Jun 8 18:39:50 PDT 2011
drseisenberg RT @HumpbacksRule: #hpm I think every1 is different on when/where/how they are
ready 2 discuss process. Gotta start where the pt is. #hpmWed Jun 8 18:39:55 PDT 2011
JoshGriffin RT @jodyms: Dying is a group experience, agree @ Freshwidow NO. Dying is a
family and community process. NOT just one experience #hpmWed Jun 8 18:39:57 PDT 2011
vj_CR RT @MarksPhone: Remember in our live we learn through experiences and reflect
on them this is a different learning we may not have time to reflect #hpmWed Jun 8 18:39:57 PDT 2011
jodyms RT @drseisenberg: What can med oncs do to support #cancer patients if treatments
not working? #hpmWed Jun 8 18:40:05 PDT 2011
ctsinclair RT @revdoc: Type slower--you guys are making me dizzy tonight! "that's because
this chat is a rockin! Having a great time!" #hpmWed Jun 8 18:40:18 PDT 2011
MarksPhone @HumpbacksRule I totally agree where is the patient? w/o having studied it there is
a tipping point in understanding which happens #hpmWed Jun 8 18:40:33 PDT 2011
equijada @VillageMemorial I heart Erik. Please send him my regards. #hpmWed Jun 8 18:40:43 PDT 2011
aliciabloom we educate patients & families about dying process to support acceptance & guide
the experience. never forget every process is unique. #hpmWed Jun 8 18:40:53 PDT 2011
DrSnit @HumpbacksRule You and @Freshwidow are SO SO SO on tonight with your
insight!!!! #hpmWed Jun 8 18:40:53 PDT 2011
PracticalWisdom @Freshwidow Would you like for us to learn one lesson? I"m sure we can slow
down to listen. #HPMWed Jun 8 18:41:09 PDT 2011
jfclearywisc RT @drseisenberg: What can med oncs do to support #cancer patients if treatments
not working? "Define goal of therapy early!!" #hpmWed Jun 8 18:41:10 PDT 2011
ctsinclair RT @jfclearywisc: Anyone analysed #hpm tweetchats to examine prevelance of the
word "hope" Comes up over & over "I have transcripts!" #hpmWed Jun 8 18:41:14 PDT 2011
authordhallman #hpm A lesson - coordinate well the various care services so family can focus on
patient.
authordhallmanpatient.Wed Jun 8 18:41:15 PDT 2011
DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking forward to reading it
#hpmWed Jun 8 18:41:19 PDT 2011
joshgriffin RT @ctsinclair: RT @revdoc: Type slower--you guys are making me dizzy tonight!
"that's because this chat is a rockin! Having a great time!" #hpmWed Jun 8 18:41:22 PDT 2011
revdoc @drseisenberg Have a sx mgmt assessment and plan for every pt every visit--as
important as what CTX does pt need #hpmWed Jun 8 18:41:26 PDT 2011
jodyms @drseisenberg My thought - patients/familys are afraid that their PCP & med onc will
abandon them. Period. #hpm Very real.Wed Jun 8 18:41:32 PDT 2011
ctsinclair RT @DrSnit: @HumpbacksRule You and @Freshwidow are SO SO SO on tonight
with your insight!!!! "Seconded!" #hpmWed Jun 8 18:41:36 PDT 2011
elderpages RT @authordhallman: #hpm A lesson - coordinate well the various care services so
family can focus on patient. #hpmWed Jun 8 18:41:40 PDT 2011
equijada @DrSnit @HumpbacksRule @Freshwidow I learn so much from you. #hpmWed Jun 8 18:41:52 PDT 2011
HumpbacksRule Thanks! >> @DrSnit @Freshwidow You and @Freshwidow are SO SO SO on tonight
with your insight!!!! #hpmWed Jun 8 18:41:56 PDT 2011
vj_CR @MarksPhone balance when you are not sick is hard enough...... imagine when you
are #hpmWed Jun 8 18:41:57 PDT 2011
PracticalWisdom Thank you for this lesson.RT @authordhallman: #hpm A lesson - coordinate well the
various care services so family can focus on patient. #HPMWed Jun 8 18:41:58 PDT 2011
hellen177 RT @uvmer: Offered the opportunity to meet with someone about end of life care at
MGH...way too early in our fight. Still were clinging to hope #hpmWed Jun 8 18:41:58 PDT 2011
MarksPhone @ctsinclair That is a great point how can we quantify it so we can understand it
better #hpmWed Jun 8 18:42:10 PDT 2011
vj_CR RT @revdoc: Type slower--you guys are making me dizzy tonight! #hpm | hehe me
too!!!!Wed Jun 8 18:42:24 PDT 2011
LJaneTn @jodyms #HPM fear is often the place where patients start.Wed Jun 8 18:42:26 PDT 2011
drseisenberg RT @vj_CR: @MarksPhone balance when you are not sick is hard enough......
