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Transcript of 05/09/081 Building Momentum and Expanding Your Program's Partnerships - Inclusion Walter L. Shepherd...
05/09/08 1
Building Momentum and Expanding Your Program's Partnerships - Inclusion
Walter L. ShepherdDirector
NC Comprehensive Cancer Program&
Executive DirectorNC Advisory Committee on Cancer Coordination & Control
Why I'm Here?While I'm Here....
479
184
Two Organizational Modelsfor CCC Partnerships
Prescriptive• Representation is prescribed, typically
through enabling legislation
Collaborative• Representation is selected/elected
from among stakeholders
Advantages
Prescriptive• Legislative-connection
• Ensures representation of specific organizations
• Reduces rivalry among stakeholders
Collaborative• Broad representation
• Can ensure greater diversity• Can ensure network for
implementation
Almost 50 years to get it right…..
t
t
50 Years of Cancer Prevention & Control Planning
1957 The Commission to Study the Cause and Control of Cancer in North Carolina established by the Legislature.
1967 The Co1957 The Commission to Study the Cause and Control of Cancer in North Carolina established by the Legislature.
1967 The Commission to Study the Cause and Control of Cancer in North Carolina made a permanent study commission.
1967 Governor’s Commission to Study the Cause and Control of Cancer convened.
1991 Statewide Coalition for Cervical Cancer Control created.
1992 Study Commission on Cancer Prevention and Control created by the Legislature.
1993 The North Carolina Advisory Committee on Cancer Coordination and Control formally established through legislative action.
1998 Funding provided by CDC to North Carolina as one of fivestates and one tribal health boards to pilot national comprehensive cancer control.
2006 NC Cancer Partnership created
North Carolina 1993
Prescriptive• Long history of government
involvement/participation – since 1957• Major legislative buy-in
• Key legislators involved & moved policy agenda
• 33 Appointed Individuals• Evolved into a “Small Table”
environment• Participants & Spectators
North Carolina 2005-2006
“In a Rut”• Original members rotated off• Two 5-year Plans completed
• 3rd 5-Year Plan was in-process• Interest/participation had diminished
• NC CCP was “broken”• Participants & Spectators
• No one sure what this process was all about
• No accountability to stakeholders
North Carolina April, 2006
“The Revolution”• Created the NC Cancer Partnership• Initiated the “Big Table” philosophy
• Everyone Is Welcome - Inclusion• Abandoned the 5-Year Plan Process
• Re-defined what’s important • It’s all about Survivorship
• Partnerships must be made; they don’t just happen
• Partnerships must be worked everyday
Collaborating to make a difference in the lives of North Carolinians with cancer, their
families, and their communities.
An opportunity for every Cancer stakeholder to have an opportunity to participate and
contribute.
05/09/08 10
NC Advisory Committee on Cancer Coordination & Control
34 Appointed Members
Executive CommitteeChair & Vice Chair
Subcommittee Chairs & Associates
Subcommittees•Care
•Early Detection•Prevention•Evaluation
•Legislative/Education
1993 - 2006
05/09/08 11
NC Advisory Committee on Cancer Coordination & Control
34 Appointed Members
Executive CommitteeChair & Vice Chair
Subcommittee Chairs & Associates
Subcommittees•Care
•Early Detection•Prevention•Evaluation
•Legislative/Education
NC Cancer PartnershipOpen Membership
Steering Committee13 - 15 Members
Workgroup Leaders
Cancer Workgroups19 Groups
Regional Cancer Partnerships6 Regions
2006 - Present
Work Groups CreatedBreast Cancer
Gynecological CancersChildhood CancersColorectal Cancer
Cancer & Young AdultsLung Cancer
Prostate CancerSkin Cancer
Other CancersClinical Trials
DisparityPalliative Care/Pain
SurvivorshipWorksite Cancer InitiativesCancer & the Environment
Personal BehaviorsGenomics
Patient Navigation
05/09/08 13
Work Groups
~12 – 15 MembersRepresentative – Geographic, Demographic, Clinical/Non-Clinical
Establish Common GroundDevelop Timeline for Activities
Survey/Research the Issues/ProblemsDetermine Existing Activities/Resources
Coordinate with Other Work GroupsDevelop Specific Goals, Objectives, Strategies & Evaluation
MeasuresDetermine Resources Required
Transmit Report to Advisory Committee & SubcommitteesAssist with Implementation
Review Evaluation Results & OutcomesRevise Goals, Objectives, Strategies
Cherokee
Graham
Clay
MaconJackson
Swain
Transylvania
HendersonPolk
Haywood
Madison
Buncombe McDowell
Yancey
Mitchell
Avery
Watauga
Rutherford
ClevelandGaston
Lincoln
CatawbaBurke
Caldwell
Ashe
Wilkes
Mecklenburg
Cabarrus
Union Anson
AlleghanySurry
Yadkin
AlexanderIredell
Rowan
Davie
Stokes
Forsyth
Stanly
Richmond
Scotland
Davidson
Rockingham
Guilford
Randolph
MontgomeryMoore
Lee
Caswell
Alamance
Orange
Durham
ChathamWake
Hoke
Robeson
CumberlandSampson
Bladen
Columbus
BrunswickNew
Hanover
Pender
Onslow Carteret
Jones
Craven
Pamlico
Duplin
Harnett
Johnston
PersonGranville
VanceWarren
FranklinNash
Wilson
Wayne
Pitt
Lenoir
Greene
EdgecombeMartin
Beaufort
WashingtonTyrrell
Dare
Hyde
Halifax
Northampton
Bertie
Hertford
Gates
Chowan
Perquimans
Currituck
CamdenPasquotank
ACOS CoC Approved Facility
Medical School / Major Academic Medical Center
NC Cancer Partnership Regions
Western
South Central
Southeastern
North Central Central Northeastern
Non-CoC Facility
The assurance that the views, perspectives, and needs of all affected communities are included and involved in meaningful manner in the planning/implementation process.
