Peter J. Murray

Panel Discussion: Studying and Using Social Media in Academic Research

Chris Paton, Peter J. Murray, Margaret Hansen, Francsico J. Grajales III

IMIA Social Media Working Group

Chris Paton BMBS BMedSci MBA FACHI

Senior Clinical Research Fellow, National Institute for Health Innovation, University of Auckland, New Zealand

Researching Social Media in Healthcare

IMIA Social Media Working GroupIMIA Social Media Working Group

What is Social Software?

is it Web 2.0?...

$0 to

$1,600,000,000in 21 months

“If you click edit and you see some Wiki syntax and some bizarre table structure - a lot of people are literally afraid.”

Jimmy Wales, Founder of Wikipedia, 2011

20 billion page views per month

Reflexive Feedback Loop

Complexity

Why does this matter in healthcare?

Lithium Experiment

Data Mining and Social

Healthcare

Applications for

Academic Research

Medicine 2.0 Stanford | Francisco Grajales | September 17th, 2011

What does this mean?

Overview

• Data in Action

• Iconic Research

• Professional Considerations

Data in Action!

Research

Professional Considerations

Privacy

Security

What is the

expectatio

n

of privacy?

Guidelines

Are 145

characters

enough?

Affected By...

• Web literacy• Culture• SES• Peers• Education• Opinion

Leaders

Questions

Cisco | Ciscogiii | cisco@franciscograjales.com

http://franciscograjales.com/quality-improvement

Margaret Hansen Ed.D., R.N.Associate ProfessorSchool of Nursing and Health Professions

Illustration of the use of iPods, Twitter, Facebook, Skype & Google Suites in Academic Research

IMIA Social Media Working GroupIMIA Social Media Working Group

QuickTime and aﾪ decompressor

are needed to see this picture.

Millennial Social Medical Intern Research Participants

Video iPods in Medical Education

Pilot Randomized Controlled Trial: New Zealand BaseTo determine whether instructional videos via iPods regarding urinary catheterization would increase undergraduate medical students’ confidence and enhance skills competenciesPilot trainee interns; 10 control; 11 intervention~intervention= 3 mos video iPod access~control= no access to technologyResults: Control group decline in skill competency over time; whereas, skill level remained stable for the intervention group.~Intervention group’s confidence levels for performing female catheterization increased significantly over time

Video iPods in Nursing EducationPilot Randomized Controlled Trial: California BaseTo determine whether instructional videos via iPods regarding urinary catheterization would increase nursing students’ confidence and enhance skills competenciesPilot nursing students; 9 control; 7 intervention~intervention= 2 week video iPod access~control= no access to technologyResults: Close to zero variation for skill competency for both groups; Confidence levels did not significantly change over time ~ however, anecdotal notes imply students desire to have high self confidence in performing both male and female urinary catheterizations

iPad uPad?

~Voted #1 of top ten innovations and most tweeted about technology topics in 2010~Short time on the market, however, it is being used in healthcare, business and education~Graduate students introduced to the iPad Fall 2010 and used it to assist them with their patient teaching project in Clinical Sites~Research potential is endless! Annecdotal notes: ~The iPad is visually transfixing~Cutting edge apps, such as Heart Pro, ECG iPocket cards, Nimble, OsiriX HD, Blausen Human Atlas

QuickTime and aﾪ decompressor

are needed to see this picture.

To Tweet or not to Tweet?

~ Free micro-blogging platform

~ 100 million users worldwide

~ Instantly publish brief text-based posts up to 140 characters

~ Collect research data

~ Real time communication among researchers and participants

Tweeter!!

QuickTime and aﾪ decompressor

are needed to see this picture.

QuickTime and aﾪ decompressor

are needed to see this picture.

QuickTime and aﾪ decompressor

are needed to see this picture.

A software app that allows users to make video voice calls via the Internet

Teach a course

Interviews

Focus GroupsDissertation Research

Supervision

QuickTime and aﾪ decompressor

are needed to see this picture.

Let your research creative side shine and consider using social media to assist you with your data collection!

QuickTime and aﾪ decompressor

are needed to see this picture.

Look forward to hearing from you…

@m2hansen, m2hansen, mhansen@usfca.edu

or 415.422. 2017! Thanks, M. Hansen

Luis Fernandez-Luque @luisluque

PhD Student, Researcher, Northern Research Institute & Tromsø Telemedicine Laboratory, Tromsø, Norway

Health Videos and Social Media

IMIA Social Media Working GroupIMIA Social Media Working Group

IMIA Social Media Working Group

• YouTube is the third most visited web in the world.

• Over 3 billion videos watched daily

• And...I don't watch TV 

• 150 years of YouTube video are watched every day on Facebook (up 2.5x year/year) 

IMIA Social Media Working Group

• CDC has 4M views, NHS has 7M views

• More than 500 US hospital and 20K videos

• Many patients are video blogging

• Videos about advice (flu pandemic), awareness (diabetes day), emotional support, healthy habits.