imagine when you are #hpmWed Jun 8 18:42:38 PDT 2011
PracticalWisdom It's one of the reasons I respect all of you. RT @equijada: @DrSnit
@HumpbacksRule @Freshwidow I learn so much from you. #HPMWed Jun 8 18:42:40 PDT 2011
DrSnit @jodyms agreed! @drseisenberg Fear of abandonment and guilt is far bigger than
fear of pain #hpmWed Jun 8 18:42:43 PDT 2011
jodyms We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc ..prevelance of
the word "hope" Comes up over & overWed Jun 8 18:42:44 PDT 2011
drseisenberg RT @LJaneTn: @jodyms #HPM fear is often the place where patients start. #hpmWed Jun 8 18:42:51 PDT 2011
uvmer @ctsinclair To us,knew prognosis was grim but there are always miracles out
there.Once end of life care came up,hour glass was running #hpmWed Jun 8 18:42:58 PDT 2011
ctsinclair RT @revdoc: @drseisenberg Have a sx mgmt assessment and plan for every pt
every visit--as important as what CTX does pt need "Yup!" #hpmWed Jun 8 18:42:59 PDT 2011
VillageMemorial We like to remember Kubler-Ross' DABDA doesn't always happen in order. #hpmWed Jun 8 18:43:10 PDT 2011
equijada I think we need to have a journal club on hope/hubris. #hpmWed Jun 8 18:43:24 PDT 2011
ctsinclair @revdoc @drseisenberg But important to realize the oncologist may have enough to
do with just focusing on the anti-cancer treatment #hpmWed Jun 8 18:43:28 PDT 2011
PracticalWisdom Profound~such an important Factor! RT @vj_CR: @MarksPhone balance when you
are not sick is hard enough...... imagine when you are #HPMWed Jun 8 18:43:30 PDT 2011
aliciabloom sometimes we have to help patients & families reframe their hope. there are many
kinds of healing. #hpmWed Jun 8 18:43:33 PDT 2011
DrSnit RT @LJaneTn: @jodyms #HPM fear is often the place where patients start.Wed Jun 8 18:43:42 PDT 2011
Wed Jun 8 18:43:42 PDT 2011
hollyby RT @jodyms: We need a reality-based hope in #HPM @ctsinclair MT @jfclearywisc
..prevelance of the word "hope" Comes up over & over #hpmWed Jun 8 18:43:48 PDT 2011
elderpages RT @equijada: I think we need to have a journal club on hope/hubris. #hpmWed Jun 8 18:43:50 PDT 2011
PracticalWisdom G8 Idea RT @equijada: I think we need to have a journal club on hope/hubris. #HPMWed Jun 8 18:43:52 PDT 2011
jodyms @drseisenberg @LJaneTn That is true and sounds good but it boils down to things
like this: who helps and when? #hpmWed Jun 8 18:44:18 PDT 2011
jodyms EXCELLENT RT @PracticalWisdom G8 Idea RT @equijada: I think we need to have
a journal club on hope/hubris. #HPMWed Jun 8 18:44:39 PDT 2011
ihatebreastcanc @drseisenberg #cancer Be honest, don't give false hope. Know patient's grasp of
his/her disease. Don't wail til very late for eol talk #hpmWed Jun 8 18:44:40 PDT 2011
hollyby RT @aliciabloom: sometimes we have to help patients & families reframe their
hope. there are many kinds of healing. '...and miracles' #hpmWed Jun 8 18:44:41 PDT 2011
elderpages RT @DrSnit: RT @LJaneTn: @jodyms #HPM fear is often the place where patients
start....T: What helps move to acceptance/transcendence? #hpmWed Jun 8 18:44:45 PDT 2011
Pallimed Articles on miracles and spirituality/religion in health care from Pallimed
http://hpm.md/k98Z6D cc@uvmer #hpmWed Jun 8 18:44:45 PDT 2011
jfclearywisc @uvmer @ctsinclair Miracles can come in many shapes and forms! "What do you
mean by a miracle" is a teachable questions to residents #hpmWed Jun 8 18:44:45 PDT 2011
JohnGirdwood http://ow.ly/1tC6qX RT @ctsinclair: RT @jfclearywisc: Anyone analysed #hpm
tweetchats to examine prevelance of the word "hope"Wed Jun 8 18:44:48 PDT 2011
PracticalWisdom RT @aliciabloom: sometimes we have to help patients & families reframe their
hope. there are many kinds of healing. #HPMWed Jun 8 18:44:52 PDT 2011
DrSnit @VillageMemorial I like to remember that though I adore her, Kubler-Ross's DABDA
doesn't happen for everyone and is culturally bound. #hpmWed Jun 8 18:45:02 PDT 2011
Satchwill
"@revdoc: T1 Maybe we need doulas (sp?) for death as well as for birthing?
