Post on 24-May-2015
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Empowering Digital Health ConsumersEija Hukka
Empowering Digital Health ConsumersEija Hukka
Development ManagerNational Institute for Health and Welfare, Finland
eija.hukka@thl.fi
National Institute for Health and Welfare (THL)National Institute for Health and Welfare (THL)• Formed 1 January 2009 through
the merger of the National Public Health Institute (KTL) and the National Research and Development Centre for Welfareand Health (STAKES)
• Operates under the Ministry of Social Affairs and Health(MSAH)
National Institute for Health and Welfare (THL)National Institute for Health and Welfare (THL)• Mission:
• THL promotes the well-being and health of the population, preventsdiseases and social problems, and supports social and healthservices.
• THL carries out its responsibilitiesthrough a wide range of activities: research, evaluation and follow-up, development work, expertinfluence, centralised national services as well as international co-operation.
Key figuresKey figures
• Funding• Total budget in 2009 is 96 million euros: 64% from the State
Budget and 36% from other funding sources
• Personnel• Permanent staff: 927• Fixed-term project staff: 425
• Department of Communication and PR (53 persons)• Customer relations & information steering support• Communications• Web services unit• Publications unit
Preparedness for A(H1N1)v influenza epidemic (swine flu) Preparedness for A(H1N1)v influenza epidemic (swine flu)
• MSAH and THL work closely with the EU Commission and the European Centre for Disease Control
• National Preparedness Plan for Influenza Pandemic in 2006
• instructions to the state provincial offices, hospital districts, educational authorities and places of education, municipal day care authorities and day care units
THL’s roleTHL’s role
• guidelines to hospital districts, which distribute them to health centres together with regional instructions
• centralised communication to the public
Communication to the publicCommunication to the public
• Mass media (regular pressmeetings, newsletters, pressreleases, constant writing)
• Information to different targetgroups
• Print materials (posters, leaflets etc.)
• The influenza telephonehotline
• Outdoor campaign• TV-spots, radio podcasts
Internet communicationInternet communication
• Web pages: • An extensive information
package to the public & health professionals
• Social media: • Banners to the main
channels of social media e.g. Facebook, Messenger, Suomi24 chat
• Videos published in the YouTube
Lessons learned…Lessons learned…
• For the first time in history more people are turning to the Internet than to health professionals for healthinformation
(manhanttanRESEARCH)
• A Survey of Spanish doctors showed that 96% of the doctors have been questioned about information they have read on the Internet by their patients.
(Survey of Spanish docs online, 2008)
• Web Pages are important channels, but notenough…
Lessons learned…Lessons learned…
• Well annotated content improvedTHL’s Google ranking after ”swine flu”was added to the ontology.
• Important to use the terms peopleunderstand (H1N1 = ”swine flu”)
• Consumer focused social media strategy & tools are needed
• ”No single source of informationstands out or stands alone.”
November 2009
The digital health consumerThe digital health consumer
…wants to get the information:• from multiple sources• in understandable form• from peers/family as well as
from experts• whenever he/she needs it• using whatever device
I
The digital health consumer wants a second opinionThe digital health consumer wants a second opinion
But the web is a mess…But the web is a mess…
Semantics is making the web more intelligent and interoperableSemantics is making the web more intelligent and interoperable
Why semantics?Why semantics?
• To share common understanding of the structure of information among people and among computers
• To be able to reuse the content in differentsettings
• To avoid ”re-inventing the wheel”• To better take advantage of the social media
A second generation world widewebA second generation world widewebPeople are:• Seeking information• Sharing their own data &
experiences• Connecting with each
other• Seeking information
published by peers
Anytime, anyplace and any deviceAnytime, anyplace and any device
• Personalized search that finds the rightanswers
• The digital consumer chooses what to believeand whom he/she shares with
• Self-management via web-basedcommunication system
• Facilitating interactive communication & virtualcommunities
• Supporting decision & enabling transactions
Filling the gap between…Filling the gap between…
eHealth Care and the digital health consumer
Using social media in healtheducationUsing social media in healtheducation• Goal: Improve the H1N1
vaccination coverage among the younger generation
• Channels: Facebook and IRC-Gallery
• Online conversation, answeringquestions, quizz, FAQ, videos
• cooperation with the Finnish celebrities
• Partners: MSAH, THL, The Finnish Student Health Service (FSHS), The Finnish Red Cross, City of Helsinki (Net Nurse –service)
The future is social & mobileThe future is social & mobile
• A real-time web is the next logical step in the Internet’s evolution.
-OM Malig, Giga OM (2009)
• eHealth information & services are becoming more• Ubiquitous• Interoperable• Mobile (over 50% of world’s households carry a mobile
device) • Location-based (location awareness)
The future is already hereThe future is already here
”No one knows everything,everyone knows something, all knowledge resides in networks”
(Levy, 1997)