Exercise in Place: Part 2

An MSU webinar with Megan and Lauren, Occupational Therapy Fin and Ruben, Physical Therapy

WELCOME TO

Information to help guide your local physical and occupational therapy teams and various exercises for myositis patients and how to modify them.

Myositis Support and Understanding (MSU) MSU is an all-volunteer, patient-centered nonprofit organization founded by myositis patients for myositis patients and caregivers. We work to improve the day-to-day lives of those impacted by myositis.

WEBINAR PROVIDED BY

UnderstandingMyositis.org Learn more at:

Our Speakers

Megan McGowan Lauren Burgess

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Fin Mears Ruben Pagkatipunan Jr.

Occupational Therapy Physical Therapy

with the Johns Hopkins Myositis Center

Welcome back to MSU our speakers for today’s session, all who have joined us for past #MyositisLIFE video sessions, including part 1 of Exercise in Place.

Resources in the next slides refer to the question: When I am ready to go back to physical therapy, what should be included in a physical therapy evaluation?

Question

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PTFunctionalOutcomeMeasuresUsedinMyositis

DM/PM IBM NecrotizingMyopathy

·TUG

·6MWT·Sittostandtests:(FiveTimesSittoStand/30secssittostand)

•  FunctionalIndex-2

·TUG·2MWT/6MWT·FiveTimesSittoStandor30secsittostand(dependsonseverityofquadweakness)

•  TimedStairnegotiation

SameasDM/PM

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Source:Alexanderson,H.,Broman,L.,Tollbäck,A.,Josefson,A.,Lundberg,I.E.,&Stenström,C.H.(2006).Functionalindex-2:Validityandreliabilityofadisease-specificmeasureofimpairmentinpatientswithpolymyositisanddermatomyositis.Arthritis&Rheumatism,55(1),114–122.doi:10.1002/art.21715

FunctionalIndex-2:AssessmenttoolformeasuringmuscleenduranceforPM/DM

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Source:Alexanderson,H.,Broman,L.,Tollbäck,A.,Josefson,A.,Lundberg,I.E.,&Stenström,C.H.(2006).Functionalindex-2:Validityandreliabilityofadisease-specificmeasureofimpairmentinpatientswithpolymyositisanddermatomyositis.Arthritis&Rheumatism,55(1),114–122.doi:10.1002/art.21715

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Source:Alexanderson,H.,Broman,L.,Tollbäck,A.,Josefson,A.,Lundberg,I.E.,&Stenström,C.H.(2006).Functionalindex-2:Validityandreliabilityofadisease-specificmeasureofimpairmentinpatientswithpolymyositisanddermatomyositis.Arthritis&Rheumatism,55(1),114–122.doi:10.1002/art.21715

Resources in the next slides refer to the question: Should I include cardio exercise and if so, how?

Question

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23/08/2016 5Helene Alexanderson

Borg CR-10 scale – to rate perceived exertion

0 No exertion0.5 Extremely week (light) 1 Very light2 Light3 Moderate4 Somewhat strong5 Strong (heavy)67 Very strong8910 Extremely strong (almost maximal)

• Maximal

To rate your perceived exertionafter an exercise session, justregister the number that you feelbest represents your experience

Lower number correspond to lowerexertion, while higher number describes a higher level of exertion

The anchor words are there to help,and you can always use numbers

without an anchor word. For example: a 6 correspondsto an experience of exertion that is stronger than a 5, but not exertingenough to be described as a 7.

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Source:MyositisSupportandUnderstandingwebinar“Exerciseasatreatmentformyositis”byHeleneAlexanderson,May21,2019

#MyositisLIFE Website www.MyositisLIFE.org

MSU Website www.Understandingmyositis.org

Email info@Understandingmyositis.org

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Contact Information

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