GREAT U Special: Navigating The Gluten-Free Social Scene ... · facebook.com/nfceliacawareness...

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NATIONAL FOUNDATION FOR CELIAC AWARENESS

GREAT U Special: Navigating The Gluten-Free Social Scene at College

Rebecca Panzer MA, RD, LDN and Sam Master

August 7, 2013

Important Reminders!① Will this information be available at a later date?

• Yes, always!

• Webinar recording will be posted along with the webinar slides within 72 hours after the live webinar ends.Download recorded webinars and slides at the Archived Webinars page: CeliacCentral.org/webinars/archive/

② Are continuing education credits available?

• Yes!

• NFCA will provide a certificate as proof of participation for each webinar. Attendees must complete the follow-up survey in order to access this certificate. Program participants will receive a link to complete the follow-up survey on Tuesday, August 13th through an email from NFCA.

• To ensure that you receive this email, make sure that NFCA (National_Foundation_for_Celiac_A@gmail.vresp.com) is on your allowed senders list. If you have unsubscribed from any NFCA emails, please register for the webinar with a new email address. Make sure your email address is spelled correctly when registering, as we will use this for our follow-up communications.

• Please note that RDs and DTRs are not permitted to claim credits by viewing archived webinars. Only those who register and attend live webinars will receive the opportunity to obtain continuing education credits.

• Each participant must register for and log in to the webinar in order to receive credit. In the case of group viewing, only the registered and logged in participant will receive credit for the webinar.

Watch & Win!

A total of 5 prize packs featuring:

• 2 Singapore street noodle bowls

• 2 rice noodle carts

• A tote bag

Watch & Win!

• Gluten-Free Labels “Ultimate Kit”

• 64 gluten-free flags

• 2 silicon tags

• Dishwasher safe labels - 12 mini labels, 8 circle labels and 2 customizable rectangular labels

• A menu of items recommended be labeled, tagged and flagged as gluten-free

Welcome!

• Outpatient dietitian at Cambridge Health Alliance

• Specializes in food allergies / intolerances, developmental disabilities, weight management and disordered eating

• Professor of Health Branding at Lasell College

• Developed a gluten-free guide to college in collaboration with The Celiac Center at Beth Israel Deaconess Medical Center

• Authored Navigating the Gluten-Free Diet in College in the Journal of Pediatric Gastroenterology and Nutrition and guidelines for treatment of autism in supplement to Pediatrics

Rebecca Panzer, MA, RD, LD

Welcome!Sam Master

• 3rd year medical student at Rowan University School of Osteopathic Medicine

• Albert Schweitzer Fellow, AOF Welch Scholar, and president of Project REACH

• Conducted research at the Celiac Disease Center at Columbia University in summer 2012

• Published research on celiac disease including Bibliometric Study of The Quality of Celiac Disease Research Publicationsin the Journal of Pediatric Gastroenterology and Nutrition

• Diagnosed with celiac disease in 2003 and lived (and survived) the gluten-free life in college

On Today’s Plate

① Review the challenges of maintaining a gluten-free livingwhile away at college setting

② Identify and discuss solutions on how to enjoy the college experience while living gluten-free

③ Empower participants to accept and believe that the gluten-free diet is not a limitation

Overview of Challenges

• Dining services

• Living on and off campus

• Social life - Restaurants, Parties, Traveling

• Taboo topics – Drinking, Relationships

Why is the gluten-free diet a challenge in college?

• Food is the center of college

• Where you meet new friends

• Break from studying at 2 am

• Social activity

• Enjoyable

• You are on your own – no parents

• It’s up to you to know if food is safe

Important: The gluten-free diet does not have to

keep you from an active social life.

Secrets to Survival

• Be prepared to:

• Explain the diet many (many) times

• Answer questions

• Reassure friends

• Bring your own food

• Advocate for yourself

• Request exceptions

• Make trips to the grocery store (or online)

Know Your Allies (…and Rights)

• Residential life

• Health services

• Disability services

• Dining services and kitchen staff

• Local specialists

• Your pediatric team

• Your friends

“It’s important for people with celiac disease to make themselves known. At our campus, only about four students contact me each year to request gluten-free services. However, we know that celiac disease occurs in 1 in 133 persons, so there must be at least 300 more students on campus…but the fact remains we can’t help them until they talk to us.”

- Dietitian at 40,000 student campus

Dining Services

Food Delivery- Are gluten-free options available?- Check out labels/ingredients

Food Storage- Are gluten-free foods stored separately?

