Long Term Condition CYP Audit Analysis 2016 · Long Term Condition CYP Audit Analysis 2016 Provider...

Long Term Condition CYP

Audit Analysis 2016

Provider Trusts

Project Managed by: Laura Strawson

Prepared by: Jason Gladwin

Tweet us: @jgladwin2013 @nwcscnSenate

Audits included in this report

- Asthma

- Diabetes

- Epilepsy

- Transition

Quality of data

Data was collected from clinicians at each site who we identified as leads for each area and

so the data quality is of a good standard in this draft and is not completed yet. If you spot

any errors please let us know.

Providers who took part in the audits

Alder Hey Children's NHS Foundation Trust

Betsi Cadwaladr University Health Board

Countess of Chester NHS Foundation Trust

East Lancashire Hospitals NHS Trust

Mid Cheshire Hospitals NHS Foundation Trust

Lancashire Teaching Hospitals NHS Foundation Trust

Nobles Hospital, Isle of Man

University Hospitals of Morecambe Bay NHS Foundation Trust

Southport and Ormskirk Hospital NHS Trust

Wirral University Teaching Hospital NHS Foundation Trust

Warrington & Halton Hospitals Foundation NHS Trust

St Helens and Knowsley Teaching Hospitals NHS Trust

Stockport NHS Foundation Trust

East Cheshire NHS Trust

Blackpool Teaching Hospitals NHS Foundation Trust

Asthma Paediatric Audit

Asthma analysis section

Question 1a - Do you have a named clinical lead for paediatric asthma?

Question 1b - If yes, please indicate what this Asthma Clinical Lead role

entails. E.g. Training, re-design, audits etc.

20.00%

80.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

No Yes

Response Answer

1aDo you have a named clinical lead for paediatric asthma ?

10.00%

90.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

Don’t Know Yes

Response Answer

1bIf yes, please indicate what this Asthma Clinical Lead role entails. Eg Training, re-design, audits etc

Question 1c – Please provide their name(s) and email address(es)

Question 2a – Do you have a named Asthma nurse?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

1cPlease provide their name(s) and email address(es)

30.77%

69.23%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

2aDo you have named Asthma nurse?

Question 2b – Please provide their name(s) and email address(es)

Question 3a – Do you have a named Paediatric Physiotherapist?

22.22%

77.78%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

No Yes

Response Answer

2bPlease provide their name(s) and email address(es)

46.67%

53.33%

42.00%

44.00%

46.00%

48.00%

50.00%

52.00%

54.00%

No Yes

Response Answer

3aDo you have a named Paediatric Physiotherapist?

Question 4a – Do you have a named Paediatric Phycologist?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

91.67%

8.33% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

No Yes

Response Answer

4aDo you have a named Paediatric Phycologist?

Question 4c – Do you have regular MDT meetings/reviews to discuss difficult

asthma cases?

75.00%

25.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

69.23%

30.77%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

4cDo you have regular MDT meetings/reviews to discuss difficult asthma cases?

Question 4d – In total how many full time equivalent posts do you have in your

service seeing children with asthma?

Question 5a - Do you have an Asthma Pathway?

14.29% 14.29%

71.43%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Don’t Know No Yes

Response Answer

4dIn total how many full time equivalent posts do you have in your service seeing children with asthma?

28.57%

71.43%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

5aDo you have an Asthma Pathway?

Question 5b - When was this Asthma pathway last reviewed/updated?

Question 6a - Do you have a 'difficult' Asthma clinic?

28.57%

71.43%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

5bWhen was this Asthma pathway last reviewed/updated?

80.00%

20.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

No Yes

Response Answer

6aDo you have a 'difficult' Asthma clinic?

6b - if yes, who see's children with difficult Asthma cases?

Question 6c - Do you have a threshold for what/who goes into this 'difficult' clinic?

12.50% 12.50%

75.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Don’t Know No Yes

Response Answer

6bif yes, who see's children with difficult Asthma cases?