#hpm">excellent idea!Wed Jun 8 18:45:08 PDT 2011
aliciabloom @hollyby so true! #hpmWed Jun 8 18:45:23 PDT 2011
revdoc @ctsinclair @drseisenberg Then involve a dedicated HPM consultant in process
before the active tx "fails" #hpmWed Jun 8 18:45:27 PDT 2011
uvmer @equijada At end of an office visit....kinda "oh, by the way, would you like to
participate in an end of life discussion w/ some docs...#hpmWed Jun 8 18:45:39 PDT 2011
VillageMemorial Anyone in the group attending funeral of Dr. #Kevorkian this Friday? #hpmWed Jun 8 18:45:41 PDT 2011
Intlphysicians RT @fischmd: symptom science website: ECOG Symptom Outcomes and Practice
Patterns (SOAPP) study, ecogsoapp.com, http://ow.ly/5dlKQ , #hpmWed Jun 8 18:46:16 PDT 2011
drseisenberg RT @revdoc: @ctsinclair @drseisenberg Then involve a dedicated HPM consultant
in process before the active tx "fails" #hpmWed Jun 8 18:46:16 PDT 2011
LJaneTn @jodyms #HPM existential fear dominates- strikes at the heart of hopeWed Jun 8 18:46:18 PDT 2011
jfclearywisc #alicebucketlist hit 1.43% of tweets for last 24 hours at 1730 CDT #hpmWed Jun 8 18:46:22 PDT 2011
aliciabloom we also need to be clear about what a "successful" treatment is-- patients often
assume success = cure, which may not be the case. #hpmWed Jun 8 18:46:23 PDT 2011
uvmer @equijada Absolutely scared the shit out of us. Neither one of us could speak, and
finally I said no thank you. #hpmWed Jun 8 18:46:31 PDT 2011
GroundSwellAus sorry I'm chiming in late I just wanted to happy birthday pallimed #hpmWed Jun 8 18:46:31 PDT 2011
elderpages Dr. Casarret suggests talking first about deliverables of hospice (nurse visits, aide
visits, SW). Once buy-in, then mention hospice. #hpmWed Jun 8 18:46:43 PDT 2011
equijada RT @uvmer: @equijada At end of an office visit....kinda "oh, by the way, would you
like to participate in an end of life discussion w/ some docs...#hpmWed Jun 8 18:46:46 PDT 2011
Wed Jun 8 18:46:46 PDT 2011
drseisenberg RT @LJaneTn: @jodyms #HPM existential fear dominates- strikes at the heart of
hope #hpmWed Jun 8 18:46:49 PDT 2011
HumpbacksRule #hpm @LJaneTn @jodyms Absolutely & sometimes fear looks like something else.
