Post on 30-Apr-2020
Summer 2018
GATEWAY
CONNECTION
CALENDAR OF UPCOMING EVENTS
August 1 Grant Applications due for NHF’s Bleeding Disorders Conference 16 Wine Tasting Fundraiser Farotto’s Pasta & Pizzeria
September 24 Tee Off 4 Hemophilia Golf Tournament The Legends, Eureka
October 11-13 NHF’s Bleeding Disorders Conference, Orlando, FL 20 GHA Fall Membership Meeting, Stuckmeyers Farm
November 3 Trivia Night Fundraiser The Pavilion at Lemay
December 20 GHA Holiday Party The Magic House, Kirkwood
Like us on Follow us @GatewayHemo
WWW.GATEWAYHEMOPHILA.ORG
Sign up today for GHA’s
28th Annual Tee off 4 Hemophilia
Golf Tournament!
When: September 24, 2018 Where: The Legends Country Club 625 Legends Parkway, Eureka, MO 63025 Join us at The Legends Country Club, a Robert Trent Jones, Sr. designed course, for our 28th Annual Tee off 4 Hemophilia Golf Tournament! This charity event provides crucial funding necessary to support GHA’s overall mission to find better treatments and cures for bleeding disorders and to prevent complica-tions of these disorders through education, awareness, advocacy and research. In addition to a wonderful day of golf at a premier facility, we invite you to participate in our special contests, raffles, silent auction and live auction that will take place the day of the tournament. This year’s lunch will be provided by Pappy’s Smokehouse.
For more information and to register for this event, please visit www.gatewayhemophilia.org/events/tee-off-4-hemophilia/
Gateway Connection
is published quarterly by
Gateway Hemophilia Association
4976 Eichelberger St. St. Louis, MO 63109
314-482-5973 gatewayhemophilia.org
Email us at info@gatewayhemophilia.org
BOARD OF DIRECTORS
President Anne Parrott
Vice President Chris Schneider
Treasurer James Addie
Secretary Stephanie Bauman
Jim Causey
Tremika Conway Kari Moellenhoff Ben Moramarco
Maria Mohler
INDUSTRY ADVISORY CHAIRS
John Carleton Jessica Hurtig
EXECUTIVE DIRECTOR
Bridget Tyrey
COMMUNICATIONS AND PROGRAM MANAGER
Jennifer McNamee
INTERN Rieley Schneider
2 GATEWAY CONNECTIONS SUMMER 2018
GHA Board of Directors meetings are open to the public and held the 2nd Tuesday of every odd numbered month at 6:00pm at 4976 Eichelberger Street, St. Louis, MO 63109. Changes
to these dates may be necessary due to scheduling conflicts and will be announced at www.gatewayhemophilia.org/about-us/board-of-directors as soon as they are available.
Do You Have Your Medical Alert ID? A Medical Alert ID is essential for people with bleeding disorders. Wearing a Medical ID ensures emergency responders and hospital staff have up-to-date medical information the moment they need it to make informed decisions about treatment and care.
Did you know that GHA assists with MedicAlert memberships and IDs for patients with hemophilia and vWD? Visit http://www.gatewayhemophilia.org/resources/medical-information/ for more information or to apply for assistance with a Medic Alert ID due to financial hardship.
SUMMER 2018 GATEWAY CONNECTIONS 3
4 GATEWAY CONNECTIONS SUMMER 2018
GHA’s Unite for Bleeding Disorders Walk/5K
GHA’s Unite for Bleeding Disorders Walk/5K was held on May 5th at the Lower Muny Parking Lot in Forest Park. We are excited to say that this year’s event broke several organization records! With 43 fundraising teams and over 430 participants, it was GHA’s largest walk event, as well as its most successful, raising $63,805 to date! To top it off, we enjoyed a beautiful day in the park, which included breakfast, a DJ, face painting, St. Louis Fire Department trucks, a hydration and treat station for our 4-legged participants, and a visit from Billy the Blood Drop!
