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Rural Innovation in Advanced

Illness Care: Programs and

Policy Opportunities

Facilitator: Jane Pederson, MD, MS

Chief Medical Quality Officer

Stratis Health

National Summit on Advanced Illness Care

Minneapolis, MN

October 10, 2019

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Session overview • Identify unique rural challenges and

opportunities related to advanced illness care

– Karla Weng, Stratis Health

• Learn about Innovative Rural Models

– Julie Benson, Lakewood Health System

– “B” Brian Mistler, Resolution Care

– Lori Vrolson, Central MN Council on Aging

• Discuss policy considerations that impact rural

innovation in meeting advance illness care

needs locally

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Stratis Health• Independent, nonprofit organization founded in 1971

and based in Minnesota

– Mission: Lead collaboration and innovation in health care

quality and safety, and serve as a trusted expert in

facilitating improvement for people and communities

• Core expertise: design and implement improvement

initiatives across the continuum of care

– Funded by government contracts and private grants

– Work at the intersection of research, policy, and practice

• Rural health and serious illness care are long-

standing organizational priorities

– Have worked with more than 40 rural communities in

multiple states to develop palliative care programs

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What is rural?

• 97% of U.S. land mass is rural

• 19.3% of the population lives in rural

(approx. 60 million people)1

• Multiple formal definitions, but often

based on perception

– Am I Rural? 2

– Frontier: Fewer than 7 people per square

mile

1 US Census Bureau: What is Rural America2 Rural Health Information Hub (www.ruralhealthinfo.com)

Source: https://www.census.gov/content/dam/Census/library/publications/2016/acs/acsgeo-1.pdf

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Rural Populations

• Older, Sicker, Poorer:

– Rural median age is 51 compared to urban

median age of 45.1

– Rural age-adjusted, all-cause mortality per

100,000 persons is 830.5 compared to urban

mortality of 703.5.2

– Rural median household income is $46,000

compared to urban of $62,000.3

1U.S. Census Bureau, 2011-2015. Measuring America.

www.census.gov/content/dam/Census/library/visualizations/2016/comm/acs-rural-urban.pdf2 North Carolina RHRC (2017). Rural Health Snapshot (2017).

https://www.ruralhealthresearch.org/publications/11103 U.S. Census Bureau, 2009-2016. Small Area Income and Poverty Estimates.

www.census.gov/programs-surveys/saipe.html

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Rural Healthcare Delivery:

Rural is not small urbanRural healthcare organizations have special federal

designations and payment programs:

• Critical Access Hospitals (CAH) – 1350, in 45 states• 25 beds or less, 96 hour average length of stay

• 35-miles from hospitals (can vary)

• Rural Health Clinics (RHC) – about 4500, in 45 states• Non-urban

• Health Care Professional Shortage or Medically Underserved

Area

• Health Centers (FQHC, or other designation) • Approximately 1 in 5 rural residents are served by the Health

Center Program

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Rural Healthcare Delivery:

Rural is not small urban

• Access to health care services often

limited in rural, including services which

are important in caring for those with

serious illness:

• Home Care

• Hospice

• Mental Health, Substance Abuse

From: RHIhub Data Explorer

From: RHIhub Data Explorer

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Rural Challenges for Advanced

Illness Care• Chronic Workforce Shortages

• Financial Challenges

– CAHs, RHCs, and FQHCs are typically exempt from Medicare

Value-Based Reimbursement programs (e.g., Hospital

Readmissions Reduction Program)

– Predominate payers are Medicare and Medicaid

• Lower Medicare Advantage penetration: In 2018, 24% in rural

compared to 34% overall1

– 113 Rural Hospital closures since 2010 (and many more at risk)

• Transportation, social isolation, access to healthy foods

• Lack of research and models specifically for rural care

delivery

1RUPRI Center for Rural Health Policy Analysis Medicare Advantage Enrollment 2 North Carolina Rural Health Research Program Hospital Closures

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Rural Opportunities• Networks and relationships are often strong and well

connected

– Personal relationships

– Organizational connections

• Training is available to enhance rural practitioner

skills, and allows for care that builds on long-term

provider and patient relationships.

