Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin &...
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Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx
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Transcript of Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin &...
Scientific Advisory BoardFragile X
AFrAHM asblMonday November 18th, 2013
Olivier Crevoulin & François Rycx
Introduction
Round table - intro
Simply using your native language
Feel free to intervene at all time – this is your meeting
Agenda
Pre-mutation and related disorders
Awareness campaign for doctors and non-medical professionals
PAH: Plateforme Annonce Handicap
Conference for families 2014
How to best support schools and related centers
Latest news –clinical trials; medical & non-medical research
Pre-mutationDiagnostic for child, teenager
FXTAS & FXPOI in Belgium
Awareness Campaign
early detection & right intervention
Postcard for pediatricians & GPEuropean folder
Quid non-medical staff ?
PlateformeAnnonceHandicap
Conference 2014for Families
Round table - hot topics in your field
Supporting schools & related center
Round table
Latest News to share?Round table
Thank you!Your personal commitment makes the difference and gives
hope to families
Association X fragile Belgique
Website:www.x-fragile.be
Facebook: https://www.facebook.com/AssociationXFragileBelgique
Contact for SAB:Olivier Crevoulin – [email protected] – 0477 81 13 18François Rycx – [email protected] – 0496 57 35 19