Along with being GHA’s largest fundraiser of the year, the Unite for Bleeding Disorders Walk brought our community and people who support it together to celebrate each
other, support each other, and raise awareness. This year, the message of unity was shared with all attendees during the new Pinwheel Ceremony. A special thanks to former GHA Board President, Dave Decker, for leading the ceremony. Following this moving speech, and with pinwheels in hand, the group of 5K runners and 1-mile walkers departed on their respective courses. As a new feature of the 5K run, chip timing was provided to give our runners a more accurate timing experience. Congratulations to our 5K winners: 1st Place winner Megan Tooley, with a time of 23:59.17; 2nd Place winner Dominic Arbini, with a time of 26:25.07; and 3rd Place winner Julie Harrison, with a time of 26:43.81.
Though we were all winners at the Unite Walk, special recognition was given to those teams and individuals that went above and beyond to make this event successful. The Top Fundraising Team was once again Team Action Jackson & Quentin who, lead by Kristina Klein, raised an astounding $5,425! Joining them as “VIP” teams who raised over $2,000 were Blood & Thunder, Luke’s League, The A Team, & Team G-Rex! Kristina was also recognized for her efforts at raising awareness by receiving the most individual donations to her team! Our Top Individual Fundraiser was Stephanie Bauman, team captain of Luke’s League, who raised an impressive $3,265! Joining Stephanie in the “Factor Club” for individuals who raised over $500 were Danielle
Flores, Bridget Tyrey, Jen McNamee, Trudy Stringer, Pam Carleton, Janet Sims, Ashly Walls, Bob Eschbacher, Mareena Snarey, and Gina Eschbacher! Luke’s League was also recognized for showing the most Team Spirit in their matching red apparel! Finally, we created 2 new awards this year. Kristine Jorgensen, team captain of Blood Brothers CBCh, was awarded “Rookie of the Year” for raising $1,645 as a new team! Barb Love, team captain of Nick’s Blood Clotters, was awarded “Most Improved” for raising $1,028 this year, a 190% increase from last year!
The success of this event would not have been possible without the work of a village of people. Thank you to all of our fundraising teams for rallying support for GHA and the bleeding disorders community! Our
fundraising teams were: Team Action Jackson & Quentin, Luke’s League, The A Team, Blood and Thunder, Team G-Rex, HemophiLIAM, Mac’s Factor, Blood Brother’s CBCh, Super Jack, Got Factor?, Kari’s MIDSCI Maulers, DoubleTree Chesterfield, Nick’s Blood Clotters, Daytona’s Destiny Fighters, Bayer, The Snarey Family, Luke’s Squad, Kyle’s Krusaders, The Coagulators – Wash U/SLCH, The O’Rieley Factor, J Walkers, Garrett’s Bruisers, Nate the Great, Bagato’s Bruisers, The Power of X, Dragonfly, The Amigos, Team Sidekicks, Cruising 4 Conway’s, Bioverativ, Team Lilbug, Stop Bleeding Staats, Mid-MO Fighters, CSL Plasma, Glanzmann’s Gals, The Walking Dead, Scott’s Tots, No More Bleeds, The Bouncies, Andrea’s Clotters, Zittel Development, Novo Nordisk – Great Plains, and The Von Willies.
Thank you to our wonderful sponsors for your continued support! National Presenting Sponsor – Shire; Official Sponsors – Bayer, CVS Specialty, Grifols, Hema Biologics, Octapharma, and Pfizer; Partner – Accredo; Gold Sponsors - CSL Behring, Genentech, and Novo Nordisk; Silver Sponsors – Accurate RX, ARJ Infusion Services, Bioverativ, Cottrill’s Pharmacy, DoubleTree by Hilton, Paragon Healthcare, and Sanofi; Bronze Sponsors - Aptevo, Ascension, Bio Ethics, Briova RX Infusion Services, Shire, and State Farm – Joshua Arnold; Kilometer Sponsors - Affordable Auto Credit, Athletico, Charpentier Law, Clarkson Eyecare, Farrotto’s Pasta & Pizzaria, Great Southern Bank, Kohls, NCHS,
SUMMER 2018 GATEWAY CONNECTIONS 5
s Unite for Bleeding Disorders Walk/5K Queen of All Saints, Seamus McDaniels, Superior Biologics, UMB Bank, and UMSL. Thank you to our Give-Away Sponsors: Aptevo, ARJ Infusion Services, Athletico, Bayer, Club Fitness, CSL Behring, and The Pasta House Co. Thank you to our Walk newspaper advertiser, Genentech.