• Many needs related to advanced illness care can be

met locally, which is typically the preference of

patients and families

– Telehealth or other consulting arrangements can support

access for specialty needs

• National standards/best practices are relevant

– Flexibility and creativity to support implementation

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Community Capacity Focused Formula

for Program Development

Community data

and goals

Access to national

standards & resources

Stakeholder

input

Facilitated planning

process

A program designed

for your community

Community action

plan

Rural Palliative Care Resource Center

www.stratishealth.org/palcare

Staples, Minnesota

Lakewood Health System

We must start to think of the patientand the family as the sun, and the healthcare delivery system as one of the many

planets that orbits around the sun.

Home-based palliative care is the future ofquality medical care for the sickest and

most complex patients and their families

Diane E. Meier, MD, FACPDirector, Center to Advance Palliative Care

Julie Benson, MD FAAFPFamily Physician – 22 yearsMedical DirectorHospice and Palliative Medicine

Population 2,974Serving 38,000Bordering 4 counties

Lakewood Health System

Staples

Critical Access HospitalRural Health Clinic

5 primary care clinicsSenior Services

Long Term Care 2 Assisted Living facilitiesBehavioral Health Unit

Hospice & Home CareAmbulance & TransportationPharmacyDurable Medical equipment

3 of 4 counties among the poorest in the

state

More than 15% of population living in

poverty

Demographics by age

https://mn.gov/admin/assets/greater-mn-refined-and-revisited-msdc-jan2017_tcm36-273216.pdf

More older people in poverty

https://mn.gov/admin/assets/greater-mn-refined-and-revisited-msdc-jan2017_tcm36-273216.pdf

90%

10%How we die• Of all deaths, only a few

people (< 10%) die suddenly and unexpectedly.

• Most people (> 90%) die after a period of illness, with gradual deterioration until an active dying phase at the end of life.

Institute for Clinical Systems Improvement

Palliative Care

Palliative care is specialized medical care for people with serious illnesses. It is focused on providing patients with relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis.

CAPC - Center to Advance Palliative Care

Models of Palliative Care

Venues of Care

Institutional-based

Hospitals

Long term care centers

Assisted Living

Community-based

Clinic

Home care

Street/Shelter

Episodes of Care

Consultative

Clinic

Hospital

LTC - Long term care

Longitudinal

Homecare

Clinic

LTC - Long term care

Assisted Living

Key Concept

Palliative care can be:

Primary Palliative Care: Best practices during the routine care of all patients with serious or life-threatening illness

Specialist Palliative Care: Comprehensive, interdisciplinary care by professionals with special competencies

Primary Palliative Care

Natural extension of family medicine

From birth to death

Coordinate complicated multi-specialty care

Long term relationships with patients

The Interdisciplinary Team (IDT)

• RN Case Managers• MD – family physician/HPM• Social Workers• Chaplain• Pharmacist• Care Center RN/social worker• CNAs• Volunteers• Therapists – PT/OT/SLP/massage• Respiratory Therapist

Homecare & Hospice team

Any homecare client who has serious illness and not appropriate for hospice is screened for palliative care services

Recent readmissions, decreasing PPS, increased symptom burden, social service needs, surprise question

RN is case manager

Meet as IDT after hospice IDT to discuss

Chaplain, social services and pharmacy services are not billed at this time

Home-based Palliative Care

Care Center RNs

Any care center resident who has serious illness and not appropriate for hospice is screened for palliative care services

Recent readmissions, decreasing PPS, increased symptom burden, social service needs, surprise question, family conflict

RN is case manager

IDTs meets with CC RNs to review status and update care plan

Chaplain, social services and pharmacy services are not billed at this time

Long Term Care-based Palliative Care

Clinic-based RN case management

Any LHS patient who has a serious illness and not appropriate for homecare or hospice is eligible for palliative care services

Recent readmissions, decreasing PPS, increased symptom burden, social service needs, surprise question (no universal screening tool being used yet)

Working toward embedding in Oncology

RN is case manager

Telephonic contact and when in clinic/ED/hospital/infusion therapy

IDT meets every 2 weeks to review care plans and update team; schedule MD home/clinic visits

Chaplain, social services and pharmacy services are not billed at this time

Community-Based Palliative Care

Palliative Care

Meet with patients and their families whenever possible on admission

IDT meets every 2 weeks to review care plans and update staff on any changes

Discuss hospice information visit

Discuss referral to hospice when appropriate

Palliative Care

Frequent phone calls to staff and family

Meet with patients in ED or hospital if able

Serve as medical interpreters as needed

Palliative Care

Assist with documenting goals of care

Assist with documenting Advance Directives

Family meetings

Phone answered 24 hours a day

Palliative Care to Hospice Care

Educate about hospice

Assist transition to hospice when appropriate

Remain involved as needed for family support

Bereavement care

Grief support groups

Results

Increased referrals to hospice and longer stays

Decreased ED visits

Reduced readmissions

Increased patient and family satisfaction

Increased staff satisfaction (Quadruple Aim)