Have to listen to pt>> fear is often the place where patients..Wed Jun 8 18:46:53 PDT 2011
MarksPhone Long ago in oncology pharma adriamycin nationally recognized oncologist said as
did Jimmie Holland every cancer patient reacts diff #hpmWed Jun 8 18:46:55 PDT 2011
jodyms The things I'm learning: I've never heard of a #HPM consultant.Wed Jun 8 18:47:08 PDT 2011
equijada @uvmer yes, I would not accept that either. #hpmWed Jun 8 18:47:09 PDT 2011
ihatebreastcanc RT @ctsinclair: RT @revdoc: We can demystify the mechanics of the dying process
so pts/fams are free to concentrate on meaning/deal w/emotional cmpts #hpmWed Jun 8 18:47:14 PDT 2011
elderpages RT @aliciabloom: we need to define "successful" treatment is-- patients often
assume success = cure, which may not be the case. #hpmWed Jun 8 18:47:16 PDT 2011
PracticalWisdom Wise RT @aliciabloom: we also need 2 B clear what a "successful" treatment is
patients often assume success = cure may not be the case. #HPMWed Jun 8 18:47:17 PDT 2011
JohnGirdwood Good thought, i'm nearby RT @VillageMemorial: Anyone in the group attending
funeral of Dr. #Kevorkian this Friday? #hpmWed Jun 8 18:47:33 PDT 2011
VillageMemorial @DrSnit Can you talk about the cultural differences of DABDA? #hpmWed Jun 8 18:47:34 PDT 2011
hollyby Yahoo! RT @GroundSwellAus: sorry Im chiming in late I just wanted to happy
birthday pallimed #hpmWed Jun 8 18:47:35 PDT 2011
Freshwidow Absolutely. RT @drseisenberg: involve a dedicated HPM consultant in process
before the active tx "fails" #hpmWed Jun 8 18:47:37 PDT 2011
Pallimed RT @GroundSwellAus: sorry I'm chiming in late I just wanted to happy birthday
pallimed #hpm "Hey thanks! 6 years of blogging!"Wed Jun 8 18:47:38 PDT 2011
ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way
ihatebreastcanc RT @ctsinclair: RT @DrSnit: Many fear if they dont have "hope" or a act a certain way
during illness they WILL be abandoned. Who teaches us to die? #hpm
Wed Jun 8 18:47:50 PDT 2011
Gregmogel RT @LJaneTn: @jodyms #HPM fear is often the place where patients start.Wed Jun 8 18:47:55 PDT 2011
BCSisterhood @jodyms Loved one diequickly vs prolonged illness-shock of 1st way mind blowing
& 2nd u have time to prepare. Lost husbands 2 each way. #hpmWed Jun 8 18:48:09 PDT 2011
drseisenberg RT @MarksPhone: Long ago nationally recognized oncologist said as did Jimmie
Holland every cancer patient reacts diff #hpmWed Jun 8 18:48:10 PDT 2011
uvmer @equijada It was tough. #hpmWed Jun 8 18:48:16 PDT 2011
DrSnit @jodyms I get DM's all the time from patients in need of hospice and have NO IDEA
where to go or how to deal with it. #hpmWed Jun 8 18:48:16 PDT 2011
ctsinclair RT @jodyms: The things Im learning: Ive never heard of a #HPM consultant. 'Really!?
I'm one! Seeing more patients ask for us." #hpmWed Jun 8 18:48:23 PDT 2011
revdoc @Pallimed Happy birthday! #hpmWed Jun 8 18:48:26 PDT 2011
PracticalWisdom Like the thought of analyzing Tweetchat afterward. Learned a great deal of ways I
could improve/listen better as moderator after chat #HPMWed Jun 8 18:48:34 PDT 2011
vj_CR @Freshwidow sorry.... I forgot the #hpm .... I get your point..... just think teach is no
the word....Wed Jun 8 18:48:46 PDT 2011
equijada @Gregmogel @LJaneTn @jodyms Fear. I personally have a lot of it. I'm learning and
growing. #hpmWed Jun 8 18:48:50 PDT 2011
DrSnit @VillageMemorial We are in a chat right now. Using the #hpm hastag. Will talk later.
