Post on 22-Nov-2014
description
Participatory Design and the Making of
Health
Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee
Associate Professor School of Medicine/
Public Health
My academic Identity:
My Alternative Online Identity
I tweet and blog about the intersection of health, technology,
and participatory design
http://goo.gl/jQdUxR
Disclosure: I have no formal training in design
Design was something I stumbled upon through a
personal design experiment
B and S have life- threatening food allergies
The teachers need vital information about how
and when to give the epi-pen
But this is a #design #fail
So we were inspired to make a Youtube video!
By “we” I mean the collective “we” since I am a
#lazytigermother
Go to the 1st video on Ihavefoodallergies.tumblr.com!
I posted it online
http://goo.gl/M9XZwS
His teacher shared it with the whole school
It went a little bit viral
http://goo.gl/v3lE18
#designsuccess #proudtigermother
1479 views!
B has his own blog now http://ihavefoodallergies.tumblr.com
Check out video 2 of the trilogy on the blog!
http://goo.gl/M9XZwS
Check out video 3 of the trilogy on the blog!
I also made a low-!delity version for the teachers
With his illustrations
And additional information about “tricky” allergens
My Design Insights
about the Production of Health and the Future
of Healthcare
We were
experts
We were
makers
We were
collaborators
Patient as
expert maker
collaborator #futureofhealthcare
But to reach the #futureofhealthcare
we need to overcome the #cultureofhealthcare
Expert “D!"#$r%&'(e)
e*+,(t%-./n!0.1a23,4t%
Editorial hashtag:
#whereareallthewomen
“O567/c89#:f;<=/h8>?@h)pABCDs%3E4aFG.Hh!I?J b8&K(eL0M4g)N,Ol2N”
Maker
“H!"#$h i% c&'($e) d*+,-r
T. p/012n3”
Collaborator
I started collaborating with Matt Kenyon & John Marshall
Applying Design Thinking to Healthcare
Recognizing the wisdom and expertise of the patient
Allowing the patient voice to drive the identi!cation and prioritization of problems
Working with patients as co-designers in the creation
of solutions for health
@jakiebones & @TheTrevorTorres http://goo.gl/3w3lIZ
Pairing patients with designers to create tools inspired by the
patient experience
@showindshe http://goo.gl/xoZxK8
Design = A Distraction
A critical tool for the creation of health
Creating a culture of design in health
Maker Movement
Do It Yourself (DIY)
Learning by Doing
Peer-to-Peer
Maker Movement
Participatory Design =
The maker movement, a model for patient-centered participatory design?
DIY = Expert
Learning by doing = Maker
Peer-to-Peer = Collaborator
We brought together a community of patients and
health providers
Designers, Tinkerers, and Makers
To explore the amazing things that can be created
by combining making and health
We created a collaborative innovation network called
HealthDesignBy.Us to further this work
Join us! goo.gl/mEmaiO
Doctor to Patient Passive Solitary
#currentstateofhealthcare
Patient to Patient Active
Collaborative
#mydreamforhealthcare
B is thinking about making more prototypes
B extended his allergy work at the We #makehealth Fest
http://goo.gl/fPTFuF http://goo.gl/bEY0Tg
B gave the opening remarks at the Fest too!
http://goo.gl/bEY0Tg
HealthDesignBy.Us Twitter: @healthbyus
FB: HealthDesignBy.Us
My gratitude to our patient experts, Matt Kenyon, John Marshall, Patricia Anderson, Nancy
Benovich Gilby, Emily Puckett Rogers, Scott Olson, Amy Cohn, Patricia Abbott, Kelly Parent,
John Costik, Jose Gomez-Marquez, Emily Hirschfeld, Ghada Mustapha, Jacob Hendricks,
Margot Robert, Xiaoying He, Trevor Torres, Nick Reid, Sam Oliver, Charles Woodson Research Fund, UM Provost, & the HealthDesignBy.Us
virtual community