Be Your Own Patient Advocate (Really!)

Post on 12-May-2015

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A deck built for a women's event in Richmond VA. It exhorts people, particularly women, to be their own patient advocates. Don't be a meat puppet!

Transcript of Be Your Own Patient Advocate (Really!)

Women + Healthcare

This presentation was built for

HCA Virginia's Spirit of WomenGirls' Day Out on Oct. 7, 2011

(the message works for ALL women!)

... 'cause you'll do the best job. Really.

Be Your Own Patient

Advocate

Patients

Patients

Customers

Without PatientsCustomers

A doctor's just another

dude (or dude-

ette) in a white

coat.

We are ALL patients customers

Who makes 80%+ of all household decisions?

I'll give youthree

guesses.1st two don't

count...

Health care = SHOPPING?

Act like a CUSTOMER,get treated like one.

Ask friends.Ask colleagues.

Use the web.

If you're not comfortable with the healthcare

shopping metaphor ...

Ever hire anyone?

HIRE your doctors!

No.

I'm NOTkidding.

Healthcare is ...

CollaborationTeamworkResearch

Project managementData management

A WORKINGRELATIONSHIP!

Data, data, who's got my data?

If doctors andpatients could

freely exchange information and

data,who knows what

might happen?

Doctors + Patients X Data Sharing = REAL Health Care

Reform

Alphabet soup is an issue

HIPAAHIEFHITSOPHITRUSTHITECHBHIECCHITE-I-E-I-O

So what's a grrl to do?

Know your historyKnow your risk factorsKeep your own records

Family History

DiabetesCancerStrokeHypertensionAsthmaCataractsHeart diseaseGlaucoma

Personal HistorySmokingWeightActivity levelStress levelGeographic location (this is MUCH bigger than you'd expect)Geographic history (where did you grow up? where have you lived?)

Record Keeping

Excel spreadsheets are AWESOME toolsRIP Google Health: build your own on Mozy.com or Box.netIf your provider has an online patient portal: USE IT

"Airplane Rules"

Take care of YOURSELF firstMonitor your habits: what can you change?You are what you eat

Become an e-Patient

EmpoweredEqual EngagedEnabledEquippedEmancipatedExpert

"My doctor won't play"

Two words:

YOU'RE FIRED.

Digital Patients Bill of Rights

Shared access to my dataAttitude of collaboration and mutual respectThe patient is the largest stakeholderTransparency and authenticity across all areasVoice of the patient is a legitimate (clinical) sourceThe right to efficient communication with providers who utilize the technology that we need

~Philadelphia PA, September 19, 2011(I was there!)

Let's review:

Ask questionsWork to understand the answersIf you don't understand, keep askingDon't be a diva, but do be fierce on your own behalfKeep your own recordsAsk for copies of everythingDon't be a meat-puppetStay INSIDE the car

YOU

healthcare system

Resources

e-Patients movement: e-patients.netWEGO Health: WEGOhealth.comHealth Central: HealthCentral.comDept. of Health + Human Services: Health.govCondition-related pages:Cancer.gov/.orgDiabetes.org[name-that-disease].org

Our Bodies, Ourselves?

YOUR body.YOUR self.

YOUR responsibility.

?Have questions?

Contact me!casey@mightycasey.co

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