Finally, a heartfelt thank you to our dedicated team of volunteers who worked behind the scenes leading up to the event, as well as the day of, to make sure everything was perfect. Thank you to the Walk
Committee: Stephanie Bauman, Kristina Klein, Liz LaFlamme, and Andrea Metcalf. Thank you to the rest of our volunteer team: James & Sandy Addie, Brandon Allmeyer, Maryam Azam, Kyle Bai, Jake Bauman, Brian Beasley, Daniel Bone, Meghan Burgess, Tina Charpentier, David Cheung, Levert & Tremika Conway, Caroline Cross, Ashley Degenhardt, Lauren Ferrari, Danielle & Tony Flores, Chris Finck, Alex Ford, Pat Gute, Jessica Hurtig, Dan Johannes, William Kenard, Shannon Keys, Sam Kickham, Kohl’s Cares Team, Ellen Lawrence, Mike Lewis, Rose Micias, Maria Mohler, Matt Pappert, Susan Preis, Arielle Pflumm, Scott & Colin Putnam, Jean Safron, Chris & Rieley Schneider, Janet & Bryan Sims, Emily Slone, Sparky’s Bites, Steve Staats, STARS, Kristin Steiner, STLFD, Dirk & Trudy Stringer, Molly Watson, Robyn Weatherspoon, and Matt Wernsing.
6 GATEWAY CONNECTIONS SUMMER 2018
SUMMER 2018 GATEWAY CONNECTIONS 7
The World Federation of Hemophilia (WFH) Congress was held in Glasgow, Scotland on May 19-24, 2018. The event brought together the entire global bleeding disorders community, including WHF national member organizations, patients and families, health care professionals, as well as industry and regulators from more than 100 countries. The biennial meeting provided attendees an opportunity to share ideas and interact (and debate) with diverse groups from around the world.
The Congress program highlighted internationally recognized authorities in hemophilia care and research who discussed recent advances in the management and treatment of hemophilia and other inherited bleeding disorders. Medical plenary sessions presented updated information on emerging therapies, new models of prophylaxis in the developing world, considerations when switching patients from established standard replacement therapy, as well as research and case reports on gene therapy.
Participants also had the opportunity to attend a “multidisciplinary development day” specifically designed for nurses, dental service providers, social workers and laboratory staff which provided new information and insights in areas of pain management, alternative therapies, using the patient’s “voice”, women’s perspectives, and transition issues.
World Federation of Hemophilia Congress By: Bill Berger, MS, MSW
Morey Blinder, MD and Bill Berger, MSW, from the Washington University Hemophilia Treatment Center (HTC), attended the Congress and presented their poster entitled, “A Single institution, observational study on the treatment of acquired factor VIII inhibitors.” The study evaluated various approaches and response to Acquired hemophilia A (AHA), a rare disorder caused by an autoantibody targeting factor VIII that causes severe, potentially life-threatening
Dr. Morey Blinder at the World
Federation of Hemophilia Congress
bleeding. The research suggested bleeding in these patients may not be severe and treatment may not always be needed. Treatment with immunosuppressive agents, such as prednisone and rituximab, is common but the optimal
regimen is not well defined.
For those not familiar with the World Federation of Hemophilia, the organization is an excellent source of information and resources for the bleeding disorders community. Check out their website: www.wfh.org. The site also includes interesting articles on WFH global programs and humanitarian aid efforts.
Bill Berger, MS, MSW at the World
Federation of Hemophilia Congress
The next WFH Congress will be held in Malaysia in 2020.
