JAN BURNSINDEPENDENT CHAIR

National Dignity Council [NDC]

Overview

• To give delegates an opportunity to offer their definition of what they believe Dignity means

• To provide a brief overview of who the National Dignity Council are and what they do

• To explore the effectiveness of the ‘Ten Dignity Challenges’.

• Identify their correlation with key documents and initiatives that impact on Social Care.

Dignity is………….?

Definition of dignity

• Dignity consists of many overlapping aspects, involving respect, privacy, autonomy and self-worth

• a standard dictionary definition: a state, quality or manner worthy of esteem or respect; and (by extension) self-respect.

• Dignity in care, therefore, means the kind of care, in any setting, which supports and promotes, and does not undermine, a person’s self- respect regardless of any difference.

• While ‘dignity’ may be difficult to define, what is clear is that people know when they have not been treated with dignity and respect

SCIE- Dignity in care guide

Dignity and Human Rights• Human rights are based on a number of core values,

including:– Fairness, Respect, Equality, Dignity, & Autonomy

• Basic rights we all have simply because we are human, regardless of who we are, where we live or what we do

• Human rights belong to everyone and should be at the centre of everything we do

• Human rights represent all the things that are important to us as human beings, such as being able to choose how to live our life and being treated with dignity and respect

.

National Dignity Council Aims

•To lead in raising awareness of Dignity and its importance in delivering excellent services.•To lead and inspire people to take action to promote Dignity•To lead and stimulate a National Dignity Campaign. •To support and maintain a growing and intergenerational Dignity Champions network•To provide a repository that acts as a knowledge and information search engine. •To lead in designing, planning and promoting an annual National Dignity Action Day.•To ensure the sustainability of the National Dignity Council.

National Dignity Council Members

Association Directors for Adult Social Services

National Federation of Women’s Institutes

Social Care Association Society of Later Life Advisors SOLLA

End of Life Care Kissing it Better

North West Forum National Care Forum

Registered Nursing Homes Assoc British Red Cross

Skills for Care/Skills for Health Amanda Waring

British Society of Geriatricians National Pensioners Convention

Dignified Revolution Care Quality Commission

Macmillion Cancer support Crossroads

HC-One [Health Care] Royal College of Physicians

Social Care Institute for Excellence Residents and Relatives Association

DID YOU KNOW WE HAVE OVER 39,000 CHAMPIONS SIGNED UP ON THE SCIE WEBSITE?

Dignity Champion’s network include:

members of the public people who use care/health services, their relatives and carershealth and social care managers, frontline staff, doctors, ambulance staffdieticians, porters, administratorscare workers in care homes,MPs, councillors, students, pupilsmembers of local action groups,Local Involvement Networks (LINks),People from voluntary and advocacy organisations, Anyone – everywhere

Caring for our Future: Reforming care and support

• The Government published a White Paper on the 11 July 2012 in which it set out plans to transform care and support in two major ways.

• to promote people’s wellbeing and independence instead of waiting for people to reach a crisis point.

• to transform people’s experience of care and support, putting them in control and ensuring that services respond to what they want.

• The White Paper lists five statements which describe what government expects people will say about the new system.

Caring for our Future: Reforming care and support5 statements:

• Maintaining independence: I am supported to maintain my independence for as long as possible

• Quality: I am happy with the quality of my care and support• Dignity and respect: I know that the person giving me care

and support will treat me with dignity and respect.• Taking control: I am in control of my care and support• How care and support works: I understand how care and

support works, and what my entitlements and responsibilities are.

Making it Real:

• The aim of Making it Real is for people to have more choice and control so they can live full and independent lives.

• Organisations that want to make a real difference to disabled and older people's lives can sign up to publicly demonstrate their commitment through the Think Local Act Personal website

• Making it Real sets out what people who use services and carers expect to see and experience if support services are truly personalised.

• There are a set of "progress markers" - written by real people and families - that can help an organisation to check how they are going towards transforming adult social care.

• The marker of progress are 26 "I" statements - which describe what people expect and want when it comes to care and support - and are themed around six key areas including:

Making it Real - “What I want”

• Information and advice – having the information I need, when I need it.

• Active and supportive communities – keeping friends, family and place.

• Flexible integrated care and support – my support my own way.

• Workforce – my support staff.• Risk enablement – feeling in control and safe.

• Personal budget and self-funding – my money

Ten Dignity Challenges.

The Ten Point Dignity ChallengeE = Enable people to maintain the maximum possible level of independence, choice and controlQ = Question any potential abuse and have a zero tolerance of all forms of abuse U =Understand and respect individual’s rights to privacyA = Act to alleviate people's loneliness and isolation L = Liase and engage with family members and carers and treat them as care partnersL = Let people know they have a right to complain without fear of retributionI = Individualised services that are person centred and meet the needs of the individualV = Validate and respect individuals needs and choices.E = Enable individuals to maintain confidence and positive self-esteemS = Support people with the same respect you would want for yourself or a member of your family

HAVE A ZERO TOLERANCE OF ALL FORMS OF ABUSE

SUPPORT PEOPLE WITH THE SAME RESPECT YOU WOULD WANT FOR YOURSELF OR A MEMBER OF YOUR

FAMILY!

TREAT EACH PERSON AS AN INDIVIDUAL BY OFFERING A

PERSONALISED SERVICE.

LISTEN AND SUPPORT PEOPLE TO EXPRESS THEIR NEEDS AND

WANTS

ENABLE PEOPLE TO MAINTAIN THE MAXIMUM POSSIBLE LEVEL OF INDEPENDENCE, CHOICE AND

CONTROL

RESPECT PEOPLE’S RIGHT TO PRIVACY

ENSURE PEOPLE ARE ABLE TO COMPLAIN WITHOUT FEAR OF

RETRIBUTION

ENGAGE WITH FAMILY MEMBERS AND CARERS

ASSIST PEOPLE TO MAINTAIN CONFIDENCE AND A POSITIVE

SELF-ESTEEM

Photo by Quinn Dombrowsky, available under a Creative Commons attribution license.

ACT TO ALLEVIATE PEOPLES LONELINESS AND ISOLATION

A Dignity Champion:

• Stand up and challenge disrespectful behaviour rather than just tolerate it.

• Act as a good role model by treating other people with respect particularly those who are less able to stand up for themselves

• Speak up about Dignity to improve the way that services are organised and delivered

• Influence and inform colleagues• Listen to and understand the views and experiences

of citizens• See the person.

Sign up by phone: 0207 9724007 or

go to: www.dignityincare.org.uk