IMIA Social Media Working Group

IMIA Social Media Working Group

The jungle:• Proanorexia videos• DIY surgery• Anti-vaccination videos• Not always good information

IMIA Social Media Working Group

Should we use YouTube for Public Health, TV or printed press?

How effective is YouTube? Should I recommend YouTube or Vimeo?

What is next?

IMIA Social Media Working Group

1. Demographics: not everybody is on YouTube (but more and more are).

1. It is hard to find good videos, but there are out there.

1. In most studies, most of the videos were OK (polemic topics are worse). 

1. Many good videos are poorly published (lack description, title).

1. Next: Interactive videos, 3D videos.

1. Need for more research: effectiveness, privacy, quality, information retrieval, etc.

Peter J. Murray RN, PhD, MSc, CertEd, FBCS CITP

CEO, IMIA

(International Medical Informatics Association)

Disclaimer: views expressed are generally personal; and should not be taken to be any official IMIA view or policy

IMIA Social Media Working GroupIMIA Social Media Working Group

IMIA is:

the world body for health and biomedical informatics

- comprises 56 (national) Member Societies, 45 universities and academic institutions

- represents indirectly more than 50,000 health informatics professionals around the world

- an NGO with World Health Organization

IMIA is:

a bridging organisation – and a scientifically and academically-based body – its goals include:

- to stimulate research, development and routine application

- move informatics from theory into practice in a full range of health delivery settings

- further the dissemination and exchange of knowledge, information and technology.

www.imia.org

IMIA Social Media Working GroupIMIA Social Media Working Group

IMIA Social Media Working Group

Set up at Medinfo2010 GA (Cape Town)

International membership

Strong Spanish-speaking membership

Active in supporting IMIA's 'bridging role' to other organisations and people

Help define/promote/evaluate and research IMIA's social media use

IMIA Social Media Working GroupIMIA Social Media Working Group

IMIA Social Media Working Group - why?

Why not? - because everyone else uses it?

To explore its use – does it have potential or is it all just empty rhetoric – the next 'bubble'?

IMIA's exploration of social media use:- improve communication and interaction with members and the wider community- research the real potential- lead rather than follow- contribute to the evidence-base for use, benefit

Some issues:

Is/are social media really that much different?

Do we see the REAL interaction the rhetoric tells us will happen?

The 1% rule - if you get a group of 100 people online then one will create content, 10 will "interact" with it (commenting or offering improvements) and the other 89 will just view it.

How many REALLY interact via social media, as opposed to continue to broadcast?

Some issues:

Are we using/developing new research methods and tools? - do we need to?

What are 'science 2.0' and 'research 2.0' all about? -

Are they simply marketing hype and/or trying to find ways to make money - like 'Health 2.0'?

Is there a 'social good' to them?

Some issues to consider:

… do we have evidence for the value of social media?

… towards thinking about the necessary research agenda

… with rapid evolution of technology, what are best research methods?

… what is the role of social media relative to health?

IMIA and Social Media – The Need to Define a Research Agenda

- researching collaboration tools and virtual organisations for researchers, and leveraging social tools for data collection;

- exploring the implications (e.g. in human factors engineering, or open source software) of the intersection of health and informatics with social media;

- discussing what are the next steps for social media and academic research, and how IMIA can contribute, especially in collaboration with other organisations and individuals.

IMIA and Social Media – Some Questions for the Research Agenda

“Social media grow more rapidly and less predictably than other types of technology” - true or false?

Technology and technology use seems to be evolving faster than traditional research. By the time you get a grant the technology can be outdated, so traditional RCTs are far too slow.

So does this mean that we can’t necessarily use the same tools we have previously used to research and study them?

IMIA and Social Media – Some Questions for the Research Agenda

Are there geographic or cultural differences in uses of and/or attitudes to social media?

What effect will increasing mobile access and use of 'apps' versus the web have?

What are the effects of the consumer drivers/expectations producing change faster than healthcare and scientific institutions can adapt to?

IMIA and Social Media – Some Questions for the Research Agenda

“Health IT systems will soon become social media applications” - true or false?

Will EHRs be built around social networks of patients, their carers and healthcare providers? - a significantly different model from how current EHRs operate - but this change will happen quickly and contracts are currently being signed to develop these systems.

How will health professionals adapt?

IMIA and Social Media – Some Questions for the Research Agenda

Is it possible to determine a priori which technologies or systems will be more cost-effective?

Social media allows many different possibilities and therefore uses and ethical challenges. Privacy, control, etc. will become even more important issues in the future.

Will social networking help students learn in healthcare courses?

IMIA and Social Media – Some Questions for the Research Agenda

Tools or attitudes – or something different?

Open data, open access, open collaboration etc

Because we can reach more people, data, interaction etc – does this mean we WILL get the ones we want, the best, the most appropriate etc? - signal versus noise

Discussion

The interactive bit – over to you ...

Next steps?

IMIA Social Media Working GroupIMIA Social Media Working Group

For further contact:

c.paton@auckland.ac.nz

maggie2hansen@gmail.com

peterjmurray@gmail.com

cisco@franciscograjales.com

IMIA Social Media Working GroupIMIA Social Media Working Group