Caring beyond the now

An NDIS Participant Readiness activity funded by the Department of Communities, Child Safety and Disability Services

Succession Planning

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Mr and Mrs Junor’s story Lynne Junor tells us about her son, Mark, and his wife Melissa, and how they are using planning to reach their goals.https://www.youtube.com/watch?v=cNr2Kw55088

Australian Bureau of Statistics (2013) 95% of all parent carers live with the care recipient 56% of parent carers spent 40+ hours per week in the caring roleAnglicare study (2014)80% of parents worry about what would happen to their son/daughter, if they were unable to care38% of carers identified conflict between themselves and the person they care for and support10% of carers had received help with transition planning in previous 12 months23% indicated that there was a good plan in place, for the person they care for and support

Why planning is really, really hard… Discussing future care needs can be challenging and emotionally difficult; it’s

easier to avoid the issueWorry and uncertainty due to a lack of support options Fear of deterioration in the quality of careConcern that the future independence of the person with a disability will be

compromisedDifficulty identifying care arrangements that would ensure the future happiness

and security Lack of support or guidance, including not knowing who to speak to or where to

get help Family discussions about future care arrangements can be a sensitive topic

Older carers don’t access services because…Greater sense of self-relianceLack of understanding from professional workers of the problems

they faceStruggles to get help in the pastRejection of assistance in the pastDissatisfaction with past or present service deliveryDeep sense of personal responsibilityBelief that requesting help is a sign of failureFear that drawing attention to their own difficulties could result in a

withdrawal of services or loss of control over the care of their son/daughter

Living arrangements…can be ok for everyone!1 in 4 carers identified the need for the person they care for and support to transition into a new permanent care arrangement

For families who have had a family member transition into alternative accommodation, their ongoing wellbeing is closely associated with that of the family member

Generally, if parents observe that their child’s quality of life is good, they will report that their own life is also good

Although carers experience increased guilt, worry and feelings of inadequacy, they also experience less exhaustion, sadness, anger, and resentment, and increased happiness, peace and hopefulness (Gardiner & Larocci, 2012)

What can I use to help me plan?

6 important things to consider when planning 1. Your will

2. Financial management order

3. Guardianship order

4. Power of attorney

5. Trusts

6. Social Security status

The difficult conversations…

Who can help me?

Contact your local community legal centre

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As a general rule assistance provided by CLCs is free.

Carers Queensland Counselling Service

Call the Carers Advisory Service 1800 242 636

Questions???