Thanks.Wed Jun 8 18:48:52 PDT 2011
GroundSwellAus @Pallimed 6 years! wow! #hpmWed Jun 8 18:48:56 PDT 2011
HumpbacksRule Such a good point. @DrSnit @VillageMemorial I like to remember that though I
adore her, Kubler-Ross's DABDA doesn't...#hpmWed Jun 8 18:49:02 PDT 2011
PinkRibbonBlues
RT @elderpages @aliciabloom we need to define "successful" treatment- patients
often assume success = cure, which may not be the case. #hpmWed Jun 8 18:49:03 PDT 2011
JohnGirdwood Volunteers too!!! RT @elderpages: Dr. Casarret suggests talking first about
deliverables of hospice (nurse visits, aide visits, SW). #hpmWed Jun 8 18:49:15 PDT 2011
aliciabloom effective conversations re: #hospice don't start w/ word. can't drop the "h-bomb" right
away. establish goals & determine needs 1st. #hpmWed Jun 8 18:49:18 PDT 2011
PracticalWisdom They trust U.RT @DrSnit: @jodyms I get DMs all the time from pt's in need of
hospice have NO IDEA where to go or how to deal with it. #HPMWed Jun 8 18:49:18 PDT 2011
jodyms My thought is if more survivors understand this - when we're well - the mystery is
easier to accept when it does happen #hpmWed Jun 8 18:49:32 PDT 2011
ctsinclair RT @DrSnit: I get DMs all the time from patients in need of #hospice & have NO
IDEA where to go or how to deal with it. "wow!" really?" #hpmWed Jun 8 18:49:40 PDT 2011
uvmer @BCSisterhood Strongly disagree! Can not prepare for the loss of someone you
have spent your whole adult life with, and watch them die. #hpmWed Jun 8 18:49:55 PDT 2011
elderpages RT @vj_CR: @Freshwidow I get your point..... just think teach is no the word.... T:
Exploring? Sharing? #hpmWed Jun 8 18:50:06 PDT 2011
ctsinclair @DrSnit There are a ton of us in social media who can help you with your hospice
referral challenge. I would love to tackle this. #hpmWed Jun 8 18:50:15 PDT 2011
jfclearywisc @ctsinclair @jodyms COnsultant=Attending in many commonwealth countries
#hpmWed Jun 8 18:50:31 PDT 2011
hollyby @jodyms Ppl need to know we focus on whole person & symptom control, & may
even help people complete symptom-causing curative therapy. #hpmWed Jun 8 18:50:37 PDT 2011
vj_CR @PracticalWisdom so true! #hpm and I think it´s part of the tweetchat point, trying to
learn from itWed Jun 8 18:50:39 PDT 2011
DrSnit @ctsinclair YES PLEASE #HPMWed Jun 8 18:50:43 PDT 2011
revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with
revdoc @aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with
incurable dz, tho, so there is no big "give up" later #hpm
Wed Jun 8 18:50:47 PDT 2011
drseisenberg Every single one reacted sooooo differently today #hpmWed Jun 8 18:51:00 PDT 2011
jodyms Critical issue: T4: How do we share the #hpm mission to those in need of hospice?
Don't we all have a responsibility?Wed Jun 8 18:51:04 PDT 2011
elderpages RT @aliciabloom: effective conversations re: #hospice cant drop the "h-bomb" first.
establish goals & determine needs 1st...T: YES! #hpmWed Jun 8 18:51:13 PDT 2011
ctsinclair @vj_CR so you don't have to forget the #hpm use http://Tweetchat.com/room/hpm
#hpmWed Jun 8 18:51:13 PDT 2011
jodyms RT @ctsinclair: @DrSnit There are a ton of us in social media who can help you with
your hospice referral challenge. I would love to tackle this. #hpmWed Jun 8 18:51:18 PDT 2011
MarksPhone if you look at #hcsmvac they are using a grass roots SM effort to increase flu vac
rates in MO can we model that idea about hospice? #hpmWed Jun 8 18:51:28 PDT 2011
GroundSwellAus is there no "peak" org in the US that has a listing of all hospice? #hpmWed Jun 8 18:51:28 PDT 2011
jfclearywisc !!!@aliciabloom Onc needs to make HPM part of the initial tx plan for anyone with
incurable dz, tho, so there is no big "give up" later #hpmWed Jun 8 18:51:35 PDT 2011
equijada @DrSnit @ctsinclair let me know as well. #hpmWed Jun 8 18:51:38 PDT 2011
HumpbacksRule RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for
anyone with incurable dz, tho, so there is no big "give up" later #hpmWed Jun 8 18:51:46 PDT 2011
ctsinclair RT @drseisenberg: Every single one reacted sooooo differently today "That can be
emotionally draining." #hpmWed Jun 8 18:51:53 PDT 2011
mollrob RT @DoctorFisher Just ordered "The Art of Dying" by my friend @mollrob looking