Challenges

Reduced hospice referrals in some populations

Transitions between service lines

Transitions to paying services lines

Patients and families becoming attached to staff and not wanting to transition

Reimbursement

Data collection

Rural Considerations

Leverage resources already in place

Customize RN case management

Cross-train staff in

Medical Home

Care center

Hospital

ED

Clinic

Julie Benson, MD FAAFP

drbenson@lakewoodhealthsystem.com

The Future of Technology toImprove Rural Healthcare

Resource Access & Greater Collaboration

C-TAC National Summit on Advanced Illness Care

Minneapolis, MN

October 10, 2019

“B” Mistler, Ph.D.b@resolutioncare.com

ResolutionCare

Michael Fratkin, M.D.

Founder & CEO@MichaelDFratkin

michael@resolutioncare.com

“B” Brian Mistler, Ph.D.

Chief Operating Officer

b@resolutioncare.com

Today, in California alone, more than 500,000 people

are clinically eligible for palliative care.

Less than 1% of them have access to it.

OurMission

To bring capable,

compassionate care

to everyone,

everywhere in the

face of serious illness.

SensePlace

300 miles/ 5 hrs from

San Francisco

Same distance as

Washington DC

to Greensboro N.C.

of

50 million Americans live in rural areas.

27% of all Americans prefer a rural area.

Major city population including NYC, LA, & Chicago declining.

Sources: Ingraham, Christopher. “Americans Say There’s Not Much Appeal to Big-City Living. Why Do so Many of Us Live There?” Washington Post, December 18,

2018, sec. Business. | Smarsh, Sarah. “Opinion Something Special Is Happening in Rural America.” The New York Times, September 17, 2019, sec. Opinion.

Considerations forRural

Higher age-adjusted death rates made worse by poverty

Higher rates of of chronic illness

Multiple Chronic illnesses are present more often

Sources: National Center for Health Statistics. Health, United States, 2016: With Chartbook on Long-term Trends in Health. Hyattsville, MD. 2017. | Moy E, Garcia MC,

Bastian B, et al. Leading Causes of Death in Nonmetropolitan and Metropolitan Areas — United States, 1999–2014. MMWR Surveill Summ 2017;66(No. SS-1):1–8.

Considerations forRural & Low Income

Technological innovation to support collaboration & care

Lack of access to nearby medical services

Poverty impacting the social correlates of health

Technology means

National networks for collaboration and support.

Measurement that is clear and available in realtime,

Value-based models using interdisciplinary teams,

Maximize resources e.g. internet & peer mentoring,

Telehealth that is transparent & people-centered,

Benefits of

Telemedicine

▪ 35% of people we care for utilizing

telemedicine from their home or a non-

clinical outpatient setting.

▪ Patients benefit from the ability to access a

team of experts from their home, as travel

can be a challenge.

▪ Clinical team saves time & increases their

impact to help more people.

▪ Organization attracts top talent to work

anywhere… critical for growth & to transcend

provider shortages.

Sources: Lupu D, on behalf of the AAHPM Workforce Task Force. Estimate of Current Hospice and Palliative Medicine Workforce Shortage. J Pain Symptom Manage.

2010 Dec 6; 40(6):899-911.

Interdisciplinary

Team Effort

Move from fee-per-service to capitated payments enables full spectrum team care and efficient resource leverage

Interdisciplinary care

delivered to the home,

directly involving patient,

family and caregivers.

Telehealth technology enables a networked demand-supply model, with geographic reach and layered services

Technolog

y

Value Based Community

Care

Coordinator

Social

Worker

Spiritual

SupportNurse

Physician

Community

Health Worker

Patient &

Family

Evidence of Impact on Quality and Cost:Telemedicine Patient Survey Data

▪ 88% like using telemedicine.

“Video conferencing takes the delay out of my care.”

“I don’t have to leave my home for check-ins and minor issues.”

“I was surprised how there was no delay. It was quicker because there was no driving to the

doctor’s office, no extra wait time

to get my mom’s meds.”