8 GATEWAY CONNECTIONS SUMMER 2018
Celebrating 10 Years of Camp Notaclotamongus!“Anniversaries are like birthdays: occasions to celebrate and to think ahead, usually among friends whom one shares not only t
By: Rieley Schneider
I know it is hard to believe, but 2018 marks the 10th anniversary of Camp Notaclotamongus. With that milestone in mind, we decided to make this year our biggest celebration so far. From the moment the campers arrived on Wednesday afternoon, there was a party atmosphere. The cabins, Med Shed, and Dining Hall were each decorated with themes from years past. We brought back all of our favorites: Rock N Roll, Space Odyssey, Survivor, Sports, Superhero’s, Military, and Games. We even brought back some of our favorite and activities from previous years to ensure all our campers and staff would have a good time. On the field we played Human Foosball, Space balls, and to top it off, we had ourselves a little marshmallow war. In the dining hall we had a blast playing Minute-to-Win-it. On Thursday we learned survival skills, how to start a fire, preparing for emergency situations, and making a shelter. Campers were having fun while learning lifelong skills they can take home with them.
Like most years, camp on Friday ends with an all camper swim, a party, and a camp fire, but it always starts with the most important and memorable thing we do at camp: Infusion day. This year we awarded four brave campers with a big stick award for successfully sticking themselves for the first time.
Camp is full of firsts, full of fun, and full of laughter. Camp creates friends and memories that will last for a lifetime.
SUMMER 2018 GATEWAY CONNECTIONS 9
Celebrating 10 Years of Camp Notaclotamongus! Anniversaries are like birthdays: occasions to celebrate and to think ahead, usually among friends whom one shares not only the past but also the future.” - Unknown
Thank you to all our donors!
Monetary Donors
Shire, Carney’s Kids Foundation, Pfizer, CVS Specialty, CSL Behring, Novo Nordisk, Bayer, Bioverativ, ARJ Infusion Services, Inc., Grifols, NCHS
Camper Giveaway Bag Sponsors
ARJ Infusion Services, Inc., Bayer, BioMatrix, CSL Behring, CVS Specialty, Express Scripts, Grifols, Novo Nordisk, Superior Biologics
Thank you U.S. Coast Guard! Special thanks to Trudy Stringer and the U.S. Coast Guard for once again volunteering at “Camp Cleanup“ on May 17th. The team of volunteers spent several hours that morning making sure the grounds at Living Well Village were safe and ready for our campers.
Thank you to our team of dedicated volunteers! Cabin 1 - Todd Daube & Joe Wigge Med Shed - Jessica Glubo Solomon, Lynn Golec
Cabin 2 - Kevin Ellebrecht & Justin Senger Azadeh Golkar, Lydia Johnson, Angie
Cabin 3 - Craig MacDonald, Josh Swanson Kaminski, Kathy Logan, Maria Mohler,
& Isaiah Shepherd Stephanie Naumann, Sue Pardeshi,
Cabin 4 - Steve Kreher & Joe Zwier Dr. John Puetz, Sarah Sazdar, Makenzie
Cabin 5 - Kirstie Hilty & Ariel Magee Sledd, Becky Toman, Cate Toman,
Cabin 6 - Arielle Pflumm & Maggie Poronto Jessica Walker, Dr. David Wilson
Other Volunteers - Angela Brown, Danielle Flores, Tony Flores, Arianna Gray, Kevin Harris,
Austin Hanse, Makayla Holder, John Huff, Jessica Hurtig, Jim Hurster,
April Littrell, Juli Mason, Anne Parrott, Brian Rodgers, Abby Schneider,
Chris Schneider, Johnny Schuppe, Trudy Stringer, Adriauna Walker,
Carl Weixler
10 GATEWAY CONNECTIONS SUMMER 2018
Youth Golf On May 24th, GHA kicked off another season of Youth Golf
at Quail Creek Golf Course. GHA’s Youth Golf clinic is
available to kids age 5-17 with a bleeding disorder and their
siblings. The clinic meets twice a week for 4 weeks in the
summer, and was held this year from June 11th - July 5th.