Food Preparation- Training vs. knowledge- Recycled water- Gluten-free prep areas- Gluten-free dishes

Serving- Training vs. knowledge- Question labeling- Ask questions- Utensils recycling

Review with the manager…

Check with the staff…

Dining Services Options

• Call ahead

• Great option to get the food you want, but it limits spontaneity

• Order separately

• Excellent way to get safe food, but it will take twice as long as your friends

• Labeling

• Many colleges label for allergens BUT don’t forget to ask about (and observe) food prep

Dining Services Options (cont.)

• Store food in the back

• Quick options may be kept for you in the back for easy prep

• Separate gluten-free station

• Some colleges keep a gluten-free room and prep area under lock and key for students

• Be wary of the salad bar

• Salad may be safe, but don’t forget other students are not gluten-free and may result in cross-contamination/cross-contact

Don’t Sacrifice Your Health –First, Requires Acceptance

• The meal plan

• For some, the dining hall may not be an option

• Request an exemption if you live on campus

• Grocery trips

• You will likely have to supplement your food with groceries

• Plan time weekly to make a run to the store, pick up entrée and snack options

• Online shopping

• Online vendors like Amazon, PeaPod and Vitacost will deliver food

Reduce the Cost of the Gluten-Free Diet

• Skip processed snacks

• Chips, cookies, cakes, and bread cost a pretty penny

• Natural gluten-free options like fresh and frozen fruits and vegetables, potatoes, rice, tortillas, corn chips, beans, salsa are great options for quick food at a lower cost

• Cookbooks for college

• Any food can be made in the microwave these days

• Pick up a college cookbook!

Said best…

“…you think about your condition all the time…while we’re aware of it, it’s not always our first thought and we may make

unintentional mistakes.

At the end of the day you need to make the decisions you’re comfortable with; you have the most control and knowledge.”

–Dietitian for 10,000 student school

Welcome to the Dorms

“It’s like living in and sharing a bedroom closet with

a total stranger.”

- Said everyone…everywhere

Living with Others

Do not expect your roommate to prioritize your health. You need to be on the lookout, state reminders and reinforce. Be your own advocate.

First and foremost…

Living with Others

• Roommates

• Talk!

• Discuss details and limits – How can we coordinate?

• Appliances and dishware

• Don’t share (or be ready to clean…a lot)

• Food

• Label to avoid cross-contamination/cross-contact

Living with Others (cont.)• Minimal space

• Negotiate

• Talk to the college

• Label your space

• Talk with disability services (Section 504 of the Rehabilitation Act of 1973)

• Vending machines

• Google or use applications

Must-Have Tools

• Microwave

• Mini fridge with large freezer OR Micro-fridge

• Magic bullet blender

• Foreman grill (if allowed)

• Toaster oven/ toaster (if allowed)

• Pasta/rice cooker

• Dishware (plates and silverware)

• Cleaning supplies

• Tupperware to store food and dishware

• Grocery store!

Socializing

“If you intentionally slip and eat bread one day, your friends will be more likely to pressure you later to stray from the diet saying,

‘you ate it yesterday…what does it matter?’”

– Student from the East Coast

The Elevator Speech• Be empowered and feel comfortable

• Who do you need to be prepared to talk to?

• Know your audience!

• People (very) close to you

• Acquaintances

• Dates

• People cooking for you

• Nosy people

• Foodservice professionals

• College administration

• Professors

• Prepare for “explanation fatigue”

Late Night Study Sessions

• Plan to eat

• If you’re studying with friends late, plan on food happening

• Bring gluten-free options with you

• Order gluten-free

• Have a list of late night gluten-free restaurants so you’re not watching them eat pizza and Chinese food

• Plant food

• Leave snacks at your friend’s place

Eating in the Dining Hall• Plan ahead

• Meet with dining services during the summer so you will have a game plan on day 1

• Be prepared

• Call the dining hall on your way there to place your order

• Know “fast” gluten-free options for spontaneous meals

• Inform your friend

• Let your friends know it may take a little longer

Going to Restaurants

• Let your friends help

• Don’t be embarrassed if they ask you to choose the restaurant – you know gluten-free best!

• Lists

• Have a top 3 list for each type of food with gluten-free options, i.e. American, Asian, Mexican

• Chance it

• Bring a foldable business card and hand it to the waiter to review with the cooks

• Talk to the waiter in private if you prefer

Going to Restaurants (cont.)

• Eat before

• Join your friends at the restaurant to be social and have a drink

• Bring your own food

• If your restaurant choice is out, pick up gluten-free food from a nearby restaurant and meet the group to dine together

Eating at a Friend’s House

• Let them help

• Give your friends a simple list of ingredients or sample recipes

• Review cross-contamination/cross-contact briefly

• Team up

• Offer to cook/prepare with them the first time to ensure confidence for you and the friend

• Bring food

• Offer to bring your own gluten-free dish

Traveling• Studying abroad should not limit you!