▪ Four out of five people had no concerns with the majority of their care being provided via telemedicine.

*Results from internal survey March 2017

ResolutionCare

▪ Cost of care for the three months before and after starting palliative care

services was 33-50% less for pilot participants.

▪ Patients were admitted 40% less to the hospital in the last 30 days of life than

non-study patients.

▪ Demonstrated ≈$3 in hospital cost savings for every $1 spent on the

palliative care program.

Telehealth works for clients, clinicians, consequences, and costs.

Evidence of Impact on Quality and Cost:Partnership Healthplan of California Partners in Palliative Care

▪ 95% of participants in pilot study reported they received the best possible care from their Palliative

Care team and would recommend the team to others.

ResolutionCare

Benefits of telehealth

Higher needs of populations

Technologies growth is key

Interdisciplinary team driven

Model works and saves $$

Future of rural populations

The future is exciting...

Key Takeaways

Sources: Images from Chemistry World, Synthego, and from “Rob Knott on The Future of NHS Procurement.” Spend Matters, August 24, 2017.

http://spendmatters.com/uk/rob-knott-future-nhs-procurement/. | Bondade, Navin. “The New AI Toilets Will Scan Your Poop To Diagnose Your Ailments.” Techgrabyte

(blog), September 27, 2019. https://techgrabyte.com/ai-toilets-scan-poop-diagnose-ailments/.

.

Sources: Oculus Connect.

Sources: Tesla

Sources: “Sequoia Sempervirens.” In Wikipedia, September 24, 2019. https://en.wikipedia.org/w/index.php?title=Sequoia_sempervirens&old id=917680331.

THANK YOUFor more information, please contact:

ResolutionCare

Dr. “B” Brian Mistler

b@resolutioncare.com

Dr. Michael Fratkin

michael@resolutioncare.com

Silos to circles

Reducing Silos in

Aging Services: A New

Collaborative Model to

Foster Healthy Aging

Silos to Circles

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Identified needs of older adults in

our community along with current

assets and gaps

2016 Planning Process

1

2

3

Articulated and agreed upon

shared community goals

Outlined a plan that could help us implement the shared goals

Pooled rural community plans

together and approached a funder for implementation

4

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Rural Pilots

15

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Common Hub Elements

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The Conversation Continues

➢2016 Conversations

➢Reconvene October 2017

➢Establish Coalition- February 2018

➢Implement Work Plan Goals

Keeping It LocalOver 30 local community members and providers

Community Members County Public Health (SHIP)

County Health and Human

Services-Aging & Disabilities

Community Education

Health Systems Home Care and Hospice

Services

Food Services and Assistance Local Businesses

Regional Area Agency on

Aging- Senior LinkAge Line

Regional Libraries

Senior Living Communities Senior Service Agencies

Mission: to increase awareness of, access to, and satisfaction with, existing services and health resources in the community. To strengthen the relationships between senior community members, service providers, and health systems to benefit older adults and their caregivers.

Communities Served: Southern Chisago County Including: North Branch, Chisago Lakes (Lindstrom, Chisago City, Taylors Falls, Center City, Schafer), North Branch and Wyoming

Resource Hub and Education

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Chisago Age Well Volunteer Community Connectors

Spreading the Message

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LeilaniRebecca

Keri

What does the community think?

What have you learned from the Chisago Age Well?

That there are so many programs out there, so much information

and resources available. Everyone works together as a team,

one united front, to assist in any way possible, which I find so refreshing!

I have picked up something new at every single meeting.

Knowledge is power!

How would you describe the benefits of the project for the local

communities?

Absolutely wonderful! One realizes they are not alone with an aging parent,

an aging spouse, becoming a senior citizen yourself. One is not judged.

Thanks for all you do for Seniors, we are all better for your kindness.

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Website

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QuestionsContact

Terri Foley, LeadingAgeMN Foundation

terri@leadingagemn.org

Lori Vrolson, Central MN Council on Aging

lori@cmcoa.org

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Discussion

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Questions?

Jane Pederson, MD, MS

952-853-857

jpederson@stratishealth.org

Rural Palliative Care Resource Center www.stratishealth.org/palcare

Stratis Health is a nonprofit organization that

leads collaboration and innovation in health

care quality and safety, and serves as a trusted

expert in facilitating improvement for people and

communities.