11.11%

66.67%

22.22%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Don’t Know No Yes

Response Answer

6cDo you have a threshold for what/who goes into this 'difficult' clinic?

Question 6d - Are all children with asthma provided with written guidance in the form

of a personal asthma action plan (PAAP) that details their own triggers and current

treatment?

Question 6e - Do all children accessing difficult clinics have a structured

annual/yearly review?

15.38% 15.38%

69.23%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Don’t Know No Yes

Response Answer

6dAre all children with asthma provided with written guidance in the form of a personal asthma action plan (PAAP) that details their own triggers and current

treatment?

88.89%

11.11% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

No Yes

Response Answer

6eDo all children accessing difficult clinics have a structured annual/yearly review?

Question 6f - For children with difficult asthma due to non-clinical reasons e.g. social,

please describe these social determinants.

Question 6g - How many cases of children with difficult asthma did you have in

2015/16?

20.00%

80.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

Don’t Know No

Response Answer

6fFor children with difficult asthma due to non clinical reasons e.g social, please describe these social determinants.

16.67%

33.33%

50.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Don’t Know No Yes

Response Answer

18Are you aware of any areas of best practice in Asthma services being delivered and/or developed by your organisation?

Question 7 - When treating children with Asthma what would be the reasons/triggers

for referring a child to Tertiary service?

Question 8a - Do you have an effective system in place to follow up children that have

been admitted to hospital for asthma?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

7When treating children with Asthma what would be the reasons/triggers for referring a child to Tertiary service?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

8aDo you have an effective system in place to follow up children that have been admitted to hospital for asthma?

Question 8b - If yes, what % are followed up (if known)?

Question 9a - Do you have an effective system in place to follow up children that have

attended A&E two or more times with an asthma attack in the last 12 months?

71.43%

28.57%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Don’t Know Yes

Response Answer

8b If yes, what % are followed up (if known)?

61.54%

30.77%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Don’t Know No Yes

Response Answer

9aDo you have an effective system in place to follow up children that have attended A&E two or more times with an asthma attack in the last 12 months?

Question 9b - If yes, what % are followed up? (If known)

Question 10 - Do you have a rapid access clinic (within 48 hours)?

83.33%

16.67% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

Don’t Know No

Response Answer

9b If yes, what % are followed up? (if known)

66.67%

33.33%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

No Yes

Response Answer

10Do you have a rapid access clinic (within 48 hours)?

Question 11 - Do you consistently request follow up by GP for children that have

attended A&E once within a 12 month period?

Question 12 - Do children with asthma who present with an exacerbation of their

symptoms receive an objective measurement of severity at the time of presentation

61.54%

30.77%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Don’t Know No Yes

Response Answer

11Do you consistently request follow up by GP for children that have attended A&E once within a 12 month period?

93.33%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

No Yes

Response Answer

12Do children with asthma who present with an exacerbation of their symptoms receive an objective measurement of severity at the time of presentation

Question 13 - For acute asthma cases steroid treatmentis provided within 1 hour of

presentation

Question 14 - Children admitted to hospital with an Acute Exacerbation of Asthma

have a Structured Review by a member of a Specialist* Respiratory team before

Discharge

20.00%

80.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

Don’t Know Yes

Response Answer

13For acute asthma cases steroid treatmentis provided within 1 hour of presentation

60.00%

40.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

No Yes

Response Answer

14Children admitted to hospital with an Acute Exacerbation of Asthma have a Structured Review by a member of a Specialist* Respiratory team before Discharge

Question 15 - Every child receives a diagnosis in accordance with BTS/SIGN

guidance

Question 16 - Children with asthma are given specific training and assessment in

inhaler technique before starting any new inhaler treatment

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

15Every child receives a diagnosis in accordance with BTS/SIGN guidance

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answer

16Children with asthma are given specific training and assessment in inhaler technique before starting any new inhaler treatment

Question 17 - Do you have or contribute to structured local incident reviews where

asthma is considered to be the cause of death?