• Inform your host

• Review challenges and solutions along the travel route

• Be gas station ready

• Review local restaurants

• Identify options you can eat with limited explanation

• Take note of grocery stores

• Review labeling procedures in the country

• Reach out

• Post questions to others in the celiac community on listservs and forums for advice and recommendations

Traveling (cont.)• Bring food

• Pack that suitcase with easy fall backs

• Order food online

• Have it delivered to your destination

• Be realistic

• Some countries will not understand “gluten”

• If you are traveling, it is your responsibility to find foods safe to eat

Taboo TopicsThe questions you’re afraid to ask

Parties with Alcohol (for those 21+)

• Know your options

• Review the gluten-free and non-gluten-free alcohols

• Pre-game

• Know your options at the bar but just in case…

• But don’t be a lush

• Have some alcohol before you go to the party or bar

• Games with a twist

• Suggest beer pong or flip cup or quarters with wine instead of beer

• Use clean, fresh cups

• Bring your own liquor

• Bring CLOSED alcohol to the party for your own stash

• If you’re the host

• Keep the beer OUT of your kitchen

• Stash your food in a safe place and be ready for a cleaning party

Parties with Alcohol (for those 21+)(cont.)

Intimate Relationships

• Kissing games

• Gluten containing crumbs left in your partner’s mouth are enough to make you sick

• Rinse, brush, repeat

• Inform your partner

• Be honest

• If they care about you, they want you in good health

• Bring brush strips/mouth wash

• If you’re shy about explaining, review breath hygiene

Intimate Relationships (cont.)• Make it fun

• You work hard to stay gluten-free– don’t let a kiss sway you

• Dating

• The gluten-free diet doesn’t restrict you from activities, just requires consideration

• Plan and collaborate

Gluten-Free Support System

• Check out local groups

• Google local celiac disease support groups

• Create your own group

• Put up a meeting on the college website

• Put a flyer by the gluten-free food options

• Sometimes colleges will provide funding to start a club for students with various dietary restrictions

Questions?

Thanks to Thai Kitchen!• Committed to providing the best Thai food experience to anyone, anytime, without

compromising quality for convenience

• Use only fresh, natural ingredients and offer a wide variety of gluten-free products

• Visit: http://www.ThaiKitchen.com

https://www.facebook.com/EnjoyThaiKitchen

https://twitter.com/Thai_Kitchen

http://pinterest.com/thaikitchen/

http://instagram.com/thaikitchen

NFCA Resources for Gluten-Free College Students

NFCA’s college web section: www.celiaccentral.org/college

• NFCA Survey about Living Gluten-Free in College

• GREAT U: Gluten-Free Guide to College Living

• Gluten-Free College Guides & Articles

• Gluten-Free in College Blog Series

• Advice For Parents

NFCA Resources for Gluten-Free College Students

• 2013 College Student Toolkit: Your Guide to Eating Gluten-Free on Campus

•Download this free resource and be automatically entered to win a gluten-free prize pack from French Meadow Bakery

• Gluten-Free in College: Blog Series Part 2

•Hear stories from the students who've been there and know what it takes to stay gluten-free on campus

• Get involved! Sign up to be part of NFCA's Gluten-Free College Committee

•www.CeliacCentral.org/College

NFCA Resources for Foodservice Professionals

• GREAT Kitchens • Learn what it takes to meet gluten-free needs and how you can serve them safely and

confidently

• www.CeliacCentral.org/Kitchens

• GREAT Schools, Colleges and Camps • GREAT Schools, Colleges and Camps is a version of NFCA’s popular GREAT Kitchens

program, but designed specifically for dining services and facility staff.

• www.CeliacCentral.org/Schools

Additional Resource

• Gluten-Free Travel Site's Gluten-Free College Reviews

• glutenfreetravelsite.com/glutenfreecollegereviews.php

Save the Dates!

• Stay tuned for NFCA’s FDA gluten-free labeling educational programming!

• Topic: “Kids Central Special: Packing the Gluten-Free School Lunchbox”

• Date: Thursday, October 3, 2013

• Time: 8:30 p.m. Eastern/5:30 p.m. Pacific

• Speaker: Garrett Berdan, RD, Chef

• Topic: “Holiday Special Part 1: Gluten-Free Baking”

• Date: Wednesday, November 13, 2013

• Time: 8:30 p.m. Eastern/5:30 p.m. Pacific

• Speaker: Chef Richard Coppedge, Professor at the Culinary Institute of America

Thank you!

• All questions and comments: webinars@celiaccentral.org

GREAT U Special: Navigating The Gluten-Free Social Scene ... · facebook.com/nfceliacawareness...

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