Inclusion
• Enhance credibility• Implement program change• Advocate program changes• Fund, authorize, expand programs
From Tom Chapel, May 14, 2008
Who Do We Need Most?
Steps Taken for Inclusion Give All Stakeholders a Voice...but
Start by Reminding Everyone What It's All About Answer the Question: “What's in It for Me?”
It’s Not the State’s Plan….It’s the People’s Plan. Perspective: Focus on a Few vs. Anything Goes
My Plan is Your Plan.; Your Plan is My Plan A “Living Plan” Should/Can Be Changed as Necessary. Formal Adoption of Plan by Organizations & Individuals.
Develop Specific Action Plan with Organizations. Formal Connection with Major and Minor Organizations.
Get the Plan “Out There” - 400 per month, visits, talks, events Listen, Act, Report Connect the Dots
CCCP Can Make It Happen – “We're Like Switzerland” Assume Leadership of Efforts Where There's a Void
Build Capacity Where It's Needed Eliminate Duplication & Share Resources
Monitor Participation/Participants Don't Be Afraid to Stick Your Neck Out
Some Results from Inclusion NC Survivorship Summit
NC Cancer Centers’ Collaborative NC Oncology Navigator Association
NC Cancer Clinical Trials' Clearinghouse Pilot Projects/Regions wth Early Adopters
Visits to all CoC (& other) Centers Incubate and/or Help Create New Organizations
Help Established Organizations Renew Their Efforts Adoption of Plan by Funding Organizations as Part of RFA Process
Customized Cancer Plan 19 Work Groups – typically >50% Members Are Survivors/Advocates
www.NCCancer.com NC Medical Journal Special Issue on Cancer – circ. 36,000
Community-Based Organizations' Training Initiative
PARTNERSHIPS
• American Cancer Society
• NCI Cancer Information Service• Comprehensive Cancer Collaborative of NC (CPCRN)• NCI-Designated Comprehensive Cancer Centers (3)
• American College Surgeons – Commission on Cancer (38)• Non-approved Cancer Centers (6)• NC Academy of Family Physicians
• NC Medical Society• Old North State Medical Society
• NC Hospital Association• NC Oncology Society• Komen for the Cure
• University of North Carolina • Duke University
• NC Cancer Centers' Collaboration (sponsored)• NC Oncology Navigator Association (sponsored)
• NC Cancer Clinical Trials' Clearinghouse (sponsored)
• Plus many other state & local organizations and agencies
05/09/08 20
“The Vision”
That North Carolina’s collective effort will enable the state to become the national leader in responding to the many challenges
associated with cancer, including:
• The promotion of healthy lifestyles & preventive behaviors• The provision of universal access to screening & early
detection resources• Patient- & family-centered care that is accessible & affordable
• A cancer survivorship approach that is a collaboration between the patient, the family, the community & the health care system
• The elimination of all disparities related to access to all resources & services
Major Themes in the NC Cancer Plan
• Site Specific• Healthy Behaviors – Eating Smart, Moving More; Tobacco
Use; Infectious Agents; Alcohol Use• Cancer & the Environment
• Genetics• Clinical Trials
• Palliative Care – Pain; Hospice; End of Life Care• Data/Surveillance
• Professional Education & Awareness• Survivorship
• Access to Services• Public Awareness• Cost & Financing
Major Activities in the NC Cancer Plan
• Making Cancer Survivorship the Centerpiece• Creating & Enhancing Partnerships – Local, Regional,
Statewide• Eliminating Disparities of All Types
•Making the Public More Aware & Engaged• Enhancing Professional Education & Involvement
• Ensuring an Appropriate Workforce – Quantity, Quality, Distribution
• Ensuring Access to All• Increasing Funding & Resources
• Increasing Data/Surveillance• Supporting Research & New Technology• Determining & Implementing New Policies
www.NCCancer.com