FORCE:Facing Our Risk of Cancer Empowered - Overview

FORCE: Facing Our Risk of Cancer Empowered

FORCE is an international nonprofit

organization devoted to individuals and

families affected by hereditary breast

and ovarian cancer.

FORCE is the only organization of its kind. Each year FORCE reaches thousands of people with life-saving information and support.

FORCE

FORCE

For many people, FORCE is the only way to connect with others who are facing hereditary cancer risk.

Our Mission

To improve the lives of individuals and families affected by hereditary breast and ovarian cancer.

Our Mission

FORCE’s mission extends beyond support—we provide up-to-date information about research, risk management and treatment options

www.FacingOurRisk.org

Receives over 1.5 million hits-per-month, and over 50,000 sessions-per-month

Our Website

Hereditary cancer and cancer geneticsAssessing your risk and genetic counselingFamily historyGenetic testing

FORCE Website:Information on Hereditary Cancer

•Breast and ovarian cancer risks•Other cancer risks•Chemoprevention•Surveillance •Risk-reducing surgery •Reconstruction•Surgical menopause

FORCE Website: Information on Cancer Risk Management

Finding specialists in cancer geneticsFinding gynecologic-oncologistsSpecial clinics devoted to high-risk womenClinical trials enrolling high-risk and BRCA patientsInsurance coverage for genetic testingFinancial help for genetic testing and health careGenetic information and discrimination

FORCE WebsiteInformation on Finding Health Care

The only website with separate sections on hereditary cancer devoted to pre-vivors, breast cancer survivors, and ovarian cancer survivors.

FORCE Website

Information on the latest policy and advocacy issues affecting our community

FORCE Website

Providing peer support for thousands of people and families affected by hereditary breast and ovarian cancer

Over 100,000 postings. Largest data-base of personal experiences from people with BRCA mutations or family history of hereditary cancer

FORCE Website

Message Boards

Quarterly Newsletter

Circulation of over 7000 copies per issue

Topics: Latest research on hereditary cancerNew resources for the high-risk communityClinical trials enrolling high-risk womenTargeted therapy for BRCA cancersCancer prevention optionsExercise and cancer preventionReconstruction optionsAccess to genetic testing in underserved populationsPersonal accounts sharing stories of hope and support

Newsletter: Joining FORCEs

866-824-RISK(866-824-7475)

FORCE Toll Free Helpline

Established as collaboration with University of Pennsylvania, Abramson Cancer Center

Reaching hundreds of callers yearly with peer support, resources, and information

The only help-line of it’s kind, for people concerned about hereditary breast and ovarian cancer and cancer risk

FORCE Helpline

Joining FORCEs Conference on Hereditary Breast and Ovarian Cancer: www.facingourrisk.org/conference

Established as collaboration with H. Lee Moffitt Cancer Center and Research Institute

Patient-focused conference with topics of interest to our community

2006 conference attracted 250 attendees from 5 countries and 28 states

Conference: Joining FORCEs

May 18-19, 2007Open to 400 attendees

www.facingourrisk.org/conference

TOPICSModifiers of riskCancer early detection optionsNew treatment for BRCA cancersCancer prevention optionsCoping with riskDiet and lifestyleRelaxationManaging menopauseReconstruction optionsFertility and adoptions

Free webcast of 2006 conference available on-linewww.facingourrisk.org/webcast

Joining FORCEs Conference – 2006

Available free to health-care providers, facilities, and people concerned about their risk for cancer

FORCE Brochures

•Genetic Information, Privacy and Discrimination” developed as a collaboration with the National Society of Genetic Counselors. only national brochure on genetic information and discrimination

•Over 100,000 brochures have already been distributed throughout the United States and Canada

An event to raise awareness of the link between hereditary breast and ovarian cancer

In 2006, events were held in Boston, Tampa, and in Ft. Lauderdale (Ft. Lauderdale event was a collaboration with the National Ovarian Cancer Coalition).

Passing of the Torch

Information available on-line at:www.facingourrisk.org/torch

Passing of the Torch

•Spanish-language booklet and website

•Articles to highlight the importance of genetic counseling in conjunction with genetic testing (collaboration with the National Society of Genetic Counselors)

•Looking Back, Living Forward Program to promote sharing of family stories and family medical information

Developing Programs