Post on 18-Apr-2020
Annual Report 2010
www.themaxfoundation.org
The Max Foundation Supporting people living with cancer worldwide
Letter from the Executive Director
Dear Friends,
It is with great pride that I would like to introduce this Annual Report
for 2010, a year marked by a conscious effort to maximize our impact
in the community by expanding our partnerships. With this
philosophy in mind, we launched into 2010 seeking new, effective
working relationships and focusing on outcomes. We have been
involved in successful public private partnerships for ten years, most
notably with Novartis Oncology for their Glivec International Patient
Assistance Program (GIPAP) and subsequently for other access
programs. The focus of 2010 was on identifying specific needs and lining up organizations who
could contribute to addressing them.
In partnership with key opinion leaders from the International CML Foundation (iCMLf) we
developed a training module for physicians treating CML in Emerging Regions; in partnership with
patient organizations in 30 emerging countries and thousands of volunteers, we launched and ran
a successful awareness campaign and collected more than 13,000 signatures for the World Cancer
Declaration; and in partnership with a global multidisciplinary working group, we are addressing
the pressing need to expand diagnostic capabilities in low resource settings.
Our partnerships have involved survivors and caregivers, physicians and other health care
professionals, the community at large as well as industry and other NGOs. In total, we provided
services to more than 22,000 patients, an increase of 30 percent, and we reached organizations in
30 countries with the Maximize Life Global Cancer Awareness Campaign, our most successful
campaign to date.
We are grateful to every single person and organization that showed the courage to step up and
give of themselves. We are especially thankful to our private donors, without whom we would not
be able to serve; to our volunteers with their relentless energy and selfless giving; to our staff and
representatives who carry our name with dignity and pride; and to our survivors and caregivers for
showing us the way. The year 2010 allowed us to take a step into a universe of possibilities and we
are marching full speed towards 2011 with the goal of making cancer a global health priority.
Pat Garcia-Gonzalez
Executive Director
Increase of 40 percent in number of families served over 4 years
2010 Patient Services at a Glance
27,009 Patients whose cases we managed in patient assistance programs
22,089 Patients from 128 countries provided with one-on-one emotional support
5,269 Patients in 107 countries provided with advocacy services
4,915 Patients enrolled this year in patient assistance programs
4,469 Patients in 57 countries provided with informational referrals
12,500
16,69217,640
22,089
0
5,000
10,000
15,000
20,000
25,000
2007 2008 2009 2010
Number of patient served each year
The expanding reach of our International Patient Helpline
International Patient Helpline
The International Patient Helpline is the flagship program of the organization. Every
year we receive thousands of requests for help from cancer survivors, advocates and
caregivers around the world.
Our approach in responding to requests follows a protocol with strong emphasis on
patient privacy, the need to work with the physician as a partner, and overall respect
for diversity in cultural beliefs.
Our helpline is staffed by a highly professional, multicultural and multilingual team of
advocates based in our global office, working in conjunction with advocates based in
targeted countries around the world. Advocates are able to team up to bolster case
management as needed; utilizing a web-based patient tracking system developed in-
house that facilitates collaboration in real time.
Our helpline is made possible in part by a sponsorship from each of the following companies:
Novartis Oncology, Cephalon, Alexion, ChemGenex, Ariad, and Global RX.
Support services to 22,000 families from 128 countries
Total revenue of $2,059,999
Financials
In 2010, we continued to develop strong partnerships with key stakeholders,
seeking projects that benefit our constituents and encourage organizational
growth. Our revenues surpassed 2 million USD for the first time in the history of the
organization, of which 88 percent were applied directly to programs, 8 percent
covered administration and, 4 percent covered fundraising costs.
Our business model was further strengthened by diversifying the number of
collaborators with whom we are now engaged in long term program partnerships.
Sponsorships, private donations, and revenues from these public private
partnerships provide support to our programs.
13,000 signatures added to the World Cancer Declaration
Maximize Life Global Cancer Awareness Campaign 2010
60 events, 31 organizations, 30 countries
In October for the second year in a row, The Max Foundation partnered with patient
associations around the world to help raise awareness of the needs of people living
with cancer, with the aim of making cancer a global health priority. Led by
thousands of volunteers, patient associations came together as part of the
campaign, organizing more than 60 events in cities around the world.
CML training to 1,000 physicians from emerging countries
Virtual Education Program for Physicians
In 2010, a partnership with the International Chronic Myeloid Leukemia Foundation
(iCMLf) enabled us to bring CML education to physicians treating the disease in
emerging countries.
One thousand copies of the program were sent to physicians in more than 50
countries. Additionally, 120 physicians from 26 countries were able to participate in
a networking event with The Max Foundation and the iCMLf at the 2010 American
Society of Hematology (ASH) meeting in Orlando, Florida.
400 local handmade hats sent to children in 5 countries
With Love in Every Stitch
In 2010, members of our local Washington community made over 400 knit hats that
were sent to children hospitals in Russia, Uzbekistan, Guatemala, Mexico and the
United States.
Before the hats were sent overseas, a “With Love in Every Stitch” tag with a kind
message was tied on by volunteers. All hats were hand delivered by local
representatives of The Max Foundation to the children in hospitals who rummaged
through the hats of various colors, sizes and designs to find the one that made them
smile the most.
300 art submissions from 21 countries
Maximize Life Art Project
People living with cancer express themselves in many mediums and the fact that so
many survivors have chosen to share their art is a powerful gift. Anyone viewing this
year’s art submissions will find themselves moved by the emotion of the art pieces
communicated through the color and content on each canvas.
