Required New Variables for CDC-NPCR CER Specialized

RegistryMeichin Hsieh, MSPH, CTR

Data ManagerLouisiana Tumor Registry

LCRA Spring ConferenceApril 14, 2011

CDC-NPCR Specialized Cancer Registry Background

This project was funded as part of the American Recovery and Reinvestment Act (ARRA) Comparative Effectiveness Research (CER) activities through the Centers for Disease Control (CDC).

CDC-NPCR Specialized Cancer Registry Cont’d Requirements

High quality cancer registry Ability to enhance registry data Expand electronic reporting Ability to conduct CER Experienced in patterns of care and

outcomes studies Sustainability

Objectives Describe new data items that need to

be collected and sustained as a CDC-NPCR specialized cancer registry

Describe codes and coding guidelines

Required New Variables Cases Diagnosed in 2011 and after Variables required collection by CoC

hospitals Height Weight Tobacco use Source comorbidity

Height and Weight Purpose

Variables required when administering chemotherapy or other drugs given

Description Different tumors for the same

patient may have different values Should be collected from source

records once for each cancer

Height and Weight cont’d Code from medical record or

physician office record sources includes: Nursing interview guide Flow chart Vital stats

Height and Weight cont’d

Coding instruction Height & Weight entered should be that

listed at or around the time of diagnosis If no height and/or weight was listed

when cancer was diagnosis, please use the height/weight recorded on the date closest to the date of diagnosis, but before treatment was started

Height Coding

Measured in inches (1 foot=12 inches) Entered as 2 digit numbers Code “98” for 98 inches or greater Code “99” for unknown height All inches values should be rounded to

the nearest whole number For example: 62.4 inches would be 62 and

62.5 inches would be 63 inches

Height cont’d:

Height Inches Code

4’ 48 48

5’6” 66 66

6’0” 72 72

≥ 8’2” 98 98

Unknown 99

Examples: 1 foot = 12 inches

Weight Coding

Measured in pounds (1 kg=2.2 pounds) Entered as 3 digit numbers Code “999” for unknown weight All pounds values should be rounded to

the nearest whole number Ex: 155.5 pounds would be 156 pounds

If patients weight less than 100 pounds record weight with leading zero Ex: Record 98 pounds as 098

Weight cont’d:

Kg Pounds Code

36 79.2 079

75 165 165

88 193.6 194

Unknown Unknown 99

Examples: 1 kg = 2.2 pounds

Tobacco Use Variables

Cigarette Other smoking products

Pipes, cigars, kreteks (made with a blend of tobacco, cloves and other flavors)

Smokeless tobacco products Chewing tobacco, snuff, etc.

Tobacco NOS

Tobacco Use cont’d Purpose

A risk factor that is associated with several cancer (e.g. lung, oral cavity, pharynx, larynx, esophagus, bladder, ….)

Description Records the patient’s past or current

use of tobacco

Tobacco Use cont’d Code from medical record or

physician office record sources includes: Nursing interview guide Flow chart Nursing assessment section Vital stats Others: H&P

Tobacco Use cont’d Coding schema

0 Never used 1 Current user (as of date of diagnosis) 2 Former user, quit within one year of the date of diagnosis 3 Former user, quit more than one year prior to the date diagnosis 4 Former user, unknown when quit 9 Unknown/not stated/no smoking specifics provided

Tobacco Use cont’d If only “No” documented in medical

record then code 9. DO NOT code it to 0 (Never used).

If “None” documented in medical record then code 0 (Never used)

Source Comorbidity Purpose

Tracts the sources of obtaining comorbidity information

Description Record the data source from which

comorbidities/complications were collected

Source Comorbidity cont’d Coding schema

0 No comorbid condition or complication identified/Not Applicable 1 Collected from facility face sheet 2 Linkage to facility/hospital discharge data set 3 Linkage to Medicare/Medicaid data set 4 Linkage with another claims data set 5 Combination of two or more sources above 9 Other source

Source Comorbidity cont’d

CoC hospitals use only codes 0, 1 or 9

Codes 2 to 5 will be coded only at central registry

Thank you!

Contact information:Meichin Hsieh

E-mail: mhsieh@lsuhsc.eduPhone: (504) 568-5850