forward to reading it #hpm // Thanks Doc!Wed Jun 8 18:51:59 PDT 2011
PracticalWisdom Continuous Learning.RT @vj_CR: @PracticalWisdom so true! #hpm and I think it´s
part of the tweetchat point, trying to learn from it #HPMWed Jun 8 18:52:05 PDT 2011
aliciabloom MT @ctsinclair: @DrSnit There are a ton of us in SoMe who can help w/ hospice
referral challenge. I would love 2 tackle this. "me too!" #hpmWed Jun 8 18:52:13 PDT 2011
ctsinclair @MarksPhone Will need to look into #hcsmvac #hpmWed Jun 8 18:52:15 PDT 2011
jodyms Great points. I want to write about this @elderpages @aliciabloom: effective
conversations re: #hospice..est. goal...t..T: YES! #hpmWed Jun 8 18:52:23 PDT 2011
VillageMemorial Any thoughts as to how male caregivers feel about being called 'doulas'? Have
heard word 'whisperer' being thrown around. #hpmWed Jun 8 18:52:26 PDT 2011
authordhallman #hpm re T4: that's why I decided to publish "August Farewell", to promote PC
education/optionsWed Jun 8 18:52:39 PDT 2011
vj_CR RT @MarksPhone: if you look at #hcsmvac they are using a grass roots SM effort to
increase flu vac rates in MO can we model that idea about hospice? #hpmWed Jun 8 18:52:52 PDT 2011
equijada “@drseisenberg: Every single one reacted sooooo differently today #hpm” Many
different pages. Part of the difficulty of transition. .Wed Jun 8 18:52:54 PDT 2011
BCSisterhood @jodyms Yes, we all have a responsibility & as baby boomers age, we need to
reach out & do what we can to help one another. #hpmWed Jun 8 18:52:57 PDT 2011
Pallimed Find a Provider - The National #Hospice and Palliative Care Organization
http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnitWed Jun 8 18:53:02 PDT 2011
jodyms Ditto - we are all in this together:) @equijada @DrSnit @ctsinclair let me know as
well. #hpmWed Jun 8 18:53:08 PDT 2011
jfclearywisc @GroundSwellAus Palliative Coalition. NHPCO, AAHPM, HPNA, CAPC and others.
Given state power, no huge Federal peak body (jfclearyaus) #hpmWed Jun 8 18:53:28 PDT 2011
GroundSwellAus @Pallimed @DrSnit cheers #hpmWed Jun 8 18:53:33 PDT 2011
jodyms RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care
Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnitWed Jun 8 18:53:59 PDT 2011
joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice
joegormally RT @aliciabloom: stop perpetuating the everything/treatment vs. nothing/hospice
dichotomy #hpm
Wed Jun 8 18:54:03 PDT 2011
VillageMemorial RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care
Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnitWed Jun 8 18:54:12 PDT 2011
vj_CR RT @ctsinclair: @vj_CR so you don't have to forget the #hpm use http://bit.ly/b1nePp
#hpm || TY :)Wed Jun 8 18:54:15 PDT 2011
hollyby @Pallimed @GroundSwellAus @DrSnit http://www.palliativedoctors.org/ #hpmWed Jun 8 18:54:18 PDT 2011
DrSnit RT @Pallimed: Find a Provider - The National #Hospice and Palliative Care
Organization http://hpm.md/kJY2NZ #hpm cc @GroundSwellAus @DrSnitWed Jun 8 18:54:20 PDT 2011
doctatum Pulled away by patient issue. Looks like i missed great #hpm chat. Transcript
coming?Wed Jun 8 18:54:35 PDT 2011
PracticalWisdom RT @vj_CR:RT @MarksPhone: if U look #hcsmvac they R using grass roots SM
effort 2 increase flu vac rates MO can we model idea hospice? #HPMWed Jun 8 18:54:41 PDT 2011
ctsinclair @vj_CR Also makes it easy to favorite, and reply and retweet! Love it! #hpmWed Jun 8 18:54:48 PDT 2011
jodyms What a lightning talk...so much to say about bridging needs of patients with
understanding #hpmWed Jun 8 18:54:52 PDT 2011
joshgriffin RT @revdoc: @aliciabloom Onc needs to make HPM part of the initial tx plan for
anyone with incurable dz, tho, so there is no big "give up" later #hpmWed Jun 8 18:54:53 PDT 2011
equijada @uvmer Sucks. Sorry to hear it rolled that way. #hpmWed Jun 8 18:55:00 PDT 2011
elderpages Anyone know about Concerns Without Borders? They are doing grassroots palliative
care in India. Website not real helpful :-( #hpmWed Jun 8 18:55:01 PDT 2011
MarksPhone This topic as a communication strategy needs to be considered by segment
Terminal patient vs. not vs. family vs. way before death #hpmWed Jun 8 18:55:06 PDT 2011
