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EDM Forum - Consumer-Patient-Researcher Roundtable

Lucy A. Savitz, Ph.D., MBAPreviewing

Recommendations for Transparent Reporting of Data Quality Assessment Results for Observational Healthcare DataM. Kahn and E Holve http://repository.academyhealth.org/egems/    forthcoming

#HSR10year #LASavitz

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Questioning Data Quality•Growing use of electronic data for studies using observational clinical and administrative data for secondary data analysis

•Question of “fitness for use”•Expanded Learning Healthcare Collaboratives combine dataoWorkflow differencesoRecording biasesoVariations in data collected

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Thought leader input solicited via:

Two face-to-face meetingsConsumer-Patient StakeholdersComparative Effectiveness Research  Stakeholders

Multiple webinars aimed at HSR communityOpen access, online wiki

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Key Findings from Stakeholder Meetings

• Implications of poor data quality (DQ)

•Barriers to conducting & reporting DQ assessments

• Interest in involving patients and policy makers in DQ, across all stages of the data life cycle

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Exploring the Topic of Data Quality

•How to define the current data quality “problem,” especially in the context of multi-institutional data sharing networks?

•Harvest concrete examples from research and quality improvement networks illustrating the potential value of developing a data quality framework.

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Data Quality Reporting Framework

•Systematic approach for reporting on DQ

•Describes DQ stewardship

•Provides 20 DQ reporting recommendations

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More can be found at:

http://repository.academyhealth.org/egems/  

http://www.edm-forum.org/home

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