Question 18 - Are you aware of any areas of best practice in Asthma services being

delivered and/or developed by your organisation?

30.77%

61.54%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Don’t Know No Yes

Response Answer

17Do you have or contribute to structured local incident reviews where asthma is considered to be the cause of death?

16.67%

33.33%

50.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Don’t Know No Yes

Response Answer

18Are you aware of any areas of best practice in Asthma services being delivered and/or developed by your organisation?

Asthma transition section

Question 1 - Do you have a structured Transition process/model/pathway/policy for

within your Trust?

Question 2 - How many cases of children with asthma required transition support to

adult services in 2015/16?

66.67%

33.33%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

No Yes

Response Answer

1Do you have a structured Transition process/model/pathway/policy for within your Trust?

50.00% 50.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Don’t Know Yes

Response Answer

2How many cases of children with asthma required transition support to adult services in 2015/16?

Question 3 - How do you gather feedback from Young people, Parents and carers re:

their experience of transition?

Question 4 - How is data and information re quality and performance gathered. What

data is collected?

23.08%

61.54%

15.38% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Don’t Know No Yes

Response Answer

3How do you gather feedback from Young people, Parents and carers re: their experience of transition?

18.18%

72.73%

9.09% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Don’t Know No Yes

Response Answer

4How is data and information re quality and performance gathered. What data is collected?

Question 5 - How are the transition needs of young people identified?

Question 6 - Are the challenges and barriers in relation to transition?

25.00%

37.50% 37.50%

10.00%

15.00%

20.00%

25.00%

30.00%

35.00%

40.00%

Don’t Know No Yes

Response Answer

5How are the transition needs of young people identified?

14.29%

57.14%

28.57%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Don’t Know No Yes

Response Answer

6What are the challenges and barriers in relation to transition?

Question 7 - How old are young people when transition process begins?

Question 8 - Do young people have a transition plan?

14.29% 28.57%

57.14%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Don’t Know No Yes

Response Answer

7How old are young people when transition process begins?

75.00%

25.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

No Yes

Response Answer

8Do young people have a transition plan?

Question 9 - Do you have a transition lead? Who?

Question 10 - Do Young People have a ‘Health Passport’ or other similar

documentation?

92.86%

7.14% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

No Yes

Response Answer

9Do you have a transition lead? Who?

76.92%

23.08% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

No Yes

Response Answer

10Do Young People have a ‘Health Passport’ or other similar documentation?

Question 11 - Are young people allocated a key worker for transition?

Question 12 - Do you hold joint transition clinics?

78.57%

14.29% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

Don’t Know No Yes

Response Answer

11Are young people allocated a key worker for transition?

78.57%

21.43% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

No Yes

Response Answer

12Do you hold joint transition clinics?

Question 13 - Is work force development & Training in place for staff involved in

transition

Question 14 - Are there any plans for the future around transition?

92.86%

7.14% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

No Yes

Response Answer

13Is work force development & Training in place for staff involved in transition

50.00% 50.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

No Yes

Response Answer

14Are there any plans for the future around transition?

Diabetes Paediatric Audit

Diabetes analysis section

Question 1 - Do you have a Diabetes Pathway?

Question 1a - If yes, when was this Pathway last reviewed/updated?

92.31%

7.69% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

YES Yes

Answer Responses

1Do you have a Diabetes Pathway?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

1aIf yes, when was this Pathway last reviewed/updated?

Question 2 - Do you have a named clinical lead for paediatric diabetes?

Question 2a - If yes, please indicate what this Diabetes Clinical Lead role entails. E.g.

Training, re-design, audits etc.

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

2Do you have a named clinical lead for paediatric diabetes ?

11.11%

88.89%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

DON’T KNOW YES

Answer Responses

2aIf yes, please indicate what this Diabetes Clinical Lead role entails. Eg Training, re-design, audits etc

Question 2b - Please provide their name(s) and email address(es)

Question 3 - Do you have a named Diabetes Nurse?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

3Do you have a named Diabetes Nurse?