GroundSwellAus @elderpages yes well! #hpmWed Jun 8 18:55:26 PDT 2011
joegormally I'm sorry I missed this chat now.. it looked like a great discussion #hpmWed Jun 8 18:55:38 PDT 2011
PracticalWisdom @vj_CR @MarksPhone @doctatum is a Mo MD. #HPMWed Jun 8 18:55:49 PDT 2011
jodyms Spot on RT MarksPhone This topic as a communication strategy needs to be
considered by .... way before death #hpmWed Jun 8 18:55:49 PDT 2011
dspacl Sorry to be getting here late, mates #hpmWed Jun 8 18:55:55 PDT 2011
GroundSwellAus @elderpages what do you want to know? #hpmWed Jun 8 18:56:04 PDT 2011
vj_CR @ctsinclair thanks! makes it easier :) #hpmWed Jun 8 18:56:05 PDT 2011
DrSnit @hollyby thank you @Pallimed both ! #hpmWed Jun 8 18:56:10 PDT 2011
PracticalWisdom RT @jodyms: Spot on RT MarksPhone This topic as a communication strategy
needs to be considered by .... way before death #HPMWed Jun 8 18:56:16 PDT 2011
jodyms We probably need to start wrapping up....loose thoughts, deep thoughts, take away
from tonight's #hpm discussion?Wed Jun 8 18:56:20 PDT 2011
InpatientMed RT @Pallimed: Death doulas in the NY Times from Pallimed: A Hospice and
Palliative Medicine Blog http://hpm.md/lSsRkM #hpm cc @revdocWed Jun 8 18:56:31 PDT 2011
JoshGriffin RT @hollyby: @Pallimed @GroundSwellAus @DrSnit
http://www.palliativedoctors.org/ #hpmWed Jun 8 18:56:32 PDT 2011
daitpcg RT @aliciabloom: effective conversations re: #hospice don't start w/ word. can't drop
the "h-bomb" right away. establish goals & determine needs 1st. #hpmWed Jun 8 18:56:34 PDT 2011
MarksPhone Canadian oncologist told me that we've lost the understanding of death when we
moved off the farm. it is not longer part of life 2day #hpmWed Jun 8 18:56:41 PDT 2011
ctsinclair RT @doctatum: Pulled away by patient issue. Looks like i missed great #hpm chat.
Transcript coming? "Yes" #hpmWed Jun 8 18:56:44 PDT 2011
Wed Jun 8 18:56:44 PDT 2011
jfclearywisc @jodyms Well done!! #hpmWed Jun 8 18:56:51 PDT 2011
HumpbacksRule Yes! >@MarksPhone This topic as a communication strategy needs to be
considered by segment Terminal patient vs. not vs. family vs. .... #hpmWed Jun 8 18:56:54 PDT 2011
elderpages RT @GroundSwellAus: @elderpages what do you want to know? T: Unable to find
detailed description of activities. URL would be great! #hpmWed Jun 8 18:56:56 PDT 2011
ctsinclair RT @dspacl: Sorry to be getting here late, mates 'no problem, brother!' #hpmWed Jun 8 18:56:56 PDT 2011
DrSnit @jodyms WOW! Thank you so so so much for the amazing topics tonight! I've
missed you so much!! xo #hpmWed Jun 8 18:56:59 PDT 2011
dspacl I have an idea to describe what we do in terms of the latest lexicon of #HCR #HPMWed Jun 8 18:57:08 PDT 2011
hollyby @jodyms Thanks so much Jody! Wonderful chat. Thanks to everyone for joining in
with all your thoughts! #hpmWed Jun 8 18:57:52 PDT 2011
jodyms Wonderful message via @hollyby and others in #HPM: survivors, this is wholistic
care...kind and gentle, delivered by incredible people.Wed Jun 8 18:57:52 PDT 2011
dspacl Goal Oriented = Patient Centered = GO PC #hpmWed Jun 8 18:57:53 PDT 2011
PracticalWisdom Confetti Tweetchat Seems 2 me. Agree @Drsnit?RT @dspacl: I have an idea to
describe what we do in terms of the latest lexicon of #HCR #HPMWed Jun 8 18:57:53 PDT 2011
ctsinclair @aliciabloom Never heard the term 'H-bomb' I am stealing that one. With credit to
you of course. #hpmWed Jun 8 18:57:53 PDT 2011
MarksPhone That is the issue we are so far removed from death that when we face it it's in our
grill We no longer grow up with farm animals dying #hpmWed Jun 8 18:57:53 PDT 2011
GroundSwellAus @elderpages http://concernwithoutborders.org/initiatives.htm #hpmWed Jun 8 18:58:02 PDT 2011
JohnGirdwood @hollyby hospice patient on chemotherapy? Not where I'm at. Maybe I read it
wrong... But at my hospice, no curative on primary dx #hpm
wrong... But at my hospice, no curative on primary dx #hpmWed Jun 8 18:58:02 PDT 2011
jodyms RT @MarksPhone: Canadian oncologist told me that we've lost the understanding of
death when we moved off the farm. it is not longer part of life 2day #hpmWed Jun 8 18:58:05 PDT 2011
elderpages Did we get to actionable items concerning abandonement (and not abandoning?)