The 2010 art collection is infused with life, featuring countless natural themes including
landscapes, sunsets, blossoming trees, ocean views and butterflies flying off the
canvas. We received over 300 art submissions from 21 countries!
Beyond collecting art for our annual art project, patient groups around the world have
also participated in art therapy workshops.
In recognition of our partners and supporters
International Union Against Cancer (UICC), Switzerland • Asociacion de Leucemia Mieloide Argentina, Argentina • Asociacion
MaxiVida Chile, Chile • Asociación de Lucha Contra la Leucemia, Bolivia • Asociación Ecuatoriana de Ayuda a Pacientes con Cancer
Esperanza y Vida, Ecuador • ASAPHE, Venezuela • Fundacion Esperanza Viva, Colombia • Asociacion Amor a la Vida, El Salvador •
ASOPALEU; Una Voz Contra el Cancer, Guatemala • Asociacion Hondurena de Lucha contra el cancer, Honduras • Asociacion Alas de
Vida, Nicaragua • AMELEG, México • ADVITA; Nastenka; Sodeystvie, Russia • Friends of Max Azerbaijan, Azerbaijan • Association of
CML Patient, Uzbekistan • Touched by Max, Philippines • MaxFamily Society of Malaysia, Malaysia • MaxSmiles, Thailand • Max's
Vie, Vietnam • Friends of Max; India Trust, India • Kiran, Pakistan • CML Home of Hope, China • Henzo Kenya, Kenya • CML
Ethiopia Foundation, Ethiopia • Leukemia Foundation, Mauritius • SOCHIMIO, Cameroon • ASUL, Uruguay • APSBES-ONG, Togo •
Charitable Society for patients with blood cáncer (CML-GIST), Sudan • Crusader Club Ministry Palliative care, Sierra Leone
United States Acclaim Sign & Display in Seattle www.acclaimsign.com American Apparel www.americanapparel.com Global Washington globalwa.org KPLU 88.5 – NPR News and All that Jazz www.kplu.org The Leukemia & Lymphoma Society www.leukemia-lymphoma.org New Wave Printing Ink in Lynnwood www,newwaveprintingink.com Devin Reynolds, The Magician www.devinmagic.com India Adyar Cancer Institute (W.I.A.) Anand Cine Services St Louis Institute for deaf and blind Nalli Chinnasamy Point Blank Advertising Pvt. Ltd. Suresh Lulla and Magna Vision Inc Saravana Videos Bombay Hospital PGI Chandigarh Lakeshore Hospital Mexico Asociación Mexicana de Ayuda a Niños con Cáncer (AMANC) Solo por Ayudar Thailand Xavier Hall by Society of Jesus
Malaysia Limkokwing University of Creative Technology Life Publishers Berhad Malaysian Society of Haematology Bayview Hotel Georgetown Penang Oikos Counseling Ayam Brand VeGOOD Pakistan S.M .Public School, Gulshan-e-Iqbal, Chapter, Karachi Philippines Ninoy Aquino Parks and Wildlife Center Aquinas Hospital Aquinas University of Legaspi Talisay City College Philippine National Red Cross Philippine General Hospital Naval Reserve Command Department of Health-Legaspi City South Africa Littleton Community Library Venezuela Fundación Talleres de Aprendizaje para las Artes y el Pensamiento (TAAP)
Global Supporters
Campaign Partners
Mexico
Mariana Rubí González
Pakistan
Salim Mirza, MS
Syed Asher Ali
Philippines
Nelia Medina
Russia
Alexandra Shchetkina
South Africa
Martina Skeen
Catherina Scheepers
Sudan
Emtithal Eltayed Alzaki
Thailand
Wasan Wasinprasert
Wirat Sae-Kuai
Yutthana Wipulakorn
Venezuela
Xiomara Yenice Skrabal Ross
Argentina
Inés García González
Mercedes Arteaga
Dominican Republic
Martha Maria Rosario Molina
Guatemala
Patricia Montero Mendez
India
Ashok Boricha
Ashok Zine
Beena Narayanan
Gita Baratam
Jacinta Desa
Melissa Norman Nunes
Philip Fernandes
Santosh Sakharam Kadam
Sharon Gonsalves
Sudha Samineni
Taruna Bhatnagar
Veena Maria Mascarenhas
Viji Venkatesh
Malaysia
Mei Ching Ong
Nor Aina Bt Abd Rahim
Siea Liang Wong
Wei Meng Ang
Board of Directors
Pat Garcia-Gonzalez, MS
Robert Farmer
Tracey Higgins
Kenneth Weyant
Jim Lumsden
Medical Advisory Board
Andreas Hochhaus, MD
Brian J. Druker, MD
Francois Guilhot, MD
George D. Demetri, MD
Jerald Radich, MD
John M. Goldman, MD
Jorge E. Cortes, MD
Josy Reiffers, MD
Michele Baccarani, MD
Moshe Talpaz, MD
Oliver Gerhard Ottmann, MD
Stephen Gerard O’Brien, MD
Tim Hughes, MD
Thomas Fischer III, MD
Team
United States
Ann Kim Novakowski, MPH
Barbara Carpenter
Craig Anderson
Danielle Matia, MPH
Darlene Lee, MSW
Erin Schwartz, MSW
Michael Wrigglesworth
Nataliya Semez
Pat Garcia-Gonzalez, MS
Paula Lacy
Susana Sarabia
The Max Foundation
110 W. Dayton, Suite 205 • Edmonds, WA 98020, USA Phone : 425-778-8660 • Fax : 425-778-8760
email: info@themaxfoundation.org
Board and Staff