Thank you to CSL Behring, Perry Parker, and Quail Creek
Golf Course for sharing this “Green Light” sport with our
community!
Do The Five
Follow these steps to prevent or reduce complications of bleeding disorders.
1. Get an annual comprehensive checkup at a hemophilia treatment center.
2. Get vaccinated - Hepatitis A and B are preventable.
3. Treat bleeds early and adequately.
4. Exercise to protect your joints.
5. Get tested regularly for blood-borne infections.
To find out more about the National Prevention Program developed by the National Hemophilia Foundation in collaboration with the Centers for Disease Control and Prevention (CDC), visit www.hemophilia.org or call toll-free 1-800-42-HANDI
SUMMER 2018 GATEWAY CONNECTIONS 11
12 GATEWAY CONNECTIONS SUMMER 2018
HTC Investigators Look at Rates of Cardiovascular Disease in Hemophilia Patients
Because of their lower factor levels, hemophilia patients are
generally thought to be better protected from cardiovascular disease (CVD). To determine whether data would support this long-held assumption, a team of investigators enrolled patients from 19 U.S. hemophilia treatment centers (HTCs) in the “CVD in Hemophilia” study. The lead author of the study was Barbara Konkle, MD, Professor of Medicine in the Division of Hematology at the University of Washington School of Medicine in Seattle, WA. She is also Director of Clinical and Translational Research, Associate Director of the Washington Center for Bleeding Disorders, and Director of the Hemostasis, Platelet Immunology and Genomics Laboratory at Bloodworks Northwest.
In all, 200 moderate and severe hemophilia patients, ranging from 54 to 73 years of age, were enrolled in the study between 2012 and 2015. The purpose was to better understand the prevalence of CVD in these patients. Konkle and her fellow authors collected medical records and patient interviews, then compared the HTC data with unaffected men of comparable age ranges. The comparison data were drawn primarily from the US Atherosclerosis Risk in Communities (ARIC) survey group.
The authors defined CVD in patients who had presented with certain symptoms and procedures including angina, a type of chest pain caused by reduced blood flow to the heart; any myocardial infarction (MI) or heart attack; nonhemorrhagic stroke or transient ischemic attack, often referred to as a “mini stroke”; any history of heart-related procedures such as coronary bypass graft surgery or coronary artery angioplasty. Ultimately, 30 of the hemophilia patients met the established CVD criteria, with the most common events being angina and MI. When compared with the unaffected group, the HTC patients did experience significantly less CVD events and procedures, with an overall rate of 15% vs. 25.8% in the ARIC group.
The authors cited study strengths including its multicenter structure and the measures that were taken to account for
certain variables unique to hemophilia. “If a low baseline factor level is protective against CVD, it would be more likely to be detected in a population with more severe disease, as the protective effect could be diluted or masked in cohorts that include patients with mildly decreased factor levels, explained the authors. “This is particularly true of rare diseases such as hemophilia, for which subject numbers in studies tend to be low. Our study also used medical records to confirm CVD diagnoses, central laboratory testing for lipids, and hsCRP (high-sensitivity C-reactive protein) and central reading of electrocardiograms.”
Study limitations were also noted, including the lack of an active control group and potential selection bias as individuals with more medical complications may visit the HTC more often and thus be more available for study. In addition, the study included HTC patients only, thus excluding the estimated 20%-30% U.S. patients who receive care outside the HTC network. The authors acknowledge that these factors could possibly skew their study group towards patients with more comorbidities, potentially resulting in an “overestimation of CVD in the population.”
Strengths and weaknesses notwithstanding, the authors drew important takeaways from the study. While hemophilia may offer some protection from CVD in certain moderate and severe patients, older patients are not completely immune from heart-related complications. Cardiovascular risk factors such as hypertension, are still common in hemophilia and as such prevention measures are still warranted.