#hpmWed Jun 8 18:58:14 PDT 2011
HumpbacksRule @jodyms #hpm Thank you so much! I always learn from this chat and tonight was
wonderful. Great job!Wed Jun 8 18:58:21 PDT 2011
ctsinclair RT @MarksPhone: Canadian oncologist told me that weve lost the understanding of
death when we moved off the farm. 'have heard also' #hpmWed Jun 8 18:58:28 PDT 2011
apjonas Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of my pts daily:
allow them to hear the word from MD for conditioning #hpmWed Jun 8 18:58:29 PDT 2011
jodyms @DrSnit Thank you my friend. I wish I could have kept up with all your incredible
#hpm thoughts & comments.Wed Jun 8 18:58:30 PDT 2011
MarksPhone @JohnGirdwood it can be palliative? #hpmWed Jun 8 18:58:41 PDT 2011
PinkRibbonBlues RT Our culture avoids it. @MarksPhone we've lost the understanding of death when
we moved off the farm. no longer part of life 2day #hpmWed Jun 8 18:58:41 PDT 2011
GroundSwellAus @elderpages have been to IPM in Kerala a coupld of times too! #hpmWed Jun 8 18:58:45 PDT 2011
ctsinclair RT @elderpages: Did we get to actionable items concerning abandonement (and
not abandoning?) 'no, explore next time?' #hpmWed Jun 8 18:58:52 PDT 2011
aliciabloom @ctsinclair gets people laughing when i'm lecturing. feel free to use it anytime!
#hpmWed Jun 8 18:58:54 PDT 2011
dspacl Let me try that again! Goal Oriented + Patient Centered = GO PC #hpmWed Jun 8 18:58:56 PDT 2011
equijada @jodyms thanks for hosting. thanks! #hpmWed Jun 8 18:58:59 PDT 2011
VillageMemorial Hope to see those of you heading to the Statewide #Palliative Care Conf. at the
Oregon Convention Center this Fri. #hpm
Wed Jun 8 18:59:03 PDT 2011
vj_CR We should all do our best so that death is a tranquile journey surrounded by pple
who care abt you #hpmWed Jun 8 18:59:07 PDT 2011
drseisenberg HPM = Humanity Providing Moments #hpmWed Jun 8 18:59:15 PDT 2011
jodyms We didn't & must @elderpages Did we get to actionable items concerning
abandonement (and not abandoning?) #hpmWed Jun 8 18:59:15 PDT 2011
jfclearywisc RT @apjonas: Pat Jonas, Family Doc, OH, lurking. I mention death to about 20% of
pts daily: allow them to hear the word "conditioning" #HPMWed Jun 8 18:59:20 PDT 2011
equijada @DrSnit @jodyms Snit - you rock my socks off *confetti* #hpmWed Jun 8 18:59:22 PDT 2011
elderpages RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC#hpm
#hpmWed Jun 8 18:59:24 PDT 2011
PracticalWisdom @jodyms I think a great way to measure the success of a TweetChat is to see how
many folks continue to stay engaged/learn/Listen A! 2 U #HPMWed Jun 8 18:59:26 PDT 2011
ctsinclair RT @dspacl: Let me try that again! Goal Oriented + Patient Centered = GO PC
"Nice!" #hpmWed Jun 8 18:59:33 PDT 2011
elderpages RT @drseisenberg: HPM = Humanity Providing Moments #hpmWed Jun 8 18:59:37 PDT 2011
PracticalWisdom Lovely thought RT @vj_CR: We should all do our best so that death is a tranquile
journey surrounded by pple who care abt you #HPMWed Jun 8 18:59:45 PDT 2011
uvmer @equijada Thanks.Not sure of best way to handle it.The way I found out about
palliative care/hospice, in the end, worked best for us/me #hpmWed Jun 8 18:59:55 PDT 2011
drseisenberg RT @equijada: @DrSnit @jodyms Snit - you rock my socks off *confetti* #hpmWed Jun 8 18:59:58 PDT 2011