Question 3a - If yes, please indicate what this Diabetes nurse role entails. Eg Training,

re-design, audits etc.

Question 3b - Please provide their name(s) and email address(es)

14.29%

85.71%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Answer Responses

3aIf yes, please indicate what this Diabetes nurse role entails. Eg Training, re-design, audits etc

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

Question 4 - Do you work as part of a diabetes multi-disciplinary team?

Question 4a - If yes, please describe who is part of this MDT

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

4Do you work as part of a diabetes multi disciplinary team?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

4aIf yes, please describe who is part of this MDT

Question 5 - Do all patients have a joint care plan which is co-produced with the

service user and their family?

Question 6 - Do you have a robust plan/policy in place to reduce 'disengagement ' and

DNA’s?

10.00%

90.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

NO YES

Answer Responses

5Do all patients have a joint care plan which is co produced with the service user and their family?

91.67%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

NO YES

Answer Responses

6Do you have a robust plan/policy in place to reduce 'disengaement ' and DNA's?

Question 7 - Do you work alongside GP’s to emphasise the importance of their role in

monitoring attendance and signposting to other services?

Question 8 - Do you work alongside pharmacists to emphasise the importance of their

role in monitoring attendance and signposting to other services?

40.00% 60.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

NO YES

Answer Responses

7Do you work alongside GP's to emphasise the importance of their role in monitoring attendance and signposting to other services?

72.73%

27.27% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

NO YES

Answer Responses

8Do you work alongside pharmacists to emphasise the importance of their role in monitoring attendance and signposting to other services?

Question 9 - Do you work with local authorities to ensure all development and support

needs are recognised?

Question 10 - Does the diabetes transition care you deliver incorporate mental health

services?

9.09% 18.18%

72.73%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

DON’T KNOW NO YES

Answer Responses

9Do you work with local authorities to ensure all development and support needs are recognised

18.18%

81.82%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Answer Responses

10Does the diabetes transition care you deliver incorprate mental health services?

Question 11 - Are you aware of any areas of best practice in Diabetes services being

delivered and/or developed by your organisation?

Diabetes transition section

Question 1 - Do you have a structured Transition process/model/pathway/policy

within your Trust?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

11Are you aware of any areas of best practice in Diabetes services being delivered and/or developed by your organisation?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Answer Responses

1Do you have a structured Transition process/model/pathway/policy within your Trust?

Question 2 - How many cases of children with diabetes required transition support to

Question 3 - How do you provide information that’s allows for things such as literacy,

physical/sensory needs/technology?

12.50% 12.50%

75.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

16 19 YES

Answer Responses

2How many cases of children with diabetes required transition support to adult services in 2015/16?

14.29% 14.29% 14.29%

57.14%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

Leaflets and newsletters NO We do not currentlyprovide written

information to pupils attransition.

Answer Responses

3How do you provide information that’s allows for things such as literacy, physical/sensory needs/technology?

Question 5 - How is data and information re quality and performance gathered? What

data is collected?

12.50% 12.50% 12.50%

62.50%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

formal and informalfeedbacks. Planning to do

audits regularly

NO not currently done YES

Answer Responses

11.11% 11.11%

77.78%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

all the data on transition aremonitored through own database

Annual particiaption in the Nationalpaediatric Diabetes Audit (NPDA )

Answer Responses

Question 7 - What are the challenges and barriers in relation to transition?

12.50% 12.50%

75.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Answer Responses

20.00% 20.00%

60.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Lack of resources to do joint clinicswith paediatric and adult teams ;

Relucrtance of CYP & Parents/carersto move to adult services

Time and clinic space YES

Answer Responses

14.29% 14.29%

71.43%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

14 years 15-16 years YES

Answer Responses

81.82%

9.09% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES yes. All patients are informed atdiagnosis. Plan is made which is

discussed at 14 years

Answer Responses

documentation?