“Thus, given the occurrence of CVD in men with hemophilia, and the challenges in its treatment in this population, measures directed at screening for and managing cardiovascular risk factors and optimizing management of CVD in this population are needed,” concluded the authors.
The study, “A Cross-Sectional Analysis of Cardiovascular Disease in the Hemophilia Population,” was published on June 12, 2018 in the journal Blood Advances.
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2018 with
general donations, Honorariums, and Memorials.
$15,000—$19,999
Genentech
$10,000—$14,999
CSL Behring
National Hemophilia
Foundation
Shire
$5,000 - $9,999
ARJ Infusion Services, Inc.
Bioverativ
CVS/Caremark
Octapharma
Pfizer
$3,000 - $4,999
Aptevo Therapeutics
NCHS
$1,000 - $2,999
AccurateRx
Bayer, Inc.
BioRx
Global Prairie Marketing
Grifols
LHM
Matrix Health
Midwest Hemophilia
Association
Novo Nordisk
Paragon Healthcare
Redchip of Nevada
Swink, Fiehler, & Company
UMB Bank
$500 - $999
Ascension
BriovaRx
Eschbacher, Gina
Flores, Tony & Danielle
J.B. Marine Services, Inc.
Johannes, Cyril & Charla
Joshua S. Arnold Insurance
Agency
Stringer, Drew
$100 - $499
Addie, Martin
Affordable Auto Credit, Inc.
Ahlers, Kara
Ajans, Lena
Athletico Physical Therapy
Bauman, Stephanie & Jake
Billups, Bethany
Birk, Matt
Brawley, Carol A.
Brown, Rachel
Campbell, James
Canada, Robyn
Carleton, John & Pam
Chandler Chicco Agency
Copeland, Andy
Costephens, Julie
Daube, Todd & Sharon
Dave Sinclair
Ellebrecht, Kevin & Lee
Emergency Medcard LLC
E-Script
Filyaw, Jennifer
Flax, Brittany
Frey, Brian
Gagnier, Jennifer
Garmon, Piper
Great Southern Bank
Gute, Patrick
Gutelius, Erica
Haley, Chris
Hentschel, Richard
Hilmes, Bruce
Hoffman, Daniel & Linda
Hoffman, Michelle
Hopkins, Jennifer & Steph
Jochum, Katherine
Johannes, Donald
Johannes, Stephen
Jones, Lisa
Keller, Katherine
Kendra Scott
Klein, BJ
Klein, Dwayn
Klein, Michael & Kristina
Larson, Elena & Terry
Lauman, Kate
Lawlor, Callaway
MacDonald, Craig
Magee, Brian & Carlisa
Majerus, Dr. Elaine
Marema, Kristin
Mayer, Richard
McRoy, Mary
Meile, Christopher
Meile, Jim & Patty
Meyer, Amanda
Miers, Patricia
Milhauser, Tim & Debbie
Miller, Veronica
Moore, Lori
Nestor, Lynn
Oberkrom, Vicki
Oliver, Kristi
Pappert, Matthew
Pezzillo, Rich
PP & DJ Foods, Inc.
Primm, Courtney
Pruitt, Don & Cheryl
Putnam, Jamison
Queen of All Saints
Ratcliff, Randyl
Rodgers, Brian
Ruckman, Rita
Schneider, Chris & Abby
Shults, Kevin
Sledd, Makenzie
Smith, Mary
Smith, Sarah
Snarey, Mareena & James
Staats, Steven
Stewart, Linda & Larry
Taake, Lisa
Tinsley, Cindy
Underwood, Colleen
University of Missouri—St.
