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Transcript of 1 Confidentiality & Privacy Ethics Champions Program February 4, 2009 John F. Wallenhorst, Ph.D....
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Confidentiality & Privacy
Ethics Champions ProgramFebruary 4, 2009
John F. Wallenhorst, Ph.D.Vice President, Mission & Ethics
Bon Secours Health System
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Purpose
Understand origins of the right to privacy, and the obligation, and limits, of confidentiality
Explore practical applications for health care through case study review and discussion
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Case Study – Mr. Jones 60 year-old man admitted with a heart attach; very
poor prognosis He asks that you not share his medical
information with his wife; he does not think “she will be able to take it”
His wife sees you in the hallway and asks you about her husband’s prognosis What would you tell her? What are your required to do legally?
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Privacy
Right to be left alone
and free from unwanted publicity.
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Right to Privacy Foundational as it relates to the obligation of
confidentiality Flows from fundamental rights to life, liberty
and property In health care, most often the right to control
access to and distribution of information Violations of the right to privacy often involve
obtaining information without permission
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Privacy in Health Care Persons have a right to decide who has
access to their bodies or information related to delivery of care
Unless patient gives explicit permission there is a proscription against sharing information Takes into account a special concern for those
who are not capable of protecting themselves
Keeping information to themselves.
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Confidentiality
Obligation not to pass along information about another person without their
permission.
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Obligation of Confidentiality Different than right to privacy But grounded in it Rooted in fiduciary relationships;
relationships of trust Two-fold focus:
Respect for privacy by restricting access to information
Respecting and reinforcing bonds of trust Supporting the care process
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Catholic Health Care
Dignity of the Person Community Justice Prudence Benefit - Burden
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Catholic Health Care
Ethical & Religious DirectivesPart Three: The Professional-Patient Relationship=RelationshipMutual respect, trust, honesty, appropriate
confidentialityDirective 34: respect for privacy and confidentiality
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Codification Hippocratic Oath
“Whatever, in connection with my professional service, or not in connection with it, I see or hear, in the life of men, which ought not to be spoken of abroad, I will not divulge, as reckoning that all such should be kept secret. While I continue to keep this Oath unviolated, may it be granted to me to enjoy life and the practice of the art, respected by all men, in all times. But should I trespass and violate this Oath, may the reverse be my lot."
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Codification American Medical Association
“That whatsoever you shall see or hear of the lives of men or women which is not fitting to be spoken, you will keep inviolably secret."
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Codification American Medical Association
“That whatsoever you shall see or hear of the lives of men or women which is not fitting to be spoken, you will keep inviolably secret."
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Codification Professional codes of ethics; state laws; acts of
ethical decision making Federal Privacy Act (1974)
Medical information and records Health Insurance Portability & Accountability Act
(1996) Both:
Improve health care services and research by ensuring flow of medical information
Limiting access to and use of information Carries both civil and criminal penalties
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Joint Commission Administrative procedures and physical
safeguards Authorized use of medical records for
Treatment Quality assurance Utilization review Education Research
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Problem Moral problem: no completely clear lines Impossible to delineate all imaginable scenarios Professional judgment and ethical reflection are
almost always required Rule of thumb
Offer only as much information as is required to provide optimal care
Provide only information that is relevant to the situation
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General Agreement Confidences are to be kept “Need to know” Supporting delivery of care Not for personal gain Not to malign Not as gossip
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Not an absolute obligation.
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Tarasoff Case
Psychiatrist has access to information regarding potential homicide; homicide occurs
1976 judgment“Duty to warn”“Right of confidentiality ends where public
peril beginsBreaching confidentiality is warranted under certain
circumstances
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Exceptions Minors Abuse Safety Public welfare
Duty to report harm.
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Practical Points
Understand and support organization’s HIPPA structures
Understand relevant state laws Promote organizational conversation,
education and leadership around the issuesNot just about complianceAbout dignity, respect, justice
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Practical Points
Don’t assume family members and friends have permission
Don’t provide information over the phone to those whose identity is not verified
Don’t use information that you have from outside health care setting
Special issue in long term care and behavioral health Intimate knowledge, relationship, often key to promoting
good care
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Case 1 – Mr. Jones
What do you say to Mrs. Jones? What support mechanisms are there? Is there an obligation only to Mr. Jones?
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Case 2 – Allison
16 year old girl; seeks medical attention:Birth controlPregnancy testSexually transmitted diseaseSubstance abuse
Her father asks physician for a conferenceWhat can you disclose?
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Case 3 – Mrs. Johnson
75 year old woman Signs of abuse that may have been
inflicted by her husband Husband is primary caregiver Mrs. Johnson is dependent on him, and
pleads with you not “to cause a stir”What do you do?Is this different from case one
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About Relationships
Supporting strong, trust-filled relationships In service to health, well-being and comfort A dimension of holistic care
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Questions & Conversation