10.00% 20.00%

70.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

Key worker for the young person (Brenda Light & Jane Edmunds)

NO YES

Answer Responses

10.00%

60.00%

30.00% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Individualised care plan - updated inregular clinic letters; On Trust

electronic record and copied to CYP/Parents/carers and Primary care

providers (GPs)

NO YES

Answer Responses

9.09% 9.09%

81.82%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

All patients have key worker fromdiagnosis, but no separate key

worker for transition

NO YES

Answer Responses

9.09% 9.09%

81.82%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

DON’T KNOW NO YES

Answer Responses

Question 14 - If yes, are these virtual clinics or in education/work settings to minimise

time and promote take up of transitions?

Question 15 - Following the joint clinic, is a risk management plan produced?

10.00%

60.00%

10.00% 20.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

Clinics are held inoutpatients which are

attended by Children andAdult MDT teams

NO not currently done YES

Answer Responses

14If yes, are these virtual clinics or in education/work settings to minimise time and promote take up of transitions?

16.67%

41.67%

33.33%

10.00%

15.00%

20.00%

25.00%

30.00%

35.00%

40.00%

45.00%

DON’T KNOW NO not currently done YES

Answer Responses

15Following the joint clinic, is a risk management plan produced?

transition?

10.00% 30.00%

60.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

General Diabetes training is doneby all memebers of the MDT; Not

specific for transition

NO YES

Answer Responses

16Is work force development & Training in place for staff involved in transition?

15.38%

84.62%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Answer Responses

Epilepsy Paediatric Audit

Epilepsy analysis section

Question 1 - Do you have a named clinical lead for paediatric epilepsy ?

Question 2 - If yes, please indicate what this Epilepsy Clinical Lead role

entails. E.g. Training, re-design, audits etc.

21.43%

78.57%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Response answers

1Do you have a named clinical lead for paediatric epilepsy ?

12.50%

87.50%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

DON'T KNOW YES

Response answers

2If yes, please indicate what this Epilepsy Clinical Lead role entails. Eg Training, re-design, audits etc

Question 3 - Please provide their name(s) and email address(es)

Question 4 - Do you have a named Epilepsy Nurse?

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response answers

3Please provide their name(s) and email address(es)

18.18%

81.82%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Response answers

4Do you have a named Epilepsy Nurse?

Question 5 - Please provide their name(s) and email address(es)

Question 6 - Do you have a trust wide pathway for management of paediatric

Epilepsy

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response answers

5Please provide their name(s) and email address(es)

50.00% 50.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

NO YES

Response answers

6Do you have a trust wide pathway for management of paediatric Epilepsy

Question 7 - Does your current epilepsy service specification include the

following requirements? Please answer yes/no for each

No Data

Question 7a – Children and young people with epilepsy are seen by an

epilepsy specialist nurse who they can contact between scheduled reviews

Question 7b - Children and young people with a history of prolonged or

repeated seizures have an agreed written emergency care plan

28.57%

71.43%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

NO YES

Response answers

7aChildren and young people with epilepsy are seen by an epilepsy specialist nurse who

they can contact between scheduled reviews

92.31%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

MOSTLY YES

Response answers

7bChildren and young people with a history of prolonged or repeated seizures have an

agreed written emergency care plan.

Question 7c - Children and young people who meet the criteria for referral to a

tertiary care specialist are seen within 4 weeks of referral

Questions 7d - Children and young people with epilepsy have a structured

review with a paediatric epilepsy specialist at least annually

58.33%

16.67% 16.67%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

DON'T KNOW NO NOT ALL YES

Response answers

7cChildren and young people who meet the criteria for referral to a tertiary care specialist are seen within 4 weeks of referral.

8.33% 8.33% 8.33%

75.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

DON'T KNOW NO Some patients YES

Response answers

7dChildren and young people with epilepsy have a structured review with a paediatric

epilepsy specialist at least annually.

