Swedish dementia care in development - Leben mit Demenz · Swedish dementia care in development Dr...

Post on 17-Sep-2018

219 views 0 download

Transcript of Swedish dementia care in development - Leben mit Demenz · Swedish dementia care in development Dr...

www.demenscentrum.se

Swedish dementia care in development

Dr Wilhelmina Hoffman, CEO Swedish DementiaCentre and Silviahemmet  

www.demenscentrum.se

Understanding Dementia

Dementia means…

I need your supportI need your understandingWherever the disease brings me

www.demenscentrum.se

“When a person gets the diagnose of dementia, there is almost always a second patient”

Professor Henry Brodaty

www.demenscentrum.se

The family carer needs support to cope

SilviahemmetEducation models and Care for Quality of Life

Base educations

Certification of care units

Academic programs

Day care

Supervision of students

Silviahemmet care philosophy is outgoing from

the palliative care philosophy since 1996

Silvia Sister and Silvia Nurse College/University Educations

414 Silviasisters year 2013 - a two year web-based part time education147 Silvianurses year 2013 - a one year web-based part time education

Master course in Dementia Care for Physicians two year web-based, in cooperation between KI

and Silviahemmet(Of 15 doctors one is from Japan)

Started in 2012

Master course in Dementia Care for Physio -therapists and Occupational-therapists

web-based, in cooperation between KI och Silviahemmet

Starts spring 2015

SilviahemmetInternational education programs and cooperations

Since 2006 in Japan

Since 2009 in Germany

Since 2012 in China

Since 2013 in Korea

www.demenscentrum.se

Support in the national development of dementia care

National GuidelinesSwedish dementia centreSveDem quality registryChecklists / BPSD registryCare programPerformance reimbursement

www.demenscentrum.se

Swedish Dementia Centrea national platform

Government funded 2008Collect and spread evidence based knowledge and good 

practice – and stimulate the development  of dementia care and family support

For a dementia friendly society

Stockholm Gerontology Research Center Stiftelsen Silviahemmet

SDC 5 år 5

www.demenscentrum.se

EducationResearch

DevelopmentAuthorities

PatientFamily

Health & Care staffNGO’s

Students

Swedish Dementia Centre

www.demenscentrum.se

www.demenscentrum.se

Web page visits

414 944

487 579

225 360

274 777

0

100000

200000

300000

400000

500000

600000

4th quarter2008

2009 2010 2011 2012 2013

Persons

Visits Unique Visitors

www.demenscentrum.se

Information sheets

• Dementia diseases

• Alzheimer´s disease

• Dementia and driving

• Dementia – Care by family  and friends

• Weapons and dementia

• Vascular dementia

• Lewy Body dementia 

www.demenscentrum.se

Information sheetsin other languages

• Finnish• Spanish• Arabic• English• Bosnian/Croatian/Serbian• Russian • German• French• Persian• Chinese

www.demenscentrum.se

National Guidelines 2010

Personcentered carethe main focus

Dementia ABC

‐Web‐based

‐ Free of charge

‐ 10 chapters

‐ Diploma

www.demenscentrum.se

www.demenscentrum.se

www.demenscentrum.se

www.demenscentrum.se

www.demenscentrum.se

The Tool box • Life story of the person• The in‐ and outdoor environment• Validation• Reminiscens• Colours• Activities ‐ dance, music, seasonal activities• Outdoor activities• Technical devices• Assessement instruments• Safety knowhow• Check lists• Knowhow about what and when medication 

is appropriate

www.demenscentrum.se

www.demenscentrum.se

> 70 000 registered users

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

Dementia ABC(N = 64 480)

Dementia ABC plusPrimary Health Care

(N = 2 666)

Dementia ABC plusNeeds Assessor(N = 1 493)

Dementia ABC plusHome Care(N = 806)

Finished Ongoing 17th of February 2014

www.demenscentrum.se

Web based courses – free of charge

• Primary health care • Care manager• Home help services• Nursing home• Family• Hospital care

www.demenscentrum.se

Best team in home help‐services

2008 • Borlänge

2009 • Bromma

2010 • Motala 2011 • Tibro2012 • Sollefteå

www.demenscentrum.se

!

?‐ A fotball web site by fans for fans ‐ 300 000 visitors each week

www.demenscentrum.se

Art and Football – projects to support changes of attitudes in the society

From January 2013 > 75 MuseumsInterested to participate.The staff is educated by Silviahemmet

In cooperation with a fotball support site.A pilot was performed In one city, Malmö

www.demenscentrum.se

New projects 2014

• Homepage for teenagers

• Dementia podradio

• Handbook and applications to avoid restrain

• Web‐education for the police

www.demenscentrum.se

FOR A DEMENTIA FRIENDLY SOCIETY

www.demenscentrum.se