Louis
Wadsworth, Nathan
Weiss, Suzanne
Witt, Jeff
Wunderlich, Steve
Your Cause
Zwier, Jozef
$50 - $99
Beckham, Mark
Beykirch, Kathy & Paul
Bockhorst, Robert
Bolduc, Jennifer
Brueggeman, Amanda
Brumfield, James
Buehne, Tricia
Causey, James
Chandler, Joseph
Chiarizia, Maureen
Codak, Lisa
Copilevitz, Debbie
Daley, Sarah
Davies, Judith
Davis, Corey
Decker, David & Nicole
Deere, Travis
Degenhart, Mike & Daveann
Donnan, Steven
Donnelly, Kimberly
Dressle, David
Dunn, Kirk
Flynn, Carrie
Garea, Diane
Gerstenkorn, Dorothy
Gindling, Judy
Gray, Ellen
Greater St. Louis Community
Foundation
Gute, Amelia
Hamilton, Derek
Hargrave, Kathleen &
Michael
Harper, Jeffrey
Harris, Erin
Hilmes, Lauren
Hirsch, Jennifer
Hurd, Kathryn
Hurtig, Jessica
Ift, Mike & Cheryl
SUMMER 2018 GATEWAY CONNECTIONS 13
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2018 with
general donations, Honorariums, and Memorials.
Jarvis, Tim
Kalisiak, Brooke
Kemper, Melissa
King, Elisabeth
Klein, Jane
Korner, Mary
Lambdin, Henry
Lathrum, Jill
Latsch, Rosalie
Leith, Brian
Lewis, LeEllen
Long, Nancy
Madinger, Julie
Martini, Sue
McNamee, Patrick
McRoy, Joy
Mills, Michael
Mohler, Maria
Moyer, Meredith
Mueller, Gary
Nanney, Diane
Nave, Rachel
Noeltner, Trent
Parrott, Jeff
Powers, Jan
Powers, Timothy
Price, Mike & Karen
Prickett, Dennis
Primm, Jeff
Proctor, Keith
Radek, Stephanie
Ray, Maddie
Reichelt, Keara
Rendezvous Café & Wine Bar
Ruwe, Stuart
Sander, Maureen
Schroeder, Elizabeth
Schultz, Brooke
Seebeck, Thelma
Settle, Ashleigh
Shippey, Dean
Shrout, Jeff
Smith, Laura
Stringer, Dirk & Trudy
Summers, Leslie
Thomas, Dawn
Towell, Jennifer
United Health Group
The Vertex Foundation
Waitukaitis, Jennifer
Walls, Tim
Wilson, Cheri
Wilson, James
Witt, Christine
Wood, Linda
Wurglitz, Rebekah
Yemm, Kate
Zaragoza, Analy
$1 - $49
Addie, James
Admas, Becky
Agers, Susan
Ailor, Carol
Allen, Cara
Amazon Smile
Ambrose, Elise
Anderson, Misti
Antenor-Dorsey, Jo Ann
Arbini, Adam
Arbini, Dominic
Armbruster, Catherine
Arnold, Ashley
Ashby, Bria
Athavale, Ajay
Bagato, Judy
Ball, Deborah
Barberis, Laura
Barletta, Molly
Barringer, Joe
Bill Simo, Simo Realty
Bollinger, Anne
Bolozky, Suzanne
Bova, Adam
Boyer, Joan
Boyher, Amanda
Brake, Lisa
Brockmeyer, Carol
Brockmeyer, Ramona
Brown, KayLeigh
Bueckman, Audree
Burkhart, Chris
Callis, Cristin
Chateece, Rickard
The Clorox Company
Cook, Christine
Cosmano, Leslie
Cottet, Donna
Cox, Brian
Cox, Robert
Crews, Janet
Culp, Linda
Culver, Denis
Daily, Morgan
Daniel, Hillary
Danley, James
Danter, Carol
Darr, Sara
Dazey, Melissa
DelRosaric, Genevieve
Desloge, Nancy
Deters, Courtney
DeVille, Barb
Dobecki, Sarah
Drenckpohl, Molly
Dunlap, Patrick
Dunn, Jarred
Earll, Tracy
Eastman, Anthony
Eaves, Kasey
Edler, Sondra
Esser, Hillary
Fauke, Laura
Finkes, Pat
Flanigan, Matthew
Fleming, Mary
