World Wide Prostate cancer coalition

Moving forward together: The solution

T. Hudson

Geneva, 28.08.08

By working together we can build a stronger force to get cancer on the agenda of governments

around the world.This requires concerted action and we each have

an important role to play.

John R Seffrin, Pres UICC

Leaders in Cancer Patient Advocacy have already set the standard!

The National Breast Cancer Coalition (1991)

‘Perhaps the worlds most influential medical consumer lobby group’

Lancet editorial, 2001

Europa Donna The European Breast Cancer Coalition (1993)

We live in changing times!

With the internet bringing us quick and easy access to information. Attitudes are changing with the public now expecting a more realistic and comprehensive service from the health business.Accurate information, access to a second opinion, updates on new technology are now considered the norm.

To meet the challenge.

Leading activists from the five continents who had been exchanging signals for some time, were facilitated by the UICC to meet in Washington DC at the UICC World Conference in July 2006, to discuss and consider the benefits, if any, of collaboration.

WWPCC

World Wide Prostate Cancer Coalition

Who we are

• A coalition of prostate cancer interest groups from around the world.

What we do

• We Share information, ideas, visions and dreams to minimize the impact of prostate diseases, especially prostate cancer, in the global community.

• We serve interested organizations from around the world to help fulfil their objectives.

Our Mission

To create or enhance an environment to empower men to make informed

decisions about diagnosis and treatment for prostate cancer.

Membership

• Organisations with an interest in the field.

• Individuals with a demonstrated interest in our objectives

Work in progress I

• Building relationships with National/regional patient groups and other parallel organisations.

• Establishing and further developing good relations with professional bodies.

• Sharing new information on patient support and news of medical successes and failures.

• Saving funds by pooling information.

Work in progress II

• Recognising the developing role of the wider ‘prostate family’.

• Encourage the development of a well informed public.

• Developing an easily accessed method of communication.

• Seeking clarity in the ongoing early detection / screening debate/debacle.

Work in progress III

• To ensure that racial and cultural differences are recognised and catered for in all projects.

• Establish a strong international collaboration in Prostate Cancer Advocacy.

Who’s involved?• Austria• Belgium • Bulgaria• Cyprus• Czech Republic• Denmark• Finland• France• Germany • Ireland• Italy• Lithuania• Norway • Poland • Portugal• Romania

• Slovak Republic• Spain• Sweden• Switzerland• The Netherlands• United Kingdom

• Canada• United States of America

• Australia• New Zealand• Japan

• Israel• Republic of South Africa

What’s the current situation?

While WWPCC has been working to establish guide lines for ‘Global Collaboration’, prostate groups across the world have been busy with many new initiatives, some of which could be of benefit to similar groups elsewhere.