Questions 7e - Young people with epilepsy have an agreed transition period

during which their continuing epilepsy care is reviewed jointly by paediatric

and adult services

58.33%

41.67%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

NO YES

Response answers

7eYoung people with epilepsy have an agreed transition period during which their continuing epilepsy care is reviewed jointly by paediatric and adult services.

Question 1 - Do you have a structured Transition process/model/pathway/policy for

within your Trust?

Question 2 - How many cases of children with epilepsy required transition support to

57.14%

42.86%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

NO YES

Response Answers

1Do you have a structured Transition process/model/pathway/policy for within your Trust?

35.71%

57.14%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

DON'T KNOW NO YES

Response Answers

2How many cases of children with epilepsy required transition support to adult services in 2015/16?

Question 4 - How is data and information re quality and performance gathered. What

data is collected?

13.33%

53.33%

33.33%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

DON'T KNOW NO YES

Response Answers

28.57%

35.71% 35.71%

10.00%

15.00%

20.00%

25.00%

30.00%

35.00%

40.00%

DON'T KNOW NO YES

Response Answers

Question 6 - What are the challenges and barriers in relation to transition?

21.43%

78.57%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

DON'T KNOW YES

Response Answers

100.00%

20.00%

40.00%

60.00%

80.00%

100.00%

120.00%

Response Answers

92.86%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

DON'T KNOW YES

Response Answers

53.33%

46.67%

42.00%

44.00%

46.00%

48.00%

50.00%

52.00%

54.00%

NO YES

Response Answers

documentation?

80.00%

20.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Response Answers

6.67% 13.33%

80.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

DON'T KNOW NO YES

Response Answers

92.86%

7.14% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

100.00%

NO YES

Response Answers

85.71%

14.29% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

90.00%

NO YES

Response Answers

transition

14.29%

71.43%

14.29% 0.00%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

80.00%

DON'T KNOW NO YES

Response Answers

13Is work force development & Training in place for staff involved in transition

21.43% 14.29%

64.29%

10.00%

20.00%

30.00%

40.00%

50.00%

60.00%

70.00%

DON'T KNOW NO YES

Response Answers

Common questions within transition Asthma, Diabetes and

Epilepsy audits

Transition thematic analysis section

Question – Are there any plans around transition?

Question – Are young people allocated a key worker for transition?

14% 21%

AsthmaNo

Asthma Don’t Know

AsthmaYes

DiabetesNo

Diabetes Don’t Know

DiabetesYes

EpilepsyNo

Epilepsy Don’t Know

EpilepsyYes

Are there any plans for the future around transition?

DIABETES EPILEPSY ASTHMA

7% 14% 10%

90% 93%

0% 7% 0%

AsthmaNo

Asthma Don’t Know

AsthmaYes

DiabetesNo

Diabetes Don’t Know

DiabetesYes

EpilepsyNo

Epilepsy Don’t Know

EpilepsyYes

Are young people allocated a key worker for transition?

DIABETES EPILEPSY ASTHMA

Question – Do you have a structured Transition process/model/pathway/policy

for within your Trust?

Question – Do you have a transition lead? Who?

Question – Do you hold joint transition clinics?

Do Young People have a ‘Health Passport’ or other similar documentation?

Do young people have a transition plan?

Following the joint clinic, is a risk management plan produced?

How are the transition needs of young people identified?

How do you provide information that’s allows for things such as literacy,

physical/sensory needs/technology?

How is data and information re quality and performance gathered. What data

is collected?

How many cases of children with asthma required transition support to adult

services in 2015/16?

How many cases of children with diabetes required transition support to adult

How many cases of children with epilepsy required transition support to adult

How old are young people when transition process begins?

If yes, are these virtual clinics or in education/work settings to minimise time

and promote take up of transitions?

Is work force development & Training in place for staff involved in transition?

What are the challenges and barriers in relation to transition?

End of report

Long Term Condition CYP Audit Analysis 2016 · Long Term Condition CYP Audit Analysis 2016 Provider...

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