Fogarty, Rachel
Foster, Tonya
Franklin, Delta
Frese, Jan
Friedman, Peter
Garanzini, AC
Glover, Andrea
Grantham, Kate
Gravitz, Beth
Grimsley, Carrie
Griser, Mary
Harris, Melissa
Harrison, Julie
Hartpence, Monica
Hayden, Vickie
Heaney, Janelle
Heard, Jessica
Higgins, James
Hilmes, Larry & Marla
Hinkson, Manuel
Hoelscher, Kelly
Hoffman, Douglas & Ashley
Holmes, Kerri
Hon, Angela
Housley, John & Julie
Hughes, Nancy
Innes, Rhonda
Johannes, Jill
Kalecki, Diane
Kaminski, Rachel
Kemper, Glen
Kennedy, Harry
Kershner, Beth
Kinion, Rachel
Klepacki, JoEllyn
Knight, Donna
Kraenzle, Cherri
Kramer, James
Krystoff, Cheryl
Larocca, Irene
Larrew, Cinthia
Lathrum, Alaina
Laughlin, Charlene
Leonard, Elizabeth
Liesen, Brenda
Linear, Mary
Loesch, Amy
Lotz, Jessica
Love, Barb & Jim
Mantia, Cathy
Mantovani, Elizabeth
May, Sandra
Mayer, Kristin
Mayfield, Hannah
14 GATEWAY CONNECTIONS SUMMER 2018
Scheurich, Gretchen
Schmidt, Donald & Diane
Schneider, Linda Lee
Schneider, Rieley
Schroeder Pod, Mary Sue
Schultz, Nathan
Scott, Robin
Shenberg, Jan
Sims, Janet
Slayden, Ashley
Sloan, Ryan
Speiser, Gina
Stafford, Brandy
Starks, Rick
Stepp, Barbara
Stovall, Russell
Sureshkumar, Yogesh
Switzer, Leslie
Talbot, Jeanine
Tate, Heather
DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2018 with
general donations, Honorariums, and Memorials.
SUMMER 2018 GATEWAY CONNECTIONS 15
McAtee, Dawn
McCaughey, Don & Kay
McCormack, Helen
McCormack, Tina
McCulley, Alisa
McFadden, June
McGrath, Martha
McMahon, Kent
Meadows, Charity
Meile, Danielle
Metcalf, Andrea
Milhauser, Nancy & Nick
Mitchell, Victoria
Moder, Stacy
Moore, Jessica
Moore, Julie
Moore, Randall
Morff, Julie
Muniz, Christopher
Nichols, Kim
Nugent, Jennifer
Oakes, Stacey
Ohanlon, Angela
Parrent, Eric
Parrott, Mickey
Perez-Franco, Orlando
Potts, Amanda Maria
Prather, Shane
Rensing, Melody
Rexach, Velda Y.
Rhoades, Jill
Rieken, Kathleen
Robinson, Ashleigh
Roesch, Shirley
Rogers, Chad
Rousseau, Kevin
Saller, Lindsey
Sansegraw, Kim
SAP Software Solutions
Scanlon, Joe
Tipton, Melanie
Tooley, Megan
Tucker, Brian
Tyrey, Bridget
Vaughn, David
Vieke, Briana
Villarreal, Maricela
Villegas, Rodolfo
Viviano, Alice
Wachtel, Cynthia
Walls, Ashly
Wand, Theresa
Watts, Ken
Weaver, Martha
Wells, Linda & Lance
Wetter, Melanie
White, Michelle
Whiteman, Tommie
Yelton, Ronnie
Young, Nancy
4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org
Presort Standard US Postage
PAID St. Louis, MO
Permit No.
Email us at: info@gatewayhemophilia.org
Tasting of Delicious Wines
Microbrew Signature Beers
Light Hors D’oeuvres
Silent Auction & Live Music
Complimentary Valet Parking
Tickets: $30 in advance
$35 day of
Register at gatewayhemophilia.org
or (314) 482-5973
GHA’s Wine Tasting Fundraiser Benefiting the Matthew Wilson Scholarship Fund
Thursday, August 16, 2018 from 